Possible Cluster or SUNCT, help!
as to not make this post to long, let me get straight to the HA picture.
I started having "normal" migraines at age 35 after a total hysterectomy. I am now 40 yr old. Two years ago, I had an episode where i was driving, became confused, lost, and ran over a yellow parking pole. When i got home i was struck with a horrid HA, and my left eye started drooping. AT the ER i had MRI and Lumbar Puncture, no stroke, so they said migraine and sent me home.
Over the last two years now I have had constant daily HA. Pain usually runs between 2-3, all day, just enough to bug me, but almost everyday i will have "flare ups" of the pain. This pain will usually run between a 6-8. I have only had it hit a 10 twice.
I have gotten into these cycles where i will get these increased headaches that come and go thru the day, but for weeks on end. By the time I hit the 2 week mark, i end up in the ER. Treatment of OXYGEN, MAG, STEROIDS, FLUIDS, and PAIN/NAUSEA meds will almost always break the cycle of the higher pain, then leaving me back to my daily low level HA. With EVERY cycle, it is ALWAYS on the left side, behind eye and just above eye, into temple, painful neck, left eye droops and so does the eyebrow, eye tears, and nose is stuffy. I do suffer from aura type symptoms as well, light, noise, nausea.....
I have been treated with Depakote, Amatriptline, Imiprameen?, Effexor. I currently used injectable Imetrex statdose, which works fairly well....It was thought i might have hemicrania continua, but i failed the indotest.....
My question is, and i really don't want to offend anyone who suffers from Cluster Headaches, but is it possible to have CH and not have a 10 on the pain scale everytime? Is it possible that maybe i have developed a "high pain tolerance" due to other things? I have heard that CH is worse than child birth...I have had two children, and that was NOT my worst pain of my life, my hysterectomy and two following surgeries within 12 mo. was indeed the worst pain of my life. I also deal with "chronic pain' due to a severe foot injury by ride on lawnmower, so maybe my level of pain is different???? I will say that at an 8, it can make me cry, I am depressed from living like this, and while I would never act on it because i have children, I have certain thought of ending my life due to all these headaches. I have also had thoughts of wanting to bang my head aganist a wall....never acted on it, but that's sorta scary.
I feel like the length of my HA in the higher pain fits more towards Cluster Headache than SUNCT, which should be peaks of only seconds to minutes....
so, really what i would like to know is
1. Can Cluster Headaches go for two years?
2. Can CH suffers have daily low level pain, or are you completely painfree until attack?
3. Does pain level have to be so intense to reach a 10 everytime?
Thank you in advance for any insight you all can give me. I am desperate at this point. I got for my first Botox in two days, and at that time i will talk to the doc about a lidocaine nasal spray i have heard can help....
Wishing you all a pain free day! Shannon
Last edited by miamigirl000; 03-18-2013 at 05:55 PM.