anyone with patulous eustachian tubes ? - Hearing Disorders Message Board

lib · 04-13-2004, 08:51 AM

hi,
i know there are a few of you i have compared notes with, any one else with pet that can share symptoms? i have an appointment with dr. poe soon so i am also anxious to talk to others that have seen him as well. thanks lib

JeremyR · 04-13-2004, 06:08 PM

Hi,

I don't have anything new to say to you about PET, and I think I've already corresponded with you once or twice on these boards. I hope your appointment with Dr. Poe goes well. I recently wrote to him myself, and am waiting for a reply. I'm willing to travel across the country and pay a substantial amount of money if he can help me. I've had this for almost nine years. Have you heard an estimate of how much one of his E-tube treatments/injections costs? What do you think caused your PET? Please give us all an update after you see him. Good Luck!

JeremyR

lib · 04-14-2004, 05:12 AM

hi,
i have no idea what could have caused mine, i am hoping by my history and an exam he will be able to give me an opinion. i had a sinus infection and after that a lot of strange stuff started happening, i also have all the predisposing factors, weight loss, tmj was on hormones and used sudafed. what did you say caused yours? how do you cope with this. i have problems with both ears. when people talk to you does your eardrum move to every word they say? do you know anything about his sucess rate? thanks, lib

JeremyR · 04-15-2004, 09:24 PM

Hi,

JeremyR again. I don't know what caused my PET. I had many ear infections as a child, and my jaw pops from time to time--but there must be more to it than that. How do I cope? Good question. For a long time, I was pretty obssesed with it, which is understandable when you consider how annoying PET is, and doctor after doctor can't find anything wrong with you. I was only 'diagnosed' two years ago, but I was convinced I had PET before this. As for now, my only relief is an estradiol nasal irritant-but I don't want to snort estrogen for the rest of my life. This is why I want to go see Dr. Poe. I wish someone on these boards who has seen him would describe a little bit about what he does, and how much he costs? What makes this guy so great? Is there some healthboards rule that doesn't permit this kind of information? My eardrum does not move like you described on your post. Once again, good luck and post any new information you find out.

JeremyR

lib · 04-16-2004, 12:15 PM

hi, is it not a shame we know more than some dr.s. from what i understand dr.poe specializes in the e tube and treatment. not many know what he does and it would be worth it for you to have a consultation, it will only give you answers and options, i go the 6th of may and i pray he can put an end to this as i have problems with both ears and a snapping sound that comes from my face behind my nose when i talk. do you get that? lib