Jeremy, Lib.. - Hearing Disorders Message Board

aja · 06-06-2004, 06:42 PM

Hi Jeremy, lib,
thougth I'd just check in because it's been a while. I'm still in the same boat too? I'm living my life though, I reach a crisis point with my PET roughly every 2 months and then I start the coping cycle again.
lib, do you reckon that it's a bad idea to take the birth control pill if you have PET? I don't know whether it's safe or not. I read that hormone treatment can cause it at some stage during my research but I've never had a doctor confirm that. You must have seen poe by now, how did you get on? I've been thinking about visiting the shea clinic.
I thought I'd mention as well that I've been trying acid blockers for the acid reflux thing that apparently can cause it, I was also thinking of trying a mouth guard to wear at night because I grind my teeth and I was wondering if I could have TMJ.
lots of love to you both,
aja

JeremyR · 06-15-2004, 09:13 AM

Hi aja,

Jeremy here,

Its very nice to hear from you again. Its official: I'm on the waiting list to go see Dr. Poe. I have an appointment in October. Dr. Poe sent me a very detailed letter describing his surgery for PET. It will be expensive if I go for it, but after nine years of PET, I'll do whatever it takes. As for a TMJ nightguard-I wear one of those sometimes because I grind my teeth at night. I don't think it will help my PET however. I'll keep you all updated.

aja · 06-15-2004, 03:34 PM

Jeremy..yeah, it's just that I read somewhere that TMJ can cause PET.. the muscle tension being so close to the Eustachian tube etc. and I know I clench my jaw in my sleep and grind me teeth bit, i think everyone does to an extent but I thought it was another thing to try. I dunno. That's great that you're going to see Dr. Poe, I'd love to read that letter he sent you. Do tell me Jeremy what's the surgery he's suggesting for you? and how much is a fortune?

lib · 06-15-2004, 06:04 PM

hi guys,
well i can tell you this, i asked dr. poe about tmj as i have it and he said it is a seperate issue, so i dont think it can cause it.
jeremy what did your letter say as far as surgery? i am going aug 9 for my first ear. i can tell you this about dr. poe, he is an excellent, caring, compassionate dr. and he knows his stuff. i love him! lib

lib · 06-15-2004, 06:09 PM

hi again,
jeremy what ins do you have? they may cover your visit, mine was covered thank god, so check into that also. lib