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Old 02-24-2008, 09:12 AM   #1
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Eardrum fluttering when touch side of face....could it be middle ear myoclonus?

When I touch my ear or side of my face, my eardrums suddenly start to flutter, also certain loud sounds cause this......could it be middle ear myoclonus?

What tests can I asl a ENT to do, to check for middle ear myoclonus?

Last edited by JohnUK; 02-24-2008 at 09:13 AM.

 
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Old 02-24-2008, 09:52 AM   #2
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Re: Eardrum fluttering when touch side of face....could it be middle ear myoclonus?

yes. those are symptoms of middle ear myoclonus. there are no good tests to diagnose but a very good neurotoligist can dx by the symptoms.

 
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Old 02-24-2008, 12:36 PM   #3
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Re: Eardrum fluttering when touch side of face....could it be middle ear myoclonus?

Quote:
Originally Posted by lib View Post
yes. those are symptoms of middle ear myoclonus. there are no good tests to diagnose but a very good neurotoligist can dx by the symptoms.

Hi Lib,

While I am waiting to see a super ENT specialist, I am trying to put a list of questions and things I would like to get tested for, just so I don't miss anything during my consultation.

My symtoms;-

1) I hear my voice and eating/chewing sounds very loud
2) Have been diagnosed with Hyperacusis syndrome (this is confirmed)
2) Tinnitus
3) Certain sounds and touching my ear and face will make my eardrums flutter
4) Full feeling in ears
5) Eyes flicker, but occasionally only, at night time mainly, I notice this
maybe once every few weeks. When it does flicker, I can notice and feel
the eye balls flickering on bothsides.
6) Clicking/Popping but only when I swallow and yawn.

I don't have no inner ear problems because tests show inner ear pressures are normal, so no fluid leaks in the inner ear, no meneries disease, or any other inner ear problem.

I think I should for defs have the possibility of middle ear myoclonus checked out, because Patulous Eustachian Tube patients don't have my number 3) symptoms, I think the eardrum fluttering is for defs some kind of dysfunction of the tensor tympani or stapedial muscle???

Or it could be PET and Middle Ear Myo? Is this possible?

John

Last edited by JohnUK; 02-24-2008 at 12:41 PM.

 
Old 02-24-2008, 06:14 PM   #4
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Re: Eardrum fluttering when touch side of face....could it be middle ear myoclonus?

Quote:
Originally Posted by JohnUK View Post
Hi Lib,

While I am waiting to see a super ENT specialist, I am trying to put a list of questions and things I would like to get tested for, just so I don't miss anything during my consultation.

My symtoms;-

1) I hear my voice and eating/chewing sounds very loud
2) Have been diagnosed with Hyperacusis syndrome (this is confirmed)
2) Tinnitus
3) Certain sounds and touching my ear and face will make my eardrums flutter
4) Full feeling in ears
5) Eyes flicker, but occasionally only, at night time mainly, I notice this
maybe once every few weeks. When it does flicker, I can notice and feel
the eye balls flickering on bothsides.
6) Clicking/Popping but only when I swallow and yawn.

I don't have no inner ear problems because tests show inner ear pressures are normal, so no fluid leaks in the inner ear, no meneries disease, or any other inner ear problem.

I think I should for defs have the possibility of middle ear myoclonus checked out, because Patulous Eustachian Tube patients don't have my number 3) symptoms, I think the eardrum fluttering is for defs some kind of dysfunction of the tensor tympani or stapedial muscle???

Or it could be PET and Middle Ear Myo? Is this possible?

John
anything is possible, but i doubt you have 2 very rare disorders, just as i doubt i do. i believe it is all related to 1 disorder. look up dr timothy hain, he describes a palatal eye type of myoclonus, sounds like myo to me. hyperacusis is a sever intolerance to sound. myo causes a sensitivity that can be sever but not to all sound. i am not convinced you have true hyperacusis, i believe you very well have myo.

 
Old 02-24-2008, 07:24 PM   #5
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Re: Eardrum fluttering when touch side of face....could it be middle ear myoclonus?

Excuse me for butting in but how do you know this?


"I don't have no inner ear problems because tests show inner ear pressures are normal, so no fluid leaks in the inner ear, no meneries disease, or any other inner ear problem."

From my experience, these things are not simple to determine. I have heard good things about Hain in places similar to this.

 
Old 02-25-2008, 05:52 AM   #6
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Re: Eardrum fluttering when touch side of face....could it be middle ear myoclonus?

Quote:
Originally Posted by lib View Post
anything is possible, but i doubt you have 2 very rare disorders, just as i doubt i do. i believe it is all related to 1 disorder. look up dr timothy hain, he describes a palatal eye type of myoclonus, sounds like myo to me. hyperacusis is a sever intolerance to sound. myo causes a sensitivity that can be sever but not to all sound. i am not convinced you have true hyperacusis, i believe you very well have myo.

ENT doc I saw, diagnosed me with mild hyperacusis, I don't have a severe intolerance to everyday sounds, just certain sounds like a baby crying, a blender in the kitchen, that sort of thing.

I can't believe there are no tests to check for myo! Can a specialist look at the movement of the eardrum with breathing, swallowing, yawning and diagnose myo this way?

What kind of tests did you have to confirm your myo?

I am begining to really think, myo maybe the problem I have!

 
Old 02-25-2008, 05:57 AM   #7
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Re: Eardrum fluttering when touch side of face....could it be middle ear myoclonus?

Quote:
Originally Posted by myrtle59 View Post
Excuse me for butting in but how do you know this?


"I don't have no inner ear problems because tests show inner ear pressures are normal, so no fluid leaks in the inner ear, no meneries disease, or any other inner ear problem."

From my experience, these things are not simple to determine. I have heard good things about Hain in places similar to this.

You are most welcome to "butt in", any advice I am grateful for.

I have seen a ENT doc already, he a good doc, this was my first ENT consultation, we did many tests, and I am sure the doc knows what he is talking about, I am sure there is no inner ear problems because I don't really have any balance or dizzy problems.

This doc was baffled when I told him my symptoms because docs don't see these symptoms routingly. That is why he has referred me to a super specialist.

 
Old 02-25-2008, 07:04 AM   #8
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Re: Eardrum fluttering when touch side of face....could it be middle ear myoclonus?

Quote:
Originally Posted by JohnUK View Post
You are most welcome to "butt in", any advice I am grateful for.

I have seen a ENT doc already, he a good doc, this was my first ENT consultation, we did many tests, and I am sure the doc knows what he is talking about, I am sure there is no inner ear problems because I don't really have any balance or dizzy problems.

This doc was baffled when I told him my symptoms because docs don't see these symptoms routingly. That is why he has referred me to a super specialist.
I have no balance problems either but I am diagnosed with 'cochlar hydrops' a form of Menieres relating to inner ear problem. I do have the low freq hearing loss that you don't and that is a big part of the dx.
I also have basically unexplained autophony which they call PET for lack of any other explanation. I will be eager to hear what you find out. Who knows, it might explain my problem too.

 
Old 02-25-2008, 09:34 AM   #9
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Re: Eardrum fluttering when touch side of face....could it be middle ear myoclonus?

Quote:
Originally Posted by JohnUK View Post
ENT doc I saw, diagnosed me with mild hyperacusis, I don't have a severe intolerance to everyday sounds, just certain sounds like a baby crying, a blender in the kitchen, that sort of thing.

I can't believe there are no tests to check for myo! Can a specialist look at the movement of the eardrum with breathing, swallowing, yawning and diagnose myo this way?

What kind of tests did you have to confirm your myo?

I am begining to really think, myo maybe the problem I have!
mine was diagnose by 2 drs, they could see the eardrum move, thats not with everyone though. and by my descripton of symptoms.
sounds like myo to me.

 
Old 02-27-2008, 07:27 AM   #10
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Re: Eardrum fluttering when touch side of face....could it be middle ear myoclonus?

Quote:
Originally Posted by lib View Post
anything is possible, but i doubt you have 2 very rare disorders, just as i doubt i do. i believe it is all related to 1 disorder. look up dr timothy hain, he describes a palatal eye type of myoclonus, sounds like myo to me. hyperacusis is a sever intolerance to sound. myo causes a sensitivity that can be sever but not to all sound. i am not convinced you have true hyperacusis, i believe you very well have myo.
Hi Lib,

After you had those tendons cut, how long did it take to recover? -meaning when did things settle down for you, weeks, months.
When did the doc remove the packing from your ear canal?

John

 
Old 02-27-2008, 06:47 PM   #11
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Re: Eardrum fluttering when touch side of face....could it be middle ear myoclonus?

Quote:
Originally Posted by JohnUK View Post
Hi Lib,

After you had those tendons cut, how long did it take to recover? -meaning when did things settle down for you, weeks, months.
When did the doc remove the packing from your ear canal?

John
its been so long....it took a few weeks, and the packing was removed at 10 or 14 days.....

 
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