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Old 04-20-2009, 05:42 AM   #1
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paul2009 HB User
Tinnitus - now my head hurts when I speak

Hi

I am sorry for the long post but am trying to put in all important information and really hoping someone can help me. This is the first time I have posted about this.

I'm a 26 year old male. I've been lucky to have never had serious health problems until this year. In January I was rehearsing with a band one evening, at not particularly loud levels (there was only two of us, he on drums and myself guitar and singing), but for the next two weeks my hearing was 'muddy'. I could not hear clearly. After the two weeks both of my ears 'popped' as if I had been flying, and I could hear clearly in both ears again. About this time, however, I developed a loud, low buzz in my right ear. This was two weeks after the loud music.

The noise has never gone away. It varies between low roar or wind, like being on a plane or in a car, to a low tone and sometimes a sound like a lawnmower in the distance, nasal.

After about two months I went to an ENT. He said it sounded like a virus. I have had an MRI done and will discuss the result with him in two weeks. As far as I know it did not show up anything unusual.

So I have tinnitus. Both my GP and the ENT have told me that that there is little that can be done unforunately. But I have another very annoying accompanying problem which developed over the last two months, which is he main reason for me posting. I cannot seem to find others suffering from this problem in google searches and am hoping that someone out there can give me some information.

When I speak, my head hurts. Some days it is worse than others, but basically my voice, when I move my vocal chords, gives me sharp pains in my head. Every word hits me like a hangover. As a result of this I have become very reclusive and I only speak when I need to. I am anxious about meeting people, friend etc. as I never know if I am going to be able to have a conversation or if the pain will come and make speech impossible. Every day life has become an ordeal. Music has gone out the window, there is no way I can sing. Speech is difficult enough. It feels like my brain is resonating whenever I speak.

Over the last couple of months I did have headaches in general for a lot of the time, and fatigue. Both of these have eased a good bit lately but my speech difficulty remains.

Has anyone experienced this? It's driving me absolutely nuts.



Many thanks

 
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Old 04-20-2009, 11:15 AM   #2
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kitchener12 HB User
Re: Tinnitus - now my head hurts when I speak

Hi there
I have had tinitus in the past but no pain, not sure what that could be? You need to see a Neuro-Otologist an ear and brain specialist.
If you have no luck in Ireland I would try England or even North America.
You wll probably find someone one these boards who can help/
Best of luck

 
Old 04-21-2009, 03:33 AM   #3
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Re: Tinnitus - now my head hurts when I speak

Thanks Kitchener

I'm going back to see my ENT in a couple of weeks - so I'll see if he can get refer me to someone. I hate the referrals system here. It seems so slow and daunting. I wish things were more like on Scrubs!


;-)

 
Old 11-18-2010, 10:50 AM   #4
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hazima HB User
Re: Tinnitus - now my head hurts when I speak

I have the same problem. I can't speak for a minute with anyone specially loudly. did you find and thing to help your problem.?

 
Old 11-19-2010, 10:52 PM   #5
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diet helps HB User
Re: Tinnitus - now my head hurts when I speak

Hi,

Yes, I've experienced this. I think it's a type of hyperacusis. Hyperacusis is when everyday sounds are heard as being too loud. I suffered from this for around 5 years until it gradually resolved. During this time, talking was very painful, as my voice reverberrated inside my head. Like you, I avoided talking where possible. Specialists couldn't help. I solved the problem myself as follows:

I decided that my brain had hard wired itself to thinking of sound as being a threat to my hearing. So I began to re-train my brain to think differently. I did this by gradually hardening my ears to the painful sounds - including my own voice - by bearing up to them. Instead of blocking out or avoiding the painful sounds, I faced up to them little by little. I did this very gradually over a very long period of time (several years). I avoided all loud sounds, as these wouldn't have helped in convincing my brain that they are harmless. I then faced up to all normal sounds that I knew couldn't damage my hearing. Washing dishes was painful, but now no longer bothers me at all. Hammering nails used to be piercing to my ears; no problem now. Talking was painful; but now I'm back to normal.

I would suggest to anyone experiencing your problem or hyperacusis in general to do as I did. I suggested this to a work colleague (he's a drummer in a band). He tried it and is also improving rapidly. It's all a matter of hard wiring the brain to think as it used to. Your brain is reacting to that music session. It was obviously too loud. Your brain is trying to protect you from further damage. But it is only a brain; it isn't intelligent. Your mind is intelligent, and your mind is telling you that something is wrong. Your brain is a machine; it doesn't know it is hurting you. You need to use your mind to get your brain to function in the way it used to.

Good luck with this, as I'm sure you will find healing.

 
Old 11-19-2010, 11:37 PM   #6
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Re: Tinnitus - now my head hurts when I speak

Thank you so much for offering the help needed. I am experiencing speaking problem. My hearing is fine except that I was annoyed of sounds a few times only during four months. What I am suffering from is that when I speak I feel sharp pain in my head. The louder I speak, the more is the pain. And the pain occur when I only speak.

This last week My ears start bothering me for a few noisy sounds.
Anyone experiencing the same problem please help me.

More description if I do any work or fast walking. I feel the pain in my back, the back of my neck and in the lower part of my head.

 
Old 11-20-2010, 03:13 AM   #7
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Re: Tinnitus - now my head hurts when I speak

First of all, diet-helps advice is pretty good, thanks for the reply.

Hazima: the first thing I would say, is try not to worry about it. I think that my problems all started because I began to get very anxious and worried, and the more worried I got about my symptoms, the worse they became. But it is easy to say don't be worried.

I am doing much better now, than when I posted. I eventually went to see a dentist who specialized in facial pain (it took me a few appointments to various doctors and dentists before I was finally passed to him). He immediately told me that what I was experiencing was real, he sees it a lot, and that it is not permanent. Just hearing that was an enormous help. He told me that these pains are often caused by tension that comes from anxietyl; I had gone through a very stressful period so that stress manifested itself in pains in my face and ears, as my muscles constantly tensed in that area.

I was prescribed medication, amitriptyline, which I think helped, although I would also say medication is NOT NECESSARY to get over these kinds of problems.

A long period of careful attempts to RELAX, and get rid of mental anxiety is what has helped me the most. A very good book called 'Release From Nervous tension' by D.H. Fink helped me. It was written over 50 years ago, but it is still relevant. He basically discusses how nervousness can create physical symptoms that can be very very distressing. His solution is a system of relaxation. If you can't get this book, many other s exist that offer ways of relaxing the body.

For me my pain, popping ears and other problems have gradually receded over the last number of months and i hope that in time they will be fully cleared up. Also giving up coffee was helpful. I would stress though that you should try NOT to think about having to give things up. Don't avoid being in loud places, speaking, doing the dishes etc, don't give your mind encouragement that sound is bad for you. It is not. It is a trick of the mind. I have only recently started to do the things I used to, like going out to places with loud music, because for a long time I had convinced myself that they would hurt me. They will not.

The above advice is what I would give to someone that was suffering from my problems. They may not work for you in the same way as they did for me, but I would be quite confident that at the very least relaxation will be of enormous benefit to your health, and if your problems are caused by muscle tension and mental anxiety then they WILL solve them. Anxiety and muscle tension effect many many people, without them realizing it.

I am sorry for my long post. I hope it can help, and if you want to ask me anything please get back to me. Good luck, be well!

 
Old 11-20-2010, 01:27 PM   #8
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Re: Tinnitus - now my head hurts when I speak

Thank you so much Paul. Thank you so much (diet-helps) I really don't know how to express my thanks to you and I am happy for you that you cured yourself by your determination. I hope I can do the same. I will give you more descriptions.

My problem started when I first had a low plat led count 4 months ago in my blood to less than 1000. My hematology doctor gave me high doses of prednisolon. From 14 tablets a day decreasing it 7,6,4,3,2 into 1 tablet over a period of 2 months. my blood count is normal now but I don't know whether what I am experiencing is a side effect of the medicine or not coz it's a very strong medicine though my hematology told me that prednisolon effects should be gone by now. but the pain in my head is the same one I have had when I was taking the medicine. the pain did stopped for one week only after I stopped using the prednisolon. Now it's back again
My ENT a few days ago told me that I have tight muscles in my neck in the back. My ears doesn't bother me unless after I speak to someone for long time from the pain in my head but I don't care about them now. What's bothering me now is speaking. Every single word hits me in my head. I don't speak unless it's very necessary or to my doctors. A neurologist told me that he never heard of my symptoms. and gave me amitriptyline and yes I think it helps me also like you. He told me also to relax and it will go in a few days but it's been more than 50 days till now.
As you said I am a little stressed and I sometimes strain my body coz I feel very weak without realizing that I am straining my body. I do that especially after and while walking or while doing efforts. Tomorrow I am going to see another neurologist and ask him for more amitriptyline if he suggested that.
Thank you for your advice I will try to be calm and relax my body as much as I can. I really wasn't aware of my self stressing my muscles and straining my body.

 
Old 11-20-2010, 01:33 PM   #9
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Re: Tinnitus - now my head hurts when I speak

. .

Last edited by hazima; 11-20-2010 at 01:39 PM. Reason: duplicated

 
Old 12-21-2010, 04:10 PM   #10
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Alon36 HB User
Re: Tinnitus - now my head hurts when I speak

I have a very similar problem. When I speak my head fills with a weird noise and I cannot hear my own voice. I don't know how people are perceiving my voice , it also hurts my head. Please can someone shed some light on this. I am recovering from guillain barre syndrome but I'm convinced it started when I got a lot of water in my ears not long after the GBS. PLS GIVE SOME ANSWERS SOMEONE

 
Old 05-05-2011, 05:48 AM   #11
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Re: Tinnitus - now my head hurts when I speak

Hi Hazima

I wanted to check and see how you were doing. Are you feeling any better?


Paul

Quote:
Originally Posted by hazima View Post
Thank you so much for offering the help needed. I am experiencing speaking problem. My hearing is fine except that I was annoyed of sounds a few times only during four months. What I am suffering from is that when I speak I feel sharp pain in my head. The louder I speak, the more is the pain. And the pain occur when I only speak.

This last week My ears start bothering me for a few noisy sounds.
Anyone experiencing the same problem please help me.

More description if I do any work or fast walking. I feel the pain in my back, the back of my neck and in the lower part of my head.

 
Old 08-26-2011, 12:49 PM   #12
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Re: Tinnitus - now my head hurts when I speak

hi Paul
I am sorry for my late reply, I was doing fine for a couple of months and now the problem came back like before having sharp pain when speaking.
I saw a headach and pain consultant and he said it's an infections and muscle tension and gave me some medications like muscle relaxant but that didn't help

i want to ask you what increases the headache, and does could effect badly on it. and is there anything you could advise me about, and if it's something practical would be better. I really need help.

 
Old 08-30-2011, 03:06 AM   #13
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Re: Tinnitus - now my head hurts when I speak

Quote:
Originally Posted by hazima View Post
hi Paul
I am sorry for my late reply, I was doing fine for a couple of months and now the problem came back like before having sharp pain when speaking.
I saw a headach and pain consultant and he said it's an infections and muscle tension and gave me some medications like muscle relaxant but that didn't help

i want to ask you what increases the headache, and does could effect badly on it. and is there anything you could advise me about, and if it's something practical would be better. I really need help.
Hi Hazima

I'm sorry to hear you are still having the same problem.

For me, I am nearly completely over mine, but I still get relapses like what you are describing from time to time. But they are much less frequent. As for what triggers them, it's hard to say. Stress/bad posture maybe. But I think if you give it enough time, eventually it will go away for good.

I think a positive attitude is very important. Try to smile every day and be upbeat.

But I would like to give you more practical advice, so here are some things that you might like to try. Some of these things may help a lot.

Get your dentist to make you a night guard. Once I started wearing one regularly at night, I noticed an instant improvement. My dentist noticed that my jaw muscles were 'very defined', meaning that I was clenching during the night. This tires the muscles and makes them less able to cope with the normal stresses that we all go through each day.

Take Magnesium supplement. This helped me a lot. Magnesium is needed my muscles and is important for correct contraction and strength. It would be better to get it all from your diet, but I found my normal diet did not include very much magnesium. Within days of taking it I felt a huge amount better, but calmer and stronger feeling muscles in the trouble area.

I suggest trying these two things first, and see if they help.

Please let me know how you get on.


It gets easier, I promise!

 
Old 09-07-2011, 07:51 AM   #14
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Re: Tinnitus - now my head hurts when I speak

First of all, thanks for replaying me, I really apreciate it.
About clenching teaths when sleeping, I don't do this when sleeping but my jaws hears all the time. Maybe I do clench unconsciously. I will ask about a night gaurd, I just didn't know that there is something like a night gaurd exist. I will ask a dentist right away.

I also found that vitamine D isn't enough in my body so my doctor prescribed me some. He said it's kind of important cause it works as a muscle relaxant.

And I am going to have lots of magnesium, I hope it will work for me as it does for you.

I really wish this problem won't come back to you again. it's really an obstacle to contact people, study and everything. I stopped my study for a year because of this rare problem. Thanks again for your time.

Last edited by hb-mod; 04-09-2012 at 01:42 AM.

 
Old 09-07-2011, 08:07 AM   #15
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Re: Tinnitus - now my head hurts when I speak

Oh, and in the previous message I meant cold, I didn't notice that I wrote it "could" cause I am now in my hometown and it's kind of cold here. I told you that I was fine for a couple of months, that was when I was abroad in a hot weather city though pain still desturp frequently there.
But for sure stress effect badly, in the same time my blood prussure is a litte high these days. I hope I could go through this.

 
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