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Old 04-04-2012, 12:31 PM   #31
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Re: 2nd ear stapedectomy for otosclerosis

@Nickle1

Thanks for the suggestion -- I will definitely ask my surgeon to check his notes regarding the nerve in my left middle ear.

 
Old 04-04-2012, 12:37 PM   #32
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Re: 2nd ear stapedectomy for otosclerosis

BTW, I wanted to let all the stapedectomy people know that there are "shower caps" for ears, which are used in beauty salons for hair coloring. They look just like mini versions of the elasticized shower caps you see in hotels. They are called "Colortrak Tools Ear Protector Caps"
You put them over the vaseline-covered cotton ball to get an extra layer of protection in the shower.

 
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Old 04-04-2012, 12:42 PM   #33
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Re: 2nd ear stapedectomy for otosclerosis

Hi Cindy, Nickle and Fantine

Cindy - so sorry to hear about your husband but it is good that he is responding well to treatment. I used to work in a hospital with MRI scanners and it is amazing what they can do these days. More and more people are living longer after being diagnosed with all sorts of stuff. I remember reading about the operations they do on children born with half a heart, for instance, so they have the chance of a reasonable life.

Nickle - Congratulations that your hearing is good after having the packing removed. My surgeon removed the gauze after the second week but said that I should not get any water in my ear for another two weeks, it is strange that you can do this after 1 week. It is good that you asked your surgeon all those questions too. I never thought about the potential risk of pressure changes when going on fair ground rides but I am not a big fan of those rides anyway as I suffer slightly from motion sickness. The one thing I asked my surgeon was if the prosthesis would be OK in an MRI scanner, which it is, in case I get a job working with them again.

Fantine - have you found out any more information or seen photos of your operation so you can tell if the nerve was stretched or not?

Well, my kids are off school now until Tuesday, so I am not going into work until then. Apparently, in Switzerland, you leave baskets in your letter box on Saturday night and the Easter Bunny fills them with goodies before Sunday morning. It sounds a lot easier than an egg hunt. I still think that my hearing has got slightly better in my operated ear so I will try to find time to do the one online hearing test which I have previously got fairly bad results on again, to see if my results have got any better. I need to find sometime that is quiet to do it though, which will be difficult with 3 kids around.

Clare

 
Old 04-04-2012, 12:44 PM   #34
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Re: 2nd ear stapedectomy for otosclerosis

Hi Fantine

Sorry, we must have been writing our posts at about the same time. Good luck with finding out the information!

Clare

 
Old 04-04-2012, 01:38 PM   #35
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Re: 2nd ear stapedectomy for otosclerosis

Hi Cindy
You are amazing. You are such a positive person in light of all the problems you and your family have gone through recently. Not only have you had all the complications of your stapedectomy but you have also had to stay strong for your husband who is obviously enduring a lot. Anyone reading this post should consider Cindy's responses carefully and put their own problems into perspective.
Thankyou Cindy for being so inspirational and for being there for everyone else. I am thinking of you. Keep those positive thoughts going. I am sure you will make it through all of this. Best wishes to your husband!
Nickle

 
Old 04-04-2012, 01:52 PM   #36
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Re: 2nd ear stapedectomy for otosclerosis

Hi Clare
Sounds like you are in for an exciting Easter. If I were you I would not do that online hearing test. Wait for the real one - you may only worry otherwise and it may not be that accurate due to various reasons eg. Background noise etc. I will wait for my hearing test in 8 weeks.
Enjoy the time with the kids - those younger years are so exciting and go so quickly (my boys are now 10 and 13). By the way my boys love the Easter Egg hunt. I think we will still be doing that when they are 20!
Sounds like your hearing is going in the right direction!
Happy Easter to you all and fingers crossed the Bunny drops us clearer hearing!
Nickle

 
Old 04-04-2012, 04:46 PM   #37
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Re: 2nd ear stapedectomy for otosclerosis

@Clare

I have to make an appointment to see my surgeon. There's usually some weeks' wait to see him, unfortunately.

 
Old 04-04-2012, 07:11 PM   #38
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Re: 2nd ear stapedectomy for otosclerosis

Thank you everyone....

 
Old 04-09-2012, 11:54 AM   #39
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Re: 2nd ear stapedectomy for otosclerosis

Hello Cindy Nickle and Fantine

I hope you all had a happy Easter. My kids had so much chocolate that they gave some to me so I am now also feeling slightly sick.

Cindy - how is your husband? I hope he is still responding well to treatment and that you had a nice Easter despite it all.

Nickle - how is your hearing? Mine has definitely improved over the last few weeks and I am now getting results from online hearing tests which show my left ear (operated ear) is as good as my right ear. I can hear less of a difference when I cover one ear and then the other as well.

Fantine - are you any closer to making a decision about your operation? I am very lucky at the moment in having one ear which is not so badly affected by otosclerosis but, if it gets worse, I think I will go for a second operation.

Clare

 
Old 04-09-2012, 02:57 PM   #40
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Re: 2nd ear stapedectomy for otosclerosis

Hello everyone

Just did one of those online hearing tests. The TV was on in the background so the results are probably not that accurate. I had the volume on the computer turned up to maximum and a pair of headphones on. If you can make this out, here are the results (sorry that the titles aren't lined up with the columns). As you can see, my left (operated) ear tested as slightly worse than my right for several frequencies but that the results are more or less the same for both ears. I am fairly pleased with this.

Clare

Left Ear Right Ear
Frequency [Hz] Your SPL [dB] Ideal SPL [dB] Loss [dB] Frequency [Hz] Your SPL [dB] Ideal SPL [dB] Loss [dB]
125 10 25 -15 125 10 25 -15
250 10 11.7 -1.7 250 10 11.7 -1.7
500 10 3.5 6.5 500 10 3.5 6.5
750 15 1.5 13.5 750 0 1.5 -1.5
1000 10 0 10 1000 15 0 15
1500 15 0 15 1500 0 0 0
2000 10 0 10 2000 10 0 10
3000 5 0 5 3000 5 0 5
4000 5 0 5 4000 0 0 0
6000 10 0 10 6000 10 0 10
8000 10 5 5 8000 10 5 5

 
Old 04-10-2012, 04:09 AM   #41
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Re: 2nd ear stapedectomy for otosclerosis

Hello Clare,,Nickle,,and Fantine...

I hope that everyone had a wonderful Easter....

This Easter was absolutely wonderful for our family...first my husband was able to enjoy all the delicious food my brother in law cooked because his chemo was pushed off for one week due to his infection and in the hospital for 10 days...so my goodness did he eat..and also...our newest addition was there with us...My niece had a beautiful baby girl (my god daughter) 3 weeks ago...oh what a beauty she is too.

My husband went to the dr. yesterday for round 3 of chemo..She told him that his blood counts are best she has ever seen even counting the first day she met him...AMAZING!! Also had a gain in weight from the 4 weeks ago weigh in..WOO HOO everything that was swollen is completely gone..including his spleen..can t feel anything at all... so this news is for celebrating thats for sure.. He was gone for about 13 hrs yesterday between lab,,dr appointment and also chemo.. poor guy...I put him to bed and he is still there sleeping...He is amazing...no complaints at all except alittle upset stomache.

How is everyones recovery coming along...clare is your testing getting closer..I was past excited for my hearing test..like a little kid on christmas eve LOL... Nickle..how are things coming along with you also... I can assure you that things do get even better as time goes on...I am finding this now myself also...it is has been 2 months... Fantine how are you doing? I hope your Easter was wonderful

Last edited by billcindy1; 04-10-2012 at 04:10 AM.

 
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Old 04-10-2012, 04:26 AM   #42
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Re: 2nd ear stapedectomy for otosclerosis

Hi Cindy

So glad that things are going well for your husband and that you had a nice Easter. I think you are managing amazingly well with such a difficult situation. Thanks again for your comments and continued support even though you have so many other things to worry about. You are a star!

Yes I am fairly excited about my hearing test but I have done so many online tests that I think I know what the outcome will be - very nearly the same results as with my unoperated ear. This is a fantastic outcome, however, considering I had more than 30% hearing loss (can't remember the exact number, 30-something) in that ear beforehand and my other ear is within the normal range. I might be surprised though, online tests aren't that accurate.

Clare

 
Old 04-10-2012, 06:17 AM   #43
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Re: 2nd ear stapedectomy for otosclerosis

Hi Clare, Cindy, Fantine

Great hearing results Clare and fantastic results for your husband Cindy....so glad everyone is doing so well!!
I returned to work today - 2 weeks post operation. On the weekend I went to see Annie - I could clearly hear everything and at one stage I had to put cotton wool in my ear to stifle the cheers from the cast parents who were sitting in the row behind me.
I have got my ear wet twice now - the specialist told me it was ok to get it wet 1 week post operation - and so far so good although I am trying not to go overboard with the amount of water entering the ear canal. I have no sign of infection and I can still hear!
I have not tried to venture on to web hearing tests. Maybe I should - but so far I have been patient and I am looking forward to the official test in about 6 weeks. How do I search for this? I know you can't post the link but any hints??
Anyone know when you can lay on the operated ear? I have been trying to avoid it but not sure if I need to.
I had a scare tonight - I could not find my 16 year old dog (Maltese) and noticed the pool gate had blown open in the wind. I found him in the pool (thankfully he made it to the pool step although he was standing covered in very cold water). It took me over 20min to stop the poor thing shaking. If only I 'heard' the splash! It shows you how quickly and silently kids and animals can drown in pools.

I look forward to 'hearing' further good results from you all - lol

Nickle

 
Old 04-10-2012, 06:25 AM   #44
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Re: 2nd ear stapedectomy for otosclerosis

Quote:
Fantine - are you any closer to making a decision about your operation? I am very lucky at the moment in having one ear which is not so badly affected by otosclerosis but, if it gets worse, I think I will go for a second operation.

Clare
Thanks for asking Clare. I really don't expect to make a decision anytime soon. I need to talk to several doctors first, including my surgeon.
--Fantine

 
Old 04-10-2012, 12:57 PM   #45
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Re: 2nd ear stapedectomy for otosclerosis

Dear Nickle, Cindy and Fantine

Regarding hearing tests on the web, there are a lot of them. Most of them test your ability to understand speech in background noise and will just tell you whether your hearing is probably in the normal range or not. Try searching for "hearing test online". Most of these tests are either by hearing aid manufacturers or by organisations for hard of hearing people. There are several ones which give slightly more interesting results, drawing graphs to show where your hearing probably is on the scale from fantastic to almost deaf.

More sophisticated ones can be found by searching for "audiometer online" or "audiometer ********" or "hearing test products". Some of them can be used online and others can be downloaded and installed on your computer. Some of the downloadable ones suggest you should calibrate them by asking a young person with good hearing to do the test. However, you can compare results for both ears even though the overall level of the results might be wrong.

Hope this helps.

Clare

 
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