AnAnglesMother

Thank you Abby,

It is a hard struggle at times to watch her suffer with her condition. She is a bright and beautiful little girl. Life has surely changed for her and our family. Waiting is the hardest part. We pray that the doctors hurry and make up their minds before something happens to the muscle itself, or worse yet, her other organs for lack of oxygen.

Life couldn't have been more normal before all this happened. But, now all the kids worry and have anxieties that this will happen to them too. And they worry that their little sister won't be around someday. It's sad and scary, but we are strong. Sronger then we would like to be at times. It is hard on the others to be able to do things she no longer can do. Like an amusement park, she is very limited on what she can ride or how long she can stand to be there. She fights with all her might to keep up with everyone and denies constantly that she is tired and weak. Mommy knows better, and I let her believe that she fools me too. We just want her to be happy and healthy again.


She sleeps most of the time now. And doesn't have much energy at all. The episodes are becoming more severe and it takes longer to recover from. I try to keep my faith in the doctor, but at times it's tough to do seeing her the way I do on a daily basis. They don't see the deterioration in her lifestyle like we do. To them she is just another heart case, another number.

I appreciate the prayers we can get. There is never too many of those. Without God on our side, life would be impossable. Again "Thank You" from the bottom of my heart and I pray that your little one will always be happy and healthy.

Gratefully Yours,

AnAnglesMother