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Old 11-26-2004, 03:30 PM   #1
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I'm New Here

I am 23 years old with advanced cardiovascular syncope. I have had hypertention and fainting spells since age 6 and have now learned that I am in the early stages of cardiac desease. I am losing circulation in my right arm and leg, along with short term memory loss and a list of other generic symptoms that would take all day to type out.

My family is cursed with cardiac desease and I am curious if this is the cause for it, I am the youngest to have been diagnosed, but I have two brothers both over age 40 who have CD but have never fainted in their life.

3 Months ago I couldn't stand or sit more then 10 minutes without fainting, and now I am losing circulation in my legs after taking Topral XL and Zestril for the faining.

Durring my childhood I repeatedly complained to doctors about migranes, fainting, concentration problems, nausea, fatique, depression, nose bleeds, and more... After hearing " there is nothing wrong with you" for almost 20 years I finially hear that I have an incurable desease that could have been treated from the start

Can we say Quack?

Anyway enough rambaling, just needed to get it all off my chest.

 
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Old 11-26-2004, 04:38 PM   #2
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Re: I'm New Here

Quote:
Originally Posted by john23
I am 23 years old with advanced cardiovascular syncope. I have had hypertention and fainting spells since age 6 and have now learned that I am in the early stages of cardiac desease. I am losing circulation in my right arm and leg, along with short term memory loss and a list of other generic symptoms that would take all day to type out.
Hi John.

I've been fighting advanced heart disease for decades, including high blood pressure, CHF, heart rhythm problems, afib and also asthma.

As bad and complex as this sounds, I am doing much better than the doctors expected, and have a good quality of life. My blood pressure is the best it has ever been, but if I make one mistake and come into contact with the wrong thing, my blood pressure will soar for a few days until it calms down again.

I am wondering if you've had similar experiences with your heart disease? Do you know of certain foods or drinks that make your condition worse?

Regards, and best of luck and health to you.

Last edited by Machaon; 05-13-2008 at 12:43 PM.

 
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Old 11-26-2004, 04:46 PM   #3
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Re: I'm New Here

Quote:
Originally Posted by john23
Durring my childhood I repeatedly complained to doctors about migranes, fainting, concentration problems, nausea, fatique, depression, nose bleeds, and more... After hearing " there is nothing wrong with you" for almost 20 years I finially hear that I have an incurable desease that could have been treated from the start

Can we say Quack?
Hi John, welcome . Sorry to hear about your heart problems. You are quite young to have troubles that serious - but it happens and you aren't alone. It sounds like genetics might play a big part in your family with the history of heart-related problems.

As for the doctors... too bad we didn't know each other, we'd probably both have been better off. My doctors thought I was *supposed* to have something to complain about, and couldn't understand when I didn't - or when I lived well beyond age twelve (I'm now 24) which they didn't think was possible. I'm glad they were wrong, in my case .

But can we say quacks? Yup, yours and mine both. To the duck pond with them!
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Last edited by Kitten1980; 11-26-2004 at 04:47 PM.

 
Old 11-26-2004, 05:39 PM   #4
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Re: I'm New Here

Hello John & Kitten1980, Have you been given a label (diagnosis) by a cardiologist ?
You both have symptoms that may involve cardiac function, but are not necessarily caused by heart disease. I have a genetically based heart disease, which did not become apparent until I was over 50 years of age, so sometimes it is a bit tricky to precisely diagnose certain conditions. Hope to hear more from you both soon.Good Luck, Excelsoir

 
Old 11-26-2004, 07:11 PM   #5
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Re: I'm New Here

I was diagnosed with syncope caused from abnormal heart rythms, my heart rate would go from 66 to 215 and down to 43 in a matter of seconds... after we got the fainting under control we did some more testing and I was told I was in the early stages of " cardiovascular desease" which one I can't you thats what the doc told me. I am asumming it is caused from damage to my heart from the 20 years of hypertensive syncope. I did however find out that most people with my condition become diabetic within the first year, but I have yet to find out if I am or not. Appearantly its a condition where the circulation to muscles and organs depreciate over time , something to do with wear and tear on the viens. I do know that its a condition most 60+ have but very few my age.... starts pouting ...... anyway hope to squeeze more info from my cardi next time i see him.

P.S. anyone else have a reveal implant ? its a computer chip they stick in your chest to drive you nuts - I mean to record anirythims (sp?) mine itchis more then poison ivy

Last edited by john23; 11-26-2004 at 08:36 PM.

 
Old 11-26-2004, 07:53 PM   #6
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Re: I'm New Here

I won't make a huge explanation and take John's thread off topic , but I had non-specific CHD and currently have a ASD that doesn't seem to be causing significant problems as of the last round of tests, just PVCs & PACs and a heart murmur. I can live with that LOL.

John, I would assume that the "cardiovascular disease" would be more related to the untreated hypertension than anything else. You should ask your dr. what exactly the problem is - so that you can become more educated on what you can be doing now to slow the progression of the disease and increase your overall health.

Are they planning to do a fasting blood-glucose test to determine if diabetes or pre-diabetic conditions are present?

It really sounds like you might want to consider finding another doctor and getting some second opinions from someone who talks instead of quacking. This is basic information that your dr. should be discussing with you.
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Old 11-27-2004, 08:54 AM   #7
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Re: I'm New Here

Dear John23,
Have you ever been checked for anything else other than heart.
I am no doc, but in reading these boards, your symptoms sound a lot like Antiphospholid syndrome(Hughes syndrome-sticky blood)
Look on the lupus board for more info.

 
Old 11-28-2004, 03:18 AM   #8
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Excelsoir HB User
Re: I'm New Here

Do you have an implanted defibrillator which paces and electrically converts (with a shock) a fast heart rhythm back to normal ? Have the doctors ever used the term "ventricular tachycardia" (V. T.) to describe your fast heart rhythm ? I am interested because I have this implant, and may be able to help you a little more if I could identify your situation. I am not medically qualified.
Good Luck,
Excelsoir

 
Old 11-28-2004, 04:25 AM   #9
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Re: I'm New Here

no never heard that term
I have heard them call it pulmary or something that sounds like that

right now they are more worried about the fact that my heart rate drops after acceralting

I have an implanted reveal, to record the heart rate in case I do have a stroke or accedent

Yes I have been checked for other things, and I have done research on my own. concidering how long the problem has had to progress, and the number of symptoms I have it all fits in with the diagnoses. I have even had an mri to determine if I had any damage to my brain from lack of oxygen.

a better explanation is my heart has muscel spasams basicly, the worst problem is its doing more fequently over time. I am on zestril , topral xl and lexapro to help with the effects but according to all the specialists I have seen there isn't any way to "cure" it , has to run its course but we can slow it down a little " modify" it so it isn't as painfull.

A pacemaker wouldn't help because I don't have an electrical problem, its in the muscle tissue itself. 20 years of haveing a hyperactive heart has litterly worn it out.

everyone in my family with health problems has the exact same heart condition, and now we know whats causing it.
Glad we finialy found it because I have a 2 year old daughter and a 2 month old son.

Last edited by john23; 11-28-2004 at 08:21 AM.

 
Old 11-28-2004, 12:56 PM   #10
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jpos HB User
Re: I'm New Here

HI,I am sorry to hear of your ordeal. You need to find out more specifics on your diagnosis.

I have had the Reveal in since last April. I don't have the same probs you do. I have neurocardiogenic syncope, inappropriate sinus tachycardia, mild valvular disease, and mild pulmonary hypertension.

I got the Reveal implanted, because it seems I may be having seizures, too, that are very similar to the syncope. I was diag. with epilepsy late 2001, but some drs. are back and forth as to what is the syncope and what are seizures. Fun.

One problem I have found with the Reveal is the automatic recording/saving of the arrhythmias is a problem, because the device loses telemetry too often. My last check they made me lay in different positions and adjusted the device in hopes that it won't lose telemetry so often.

 
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