It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Heart Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 12-01-2004, 01:17 AM   #1
Member
(female)
 
Join Date: Jun 2004
Location: Sydney, Australia
Posts: 50
aussie-angel HB User
Question Hole in the heart repair... questions

It was decided today between my Cardiologist and Neurologist to have the hole in my heart repaired. It was only discovered during many tests to find the reason for the stroke I had in April. Has anyone had this surgery and if so, how did it go? Could you get off the blood thinners? I see the surgeon (who will do the procedure) next week but am curious! Oh I have just turned 40.

 
Old 12-01-2004, 01:25 AM   #2
Senior Member
(female)
 
Join Date: Nov 2004
Location: Texas
Posts: 209
Kitten1980 HB User
Re: Hole in the heart repair... questions

What type of "hole"? I'm interested and a bit worried because I have ASD & my doctors have discussed the possibility of having surgery to close it, but since the latest round of tests a couple of weeks ago revealed that it isn't causing any real problems I decided that it isn't worth the risks of surgery to fix something I've lived with my whole life anyway. But you said yours was the cause of your stroke... What kind of stroke (hemmorage or bloodclot) if you don't mind my asking, and were/are there other conditions to consider or medications that you were/are taking now? Also what type of surgery are you looking at? Sorry to answer you question with more questions. Maybe someone who's been in this boat will give us more info.
__________________
"Now faith is the substance of things hoped for, the evidence of things unseen." ~ Hebrews 11:1 ~

 
Sponsors Lightbulb
   
Old 12-02-2004, 01:57 AM   #3
Member
(female)
 
Join Date: Jun 2004
Location: Sydney, Australia
Posts: 50
aussie-angel HB User
Re: Hole in the heart repair... questions

Hi Kitten,
It's called a Patent Foramen Ovale and is located between the top 2 chambers. I had a mild stroke in April and have right-sided weakness as a result. At the time, I couldn't move my right arm or leg and my speech was badly affected. I was in the US at the time visiting my fiance (I live in Australia) and the doctors think I might have developed a clot on the long flight which got to my brain 6 days later. The damage showed up on an MRI of the brain (apparently there is no scarring on the brain from a TIA of which I think I've had a few). I am on a blood thinner and Zocor (after it was discovered I had high cholesterol). They tested me for MS as well but everything pointed to this hole being the cause of my troubles. The Cardiologist I see is not able to do the surgery and has referred me to another doctor who I see next week. If you're interested I can let you know the details after I see him. Oh I was 39 when the stroke happened which is why they needed to find the reason why. I hope this answers your questions, Jayne.

 
Old 12-02-2004, 12:54 PM   #4
Senior Member
(female)
 
Join Date: Nov 2004
Location: Texas
Posts: 209
Kitten1980 HB User
Re: Hole in the heart repair... questions

Jayne, thanks for the information. I would be interested in what the doctor says next week if you don't mind sharing. For now you've given me something to think about and ask my doctor about, regarding the potential for clot formation. It seems that if that was an issue it would have been mentioned to me but, if I plan to take a long flight or something of that nature it might be something I needed to be aware of so that it could be prevented. Scary stuff. I'm 24 and don't like the idea of surgery to fix something that isn't causing problems and isn't likely to - but this is another aspect of risk that hadn't been brought to my attention before. *sigh* One more thing to weigh risk against benefit. Hope things work out for you okay, I will keep you in my thoughts & prayers.
__________________
"Now faith is the substance of things hoped for, the evidence of things unseen." ~ Hebrews 11:1 ~

 
Old 12-20-2004, 11:10 AM   #5
Newbie
(female)
 
Join Date: Dec 2004
Location: New York
Posts: 2
Branwell HB User
Re: Hole in the heart repair... questions

This response is for Kitten1980. Kitten, I have an ASD which was discovered when I was 30 years old and pregnant with my first child. I was told to have the repair after I gave birth so I could have more children. (I did have another child). Of course, the thought of open heart surgery was frightening but I felt that I had no choice. The fact that you are only 24 would help you in your recovery. I had the surgery 12 years ago and I think now some ASD's can be repaired without open heart surgery, but rather, with something similar to an angioplasty. You should check that out with your doctor. Anyway, I had the surgery, took about 6 weeks to physically heal, and a few months more to feel completely fine. I'm currently 43 and in the past few months I had an episode of atrial flutter. My heart was beating 250 beats per minute! The doctors couldn't understand why this happened to me and when I told them I had an ASD, they put two and two together. Once the physical hole from the ASD is repaired, the underlying congenital defect is still there, so there could be some effects in the future, like my atrial flutter. How was your hole discovered? My gynecologist heard a murmur and sent me to a cardiologist. I had the ASD my whole life and never knew it!

 
Old 12-20-2004, 11:20 AM   #6
Senior Member
(female)
 
Join Date: Nov 2004
Location: Texas
Posts: 209
Kitten1980 HB User
Re: Hole in the heart repair... questions

They knew I had it almost right after I was born. They didn't really know how to fix it in infants yet so it was a lot of watching and waiting. Then as I got older they realized that it might close at least partially on it's own as I grew and that is what happened. Everything is normal except for a small hole so they basically said it isn't critical to close it at this point, but it is an option and it might need to be done later if problems develop. But since my problems seem to have lessened rather than gotten worse through the years... I'm leaning towards the keep an eye on it and do nothing right now side of things.
__________________
"Now faith is the substance of things hoped for, the evidence of things unseen." ~ Hebrews 11:1 ~

 
Old 12-20-2004, 11:24 AM   #7
Newbie
(female)
 
Join Date: Dec 2004
Location: New York
Posts: 2
Branwell HB User
Re: Hole in the heart repair... questions

That's great that it is closing on its own. Then you probably don't have to worry about getting any surgery. Good luck to you!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Questions of a pregnant woman whose hole in the heart (PFO) was just found sampo2 Heart Disorders 0 02-08-2009 11:36 AM
Hole in the Heart Question?? hellokitty876 Heart Disorders 6 08-20-2008 12:28 PM
Atrial Septal Defect, hole in heart cfsrms Heart Disorders 2 07-28-2008 07:31 AM
Macular Hole Questions timtam Eye & Vision 10 10-27-2007 07:28 AM
Post-stent heart stress test questions rose827 Heart Disorders 19 07-10-2007 07:04 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



Machaon (74), Vyking (50), sjb (25), JJ (22), ladybud (18), started04 (15), Beefsteak (8), cvcman (8), rosier (6), Fizzickle (6)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (855), janewhite1 (823), Titchou (769), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (654), BlueSkies14 (610)



All times are GMT -7. The time now is 05:08 AM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!