Newly Diagnosed with MVP - Heart Disorders Message Board

NicoleMM · 03-29-2005, 04:39 PM

I found out on Friday that I have MVP. What the heck is MVP?

In February I made an appointment with my doctor because I thought that I was starting to have panick attacks. After explaining to the doctor the symptoms I had when I had my 2 "panic attacks", she reassured me that I was not having panic attacks, and that perhaps I was hypoglycemic (my grandmother was.) Well she decided to listen to my heart (1st time anyone has done that in years) -- and she said she could hear a heart murmur so she ordered an ECG. The results came back as MVP - so now I have to take antibiotics before any dental treatments -- doesn't seem so bad.

What I am wondering is how seriously should I take this diagnosis -- and what other healthcare professionals need to know (other than my dentist)?

Also, will my physical symptoms ever go away (i.e. tingley hands and feet, cold sweats, jitteriness, jumpiness when startled, etc)?

Michelle M. · 04-05-2005, 07:07 AM

Hi Nicole-
I was really worried 2 years ago when I was 1st told I had MVP. I had got an echo, and 2 weeks later there was a letter in the mail from the doctor and all it said was I was diagnosed with MVP and it said my heart valves leak in 2 different spots, make sure to take antibiotics before dentist procedures and any surgery. I would have thought the doctor could have at least called, I tried to call him and it took 2 days for him to get back to me. I had to find all my info from the internet and books. It was scary at first. But it shouldn't interfere too much with your life, they say. I know when I get an attack of palpitations it interferes with my life.
I don't get the symptoms that you mentioned on the bottom . I didn't know that those were symptoms of MVP.

NicoleMM · 04-12-2005, 09:11 PM

Thank you for your responses.

It makes sense to me that MVP is more like a CNS condition rather than a heart condition based on my symptoms (listed at the bottom of my first posting).

When I got the news of my MVP, I was also told that I am hypoglycemic (at least suspected) and was given a monitor to check my glucose levels when I am feeling really funny. Well, I have taken 4 readings when I was feeling really funny and my glucose levels have been 70, 62, 60 and yesterday when I was shaking uncontrollably it was 20. I am realizing that I need to eat more frequently -- my candy fixes will no longer cut it. I am shocked that I never put 2 and 2 together and realize that I have candy everywhere for a reason...at home, at the office, in my purse, in my briefcase, etc. The reason I bring up the hypoglycemia is that it can make the MVP sysmptoms worse (at least from what I have read...in the past couple of weeks.)

Well, thanks for listening to me.

Shawn98 · 04-13-2005, 01:55 PM

i have had MVP since i was 15. I am now 25. dont worry about it, you will be fine. panic attacks can coem from it though. i to have to take antibiotics before dental work. or any kind of surgery. but other then that it is nothing. so dont stress.

boobo0 · 04-23-2005, 09:16 PM

I was diagnosed with MVP when I was 24 (now 37) and it was panic attacks that I swear the triggered the whole thing. When this all began it was the scaryest thing that can happen to a young person that thinks they are immortal. As life goes on though, with lifestyle changes and self education you can become comfortable(somewhat lol) with this and learn how to live with it with no problems.

I get ECG's every 5 years and each time I have gone I have been told there has been no change (which is good news) and that I can go another 10 years before my next ECG.

It all just comes down to having to learn to deal with it mentaly with me and once you learn that symptoms will prolly come in cycles life will become easier to cope with.

Good Luck