Thanks for reponding Caroliz and Arrest04,
Eeeeks, you are scaring me now Arrest04.
A normal stress test and normal echo and you went into cardiac arrest! Where were you at the time? How did you survive it? You are too young to deal with this stuff. I feel I am too young and I am in my 40's so you are definitely too young! You asked about the autoimmune connection. Well, I must say that I have not been diagnosed with any autoimmune disease but nevertheless I know I have one! The doctors like to blame it on anxiety or a myriad of other things but I know the truth because I am the one living inside this body. The fact of the matter is that some of the autoimmune diseases are extremely difficult to diagnose. The blood tests do not work in everyone and some people take years before they have a diagnosis. I hate to say this but according to what I have read, apparently some people do not live to see a diagnosis either.
As far as my situation, I suffer from the following ongoing symptoms: overall cold sensitivity, "raynaud's" in my hands and feet, heart palpitations, hard and fast beating heart, and skin that acts differently (gets red and irritated easily and "dents" in more than it used to under pressure). Then I have the symptoms that come and go: numbness in different areas, dry eyes, blurred vision, irritable bowel, debilitating fatigue, acid reflux, slow-emptying stomach, esophagus spasm and swallowing discomfort, etc. etc. etc. I believe I have some type of inflammation going on inside my body that is causing my blood vessels to constrict but my blood tests for inflammation (and everything else for that matter) are always negative. Nevertheless, it certainly acts like inflammation and you know the old saying "If it looks like a duck and sounds like a duck then it probably IS a duck"! Anyway, they did vascular testing on me and documented a significant reduction in blood flow in my hands and feet so they slapped a "raynaud's" diagnosis on me. But it does not act like raynaud's as it is present ALL the time and it affects other areas of my body too (not just hands and feet).
I am just about convinced I have scleroderma or something similar to it but the docs say "no." I hope they are right but so many of my symptoms correspond to scleroderma - heart arrhythmias, acid reflux, irritable bowel, "raynaud's", overall cold sensitivity, swallowing discomfort, etc. I sound like I must be in terrible shape but the reality is that overall I do not feel that bad. I have a lot of symptoms that annoy me but overall I feel pretty good. I am just very afraid of these heart complications and need to get some answers. And I get so tired of my heart doing weird things. It would be so nice to have just a normal heart that did what it was supposed to and that I could just take for granted again!
Well, I have gone on here long enough. I hope there is some information here that is helpful to you. I appreciate your advice on controlling the palpitations. I am on 150 mg's of Toprol a day and it works pretty good overall but still I have had tachycardia up to 170+ on my monitor a couple weeks ago. I will see a cardiologist in a couple weeks and hopefully get some direction on all this.
I'd appreciate staying in touch with both you two (Caroliz and Arrest04) if you don't mind. Let's look for one another in this and subsequent posts. It helps to stay in touch with others who are in a similar situation. Caroliz, do you know what other types of arrhythmias you have had? Have you had V-tach at all? If you don't know, you should find out. If I had not asked for copies of all my tracings from my event monitor, I would not have known half of what I actually had recorded because they hardly told me anything.
Thanks and let's stay in touch....Strangeheart