Congenital Heart Defects - Heart Disorders Message Board

Kathy C · 08-09-2005, 03:21 PM

Hi all,

Just wondering if there was anyone out there who had a Congenital Heart Defect or maybe their child does or someone they know. I am always looking to talk with new people about CHDs. I am a 34 year old female born with Tricuspid Atresia, ASD, VSD. Had several surgeries and am 18 1/2 years post Fontan.

Hope to talk with someone new.

Take care.

Kathy

born2bwild · 08-11-2005, 12:37 AM

Hi Kathy, i had an ASD closure and tricuspid valve repair yesterday moring and i am home tonight. They did the procedure through a cathater in my right groin. I was born with the hole but developed valve damage, enlarged heart and atrial fib. Found out 7 months ago i had all this after being told i had anxiety for the past 8 years. I am a 41 yr. old female.

My major complaint right now is gas in my abdomen and chest area but my right leg is pretty sore too. It is amazing they can do all this through your leg. My ASD was fairly large measuring 30 mm across. When they did the TEE months ago they told me it was a small hole, now the cardiologist says he was surprised it was so big? go figure. Nevertheless i am patched up and hopefully life will be better. How is your health and how old are you? Sue

pkdeter · 08-13-2005, 09:23 PM

Kathy,

I have never had surgery of any kind for my CHD. The other girl I mentioned in my previous post has never had surgery either. Both of us are candidates for a heart/lung transplant if & when that time comes.
My parents opted not to have the Fontan surgery done on me when I was young as the survival rate of that surgery was extremely poor.

Pam

dad22 · 08-14-2005, 10:07 PM

Hi, I have a one year old daughter who just had tetrology of fallot repair less than two months ago. She is doing excellent! TOF consist of a VSD, a narrowed pulimonary artery, a displaced aorta and hypertrophy. I don't know if you've seen the movie 'Something the Lord Made' but that's what my babygirl had. It's where the babies turn blue and pass out due to lack of oxygen in the blood.