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Old 04-16-2006, 10:18 PM   #1
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noshoes HB User
Syncope - What happened? My story!

Hi guys! I have a long story here so get ready to read. I'll try to make it straight and to the point and not elaborate so much. First off, I'll start you with my stats:

Before
19 years of age
5'11
180lbs
Healthy kid, no drinking/smoking/bad eating
Stress free
Medical history - High BP at 13, untreated (doctors mistake?) HR in 40s
I've been physically active and played sports up until this incident.

On February 24th, I went to a competition. I basically just played sports all day and I didn't drink as much water as I should have. I went home and finally went to bed feeling good around 9:00PM. Around 12:30AM, my sister was locked out and started banging on the door. This set the dogs off and they started barking which freaked me out and got me up to let my sister in. As soon as I layed back down....BOOM! My chest felt weird, not hurting, just felt as if my heart was beating really slow and I had shortness of breath. I'm not sure if I could call it shortness of breath because I literally couldn't breathe at all. I started to panic so I got up to tell my mother but passed out after 3 steps. Fortunately, my mother heard me drop, called 911, and check me out. I came to within seconds after the fall. As soon as I realized I had fainted, my chest started hurting bad. Just a crushing, squeezing pain. I thought I was having a heart attack and dying. I blacked out again. I came to seconds later again, but this time feeling normal, just cold and shivering severely. The EMT guys got there and my BP was 180/1??. Just off the charts. They took it 3 over times and it was just fluctuating up and down.

I got to the hospital and they admitted me. They performed the following tests:

Chest xray
Echo
EKG
48 hour heart moniter
24 hour urine test
24 BP test
ECCG
MRI of head

Doctor's thoughts?
Unexplained episode of syncope, wasn't sure of the cause since all tests came back normal and my heart looked healthy. Referred to an electrophysiologist for a Tilt table test and possibly EP Study.

I was released 2 days later, feeling great. BOOM! That night, I realized I was short of breath when laying down, either on back or side. Later during the weeks, other symptoms started showing up. Palpitations, tightness in chest, burning sensation in chest, sweats, chills, weakness, dizziness, irregular pulse (according to me), and numbness after waking up. My parents told me this was all anxiety and due to stress. So, I left it at that. The symptoms didnt go away, a month later I saw the electrophysiologist. He only did an EKG, which was normal, and basically said I was fine. I did the tilt test and fainted after the nitro, but the symptoms didn't match up. He told me that all of my current symptoms are just stress and anxiety and I need to move on in life. He wasn't going to do any more tests just to make me "feel" better. I was frustrated, and upset. This "special" doctor, basically just pushed me aside simply because I'm young. My parents started to get mad at me at this point when I complained about my symptoms. They got so bad I wasn't able to sleep, I wouldn't sleep. I didn't know if Id wake up. It was that bad.

2 months later the symptoms were still with me. Finally, after two episodes of where I got so weak, I could barely walk, I was rushed to the ER to the ER on both occasions. Did that help much? NOO! They discharged me saying I was fine. My mother got me an appointment with my GP and another cardiologist. We talked to my GP and told him everything. We also told him that I feel better after I eat. So, he thought it could be some sugar level problem. So basically drained my dry of my blood looking for everything possible. The only thing that came back abnormal was my testosterone. It was a shocking 150, he said mine at my age was supposed to be near 600. Could this be a part of my problem? He didn't think so.

I had another epidsode of weakness...and rushed to the ER again, my new cardiologist met me up there and gave me a 24 holter monitor to take home with me. I was so thankful! Finally, I got a holter monitor and I was so sure that it was going to find something so I could be treated. Two days later I turn it in, do a stress test, and another echo.

My results
Echo = normal, healthy conditioned heart
Stress test = normal, healthy and strong
Holter Monitor = Only two PVCs in 24 hours, and the symptoms I had written in my journal didn't show any heart beat irregularities.

I was shocked. My chest got tight on the stress test... Here Im expecting them to find something so I could be treated. Nothing! He did say however, that he would give me one more test to look for defects? It was called a CT agonmaoly? I don't know...if you do know what that is, what is it? Is it invasive?! Thanks! He then also put me on diarretics so help my BP.

I feel a lot better now then I did back then. It's been 2 1/2 months. But, I don't feel 100%. I only have a few symptoms that have stuck with me

My main concern now is...after seeing 3 heart doctors, 3 ER visits, no abnormalities on my test? What caused me to pass out? Why did I feel those symptoms. Why do I have a tight chest feeling and occasional shortness of breath? It feels like my heart is smashed up against my sternum? Right in the middle...just pressure. I was feeling this pressure in all the test as well, and nothing abnormal found?! I also get this numb, emptiness feeling on my left side, over my pec and ribcage area. This has all been frustrating and scary.

I wanted to ask you guys if anyone has had a similar experience? What do you personally think happened and what are causing my symptoms now?

Thank you for taking the time to read this.

Now
19 years of age
5'11
155lbs
Medical problems
Stressful
Medical history - High BP at 13, untreated (doctors mistake?). HR in 40s. Episode of unexplained syncope.
I've been physically active and played sports up until this incident.

Last edited by noshoes; 04-16-2006 at 10:29 PM.

 
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Old 04-17-2006, 07:45 AM   #2
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Lenin HB UserLenin HB UserLenin HB UserLenin HB UserLenin HB User
Re: Syncope - What happened? My story!

Wow noshoes,

This sounds like one for Dr. House.
I'll continue to think about it...my first thought was DEHYDRATION...????

Was the stress test you had a nuclear one?
Has your testosterone level changed? If not, I'd start supplementing it. It's amazing the number of systems testosterone controls in a 19 year old.

Last edited by Lenin; 04-17-2006 at 07:46 AM.

 
Old 04-17-2006, 08:09 AM   #3
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Carly3 HB User
Re: Syncope - What happened? My story!

Hi noshoes,
Wow...you've had alot of problems. Are you checking your blood pressure at home? What kind of readings are you getting? Like lenin I thought maybe your electrolytes were off balance too( due to dehydration)......but, I'm going to continue to think about this one too.

 
Old 04-17-2006, 12:44 PM   #4
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terinva HB User
Re: Syncope - What happened? My story!

Hi

I am a new poster and I am trying to raise awareness for sudden cardiac death syndrome I was diagnosed with ARVD. I had a lot of the same symptoms that you have. There are a lot of SCD diseases (sudden cardiac death). I was having PVCs and doctors put me on beta blockers. I also had a brother who had passed away at 23 from basically an unexplained cardiac arrest. I had 2 episodes of syncope and one of the EPs finally listened to me and gave me a cardiac MRI, which confirmed my diagnosis of ARVD. I was rushed to the hospital and they implanted a defibrillator in me. Also there was a show on ABC's Primetime about a girl with Long QT syndrome(another of the SCD syndromes) It basically was about a family who had lost their 16 y.o. daughter from a SCD syndrome. Doctors told her she was fine the day before her death because her echo said normal, they really did not look at the echo in detail.You kind of need to be a squeaky wheel and keep telling your parents and doctors that this is something worth looking into do some research online! If my husband and family did not insist I would not be here today. These diseases usually affect young people, especially athletes. It is rare and it is entirely possible that it is just stress and nothing is really wrong, but you do have to listen to your body and don't let anyone tell you it is nothing. Also check into your family history it is a hereditary condition. After what happened to my brother and to me. I realized that this is a real thing and now I have a defibrillator and I can lead a normal and healthy life I almost deleted this post because it sounds scary but after seeing it on tv and being diagnosed, my hope is that education and awareness could help to save a life. I wish you the best and hope this helps.

 
Old 04-17-2006, 03:16 PM   #5
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Carly3 HB User
Re: Syncope - What happened? My story!

I appreciate the information you've given as I'm sure the OP will.Sometimes the urge is to hold back giving good information if it doesn't paint a pretty picture but as you are saying it saved your life and maybe someone elses.

 
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