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Old 10-10-2006, 08:36 AM   #1
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Angry Problems After Ablation - Help

HI,
I am new to this site. I am 39yo female with history of MVP, SVT and thyroid nodule. I had 1st ablation for AVNRT on 4/19/06. It was unsuccessful and had a second ablation on 6/22/06. I was taken off beta blockers after 2nd ablation. Next day after ablation had shortness of breath and tachycardia from minimal exertion. Was told my heart needed to "reset" itself and sent home. After 4 weeks I couldn't stand the tachy.,shortness of breath and fatigue anymore - went to ER. Was admitted and told I now had Inappropriate Sinus Tachycardia and put back on Inderal. Inderal helped tachy. but still had shortness of breath and started having skipped beats constantly (only had occ. pre ablation). Monitor showed PJCs, PACS, and occ. PVCs. It has been over 3 months since 2nd ablation and I am still not back to normal. The skipped beats and shortness of breath on minimal exertion are causing me anxiety. Ep says ectopic beats may eventually subside. Cardio. has ordered CXR, Pulmonary Function Tests, VQ Scan, labs - all normal. Had cardiac cath on 8/29 - normal except for MVP w/ mild regurgitation. I would appreciate hearing from anyone who is still having problems after ablation. It is getting very discouraging since my quality of life was better before I had the ablation..........Please respond, Thank you!

 
Old 10-10-2006, 12:32 PM   #2
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Re: Problems After Ablation - Help

I am really glad that you wrote in because I am experiencing the same symptoms after Ablation. I am on Toprol, and have had breakthrough afib almost everyday since the procedure...the cardio says that is from the fact that the problem is from the left pulmonary veins (?), and is more involved than originally thought... . The reason that I opted for the procedure was that the irregular beats caused me to black out and my blood pressure was so low that they said no beta blockers, and that ablation was the only answer...now I am on beta blockers and have afib more frequently than ever before! They say I will be on the bb forever. What does your cardio say about your feeling worse? p.s.do you ever feel like it starts and then the volume is turned down but you still feel as if you are heavy hearted and on the verge of a full blown episode? Hope you feel better

 
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Old 10-10-2006, 01:41 PM   #3
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Talking Re: Problems After Ablation - Help

Hi Jgetter,
Thanks for the response. You probably thought what I did before ablation - you would not have to worry about the horrible arrythmias and you could get off of medication, that was my plan. Now I am still on meds and instead of having Svt every couple months I have skipped beats and shortness of breath 24/7. I also have low BP (runs 90/50-100/60). I do often feel like my heart is going to take off but doesn't actually go into a full blown episode. I feels like a fluttering in my chest - I tell my husband I am sure it is going to take off. I haven't actually had any documented SVT since the second ablation. My EP thinks the ectopic beats "may" subside. My cardio. and EP are both confused as to why I am short of breath - had heart cath,CXR, pulmonary function tests and bloodwork - all ok. It sounds like you are disgusted with your ablation outcome too. I am on a heart monitor now for 2 weeks - as I am typing this my heart is flip-flopping around. I see the EP in 1 month and he said if I have no improvement he would like to refer me to Cleveland Clinic. Have you considered a second opinion?? Cleveland Clinic is supposed to be very advanced in ablation for A-Fib. I have a friend going for A-Fib ablation in 6 months - there is a long waiting period for the procedure but you can get an evaluation set up. Good luck and please respond with any other questions/comments. Thanks again for replying. Take Care....

 
Old 10-10-2006, 02:21 PM   #4
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Re: Problems After Ablation - Help

When you have the flip flop feeling, have you been hooked up to see if you are in afib? I was in the er the other night and they wouldn't let me go until I converted (I told them I was happy as a Catholic) joke, anyway, you may be in afib, so be careful. Sometimes I want to stop the medication just to see where I am really...this is so confusing. Thanks for the advice about the Cleveland Clinic...tell you what, the next ablation is going to be on the left side and I am going to go to the best I can find! That particular ablation involves going through a section of the heart and around the pulmonary veins...a bit invasive for my taste. I was on team tennis until a month ago...that's out the door because of the uncertainty of the episodes..even with the medication, and the dulling of them I still hesitate to play because my heart races and fflops too much. The breathing problems for you are alarming to me...I know that I put Vick's on my chest before I go to bed due to the breathing, it helps for some reason...isn't it strange that many of us, you will read, have problems breathing...I'm so sorry for your situation, and thanks for the info. let's keep in touch J...I'm 45, young too!

 
Old 10-15-2006, 06:18 AM   #5
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Re: Problems After Ablation - Help

I'm so sorry, are you taking a beta blocker?

 
Old 10-15-2006, 04:46 PM   #6
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Re: Problems After Ablation - Help

kimah,
Seems like we are in the same boat. I am still pursuing getting answers from my Electrophysiologist. I see him again in 4 weeks. He said he would refer me to Cleveland Clinic. If I find out anything that may help you I will pass it on. One thing that I have been doing is drinking a lot of water to keep well hydrated (helps with low bp- my normal bp is also usually 90/60). I also started to wear medical support hose ( will aid in preventing blood from pooling in the lower extremities - may help with dizziness). I also started taking magnesium supp. to help with skipped beats - may have helped a little. I know what you mean about being pale, tired and depressed - that pretty much describes me the past few months. I know you have been going through it a lot longer. I was wondering - were you ever checked for mitral valve prolapse (MVP) I do have that and a lot of the symptoms of MVP syndrome are similar to ours ;however, I want to know why the problems starte after the ablation. Have you worn a monitor since your ablation so they can see what is going on?? I have also totally cut out caffeine, and I don't drink or smoke because these can all make arrythmias worse. I know you are much younger and I hope something will help improve your quality of life. Please keep in touch, I will check the posts, If I find out anything I will let you know. Take care............

 
Old 01-04-2007, 08:50 AM   #7
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Re: Problems After Ablation - Help

Quote:
Originally Posted by jgetter
When you have the flip flop feeling, have you been hooked up to see if you are in afib? I was in the er the other night and they wouldn't let me go until I converted (I told them I was happy as a Catholic) joke, anyway, you may be in afib, so be careful. Sometimes I want to stop the medication just to see where I am really...this is so confusing. Thanks for the advice about the Cleveland Clinic...tell you what, the next ablation is going to be on the left side and I am going to go to the best I can find! That particular ablation involves going through a section of the heart and around the pulmonary veins...a bit invasive for my taste. I was on team tennis until a month ago...that's out the door because of the uncertainty of the episodes..even with the medication, and the dulling of them I still hesitate to play because my heart races and fflops too much. The breathing problems for you are alarming to me...I know that I put Vick's on my chest before I go to bed due to the breathing, it helps for some reason...isn't it strange that many of us, you will read, have problems breathing...I'm so sorry for your situation, and thanks for the info. let's keep in touch J...I'm 45, young too!
I'm on Rythmol for atrial fib.

 
Old 01-05-2007, 11:12 PM   #8
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Re: Problems After Ablation - Help

Oh, I feel your pain sweetie! You are younger than my daughter. I PRAY THAT YOU WILL GET SOME ANSWERS. I agree with some of the other posters, that you would benefit from an event monitor. I have one on now and it is for a month. Comes off on the 18th. Please check with your doc. They are not GOD! This is your life.. DEMAND ANSWERS. I used to be so intimidated by Dr's. But now that I'm in my late 40's, i really do go in prepared. I take hubby along, with a list of questions, and I also take a recorder I keep in my purse. In case hubby and I miss something. GOOD LUCK!!

 
Old 01-05-2007, 11:14 PM   #9
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Thumbs down Re: Problems After Ablation - Help

25y/o male in exactly the same situation.

had ablation in jan 06 for psvt. Since then I have daily skipped beats, shortness of breath, dizziness, chest pain and fatigue. sick of living like this. sick of telling people about it, sick of trying to hide it. im almost convinced that there is not going to be a cure for it. my main problem is just getting a doctor to take it seriously. my GP sent me to a psychiatrist because he thought it was fabricated or just anxiety. yes, i have anxiety, but its from the problems, not the other way around like they think.

i dont know if the ablation caused it, but i do know that my life was 110% better before i had that ridiculous procedure.

Last edited by xersen; 01-05-2007 at 11:14 PM.

 
Old 01-06-2007, 07:12 AM   #10
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Re: Problems After Ablation - Help

Hi everyone, just wanted to give you an update and reply to the post ablation members that are still suffering . About 2 months ago I was able to have the Pumonary Vein Isolation surgery, it was hairy, but I haven't had any sustained afib...just a few jolts here and there. What I have experienced is the shortness of breath, and the heart racing when doing nothing more than going from room to room or car to work, etc... . Also, I have a piching pain that is very painful, it is on the upper right corner of my heart, I have had this since the first botched ablation, it comes and goes.
I am taking only warafin (7.5) and hopefully on my next follow-up in Cleveland, I can get off of that. I am taking topral as needed...only once in a blue moon and I crack that baby into quarters...it helps with the heavy heart if I overdo in the day.
My heart goes out to all of you that are suffering from this condition, it is real and it is painful on many levels. If I hear one more doctor say "you know Janet it won't kill you" why does it have to kill you to be taken seriously?
My only advice after having afib for years and having a misdiagnosis and a botched ablation, and then a successful pvi is that you have to take full charge of your health care, I don't know if I will ever be free of all afib episodes but I do know that I haven't had one sustained episode since the procedure, and that's great. I would be happy to share more info about the procedure

 
Old 01-06-2007, 09:07 AM   #11
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Re: Problems After Ablation - Help

I will NEVER have this done. My cardiologist told me that the electro doc woll probably want to do an EP study on me. i know this is the same thing, but just not withthe ablation.. Right?? I haven't read one success story. I can go for a long time iwthout Pvc. But most of the time I have a fe a day. During bad times, ... REALLY BAD TIMES, I have 10 per minute. It exhausts me to the core of my being! But...From reading about the ablations.. on here.. it seems like the most common reason to have it is for SVT. I have had short burst of that caught on holter monitors. But told was very very short.. 3 seconds. I am NOT WANTING TO Ever HAVE AN ABLATION. i WILL WAIT A YR. IF i HAVE TO TO GET INTO THIS cLEVELAND cLINIC EVERYONE IS TALKING ABOUT. aLTHOUGH, i LIVE IN tX. AND we have the great St. Lukes in Houston. ( sorry about the caps) I'm really shaky today. Alation?? hum....I don't think so..

 
Old 01-06-2007, 01:38 PM   #12
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Re: Problems After Ablation - Help

An EP study usually invloves ablation...that's how they locate the areas that are causing the problem and then ablate them. If you go online, the success rate indicated by most websites is 90% for svt, slightly lower for afib patients. This success rate declines as time goes on...one reason is that new pathways are formed. My co-worker had a very successful ablation, and so did my tennis friend. They had classic svt with tachy and no irregular beats. If you can tolerate the meds, that is probably your best bet for long term success.

 
Old 01-09-2007, 03:17 PM   #13
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Re: Problems After Ablation - Help

Hi kslager,

Sounds like we have the same story. I started this thread in October. I still have shortness of breath, fatigue and skipped beats, but I will say it has been getting a little better very slowly. I am still pursuing an answer as to why I feel worse post ablation. Like you, I have been told it is probobaly anxiety and handed scripts for sedatives and antidepressants. I am at the point now that I actually probobaly come across as hostile when another specialist tells me it is probobaly my nerves. Like you, I have been telling them from day one that it is my physical symptoms that are causing me anxiety, not the other way around. I had a metabolic exercise study done a couple weeks ago and see the pulmonologist for the results next week. I still believe there has to be something caused by the ablation. My life has not been the same since the day after the second ablation when my feet hit the floor. I know what you mean about tired of talking about it. I think some of my family even feels like "Well they can't find anything wrong - it must be your nerves" Bull_ how can you go from being normal except for intermittent bouts of svt, to a person who cannot tolerate any exercise, get short of breath, constantly fatigued with your heart skipping beats constantly. Pre-ablation I probobaly had skipped beats a couple times a week. Now 24/7. I am still pursuing answers, I hope you are too. Keep posting. I actually got away from these sites for a while - like you said - tired of talking about it. Your story sounded so much like mine I was compelled to reply. GOOD LUCK.....

 
Old 01-11-2007, 12:35 PM   #14
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Re: Problems After Ablation - Help

Do any of you still feel a tingle and pins and needles in your chest? I have the strangest feelings when I get up too quickly or bend down and get up, also when I lift my arms above my head. It feels like pressure and tingling starting in my chest and radiating down to my hands. This is the breathing are the two left-over symptoms from the ablation.

 
Old 01-11-2007, 03:55 PM   #15
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Re: Problems After Ablation - Help

j getter i was 21 my first time in a-fib i was a bodybuilder the first time a had mine.i comepeted for 6 years after,im 33 now and still in good shape 5'9 205 lbs 9% body fat.i have had a-fib 4 times shocked back into sinus 2 times and the other times it stoped while at the er.i still have pvc's almost daily,but i can feel them and the a-fib i can tell the diff between a-fib and pvc's and pac's a-fib is constant. where as you no pvc's arent, anyway just thought i would share my sorry good luck

 
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