mimiof3

hello to all. i'm sorry i haven't been back on here. i truly appreciate the concern. i stayed with my daughter for one night. well, had the appt with the electro. here goes. he was absolutely POSITIVE that i didn't have right ventricular dysplasia. said it was just the most remote thing in his mind. didn't know where cardio was getting that. he said it COULD be a possibility, butin some patients, but he was just so sure not me. said it is rare, and that it would have been there from birth. well, i am having v-tach. the event monitor strips shows it, but he said that the rate is what he looks at and it was "bothersome" to him, but felt that i am in more danger getting in a car acc. than SSD. hum.. he said that the RATE of the v-tach is not 120, and that is what is consodered v-tach..but i am having the same thing, just slower, but they refer to it as idioventricular arrhythmia when it is less than 120 bpm. said it wasn't as dangerous as if it were faster. (still worried.. this is no comfort really to me, about he rate.. maybe it should be, but i am in such a haze i don't know my own mothers phone #..i cannot sleep or eat. i HAVE to get a hold on this, or i will be really sick and i need to be strong right now...v-tach is v-tach isn't it? gee) anyway.. he ordered a special ekg. a SIGNAL AVERAGE EKG. it took about 10 minutes. i really don't understand this ekg. but it has something to do with ruling out RVD. next day,(yesterday) i had an mri of heart. today, i called and of course both my cardiologist adn electro are "supposedly" out of the office. talkEd to electro's nurse to seE if results were in. she said they were but not read by doc. i told her i really wanted to know, if they were just sitting on her desk. i KNOW she really cannot tell me anything. but she talked to his asst. and then read me the who knows WHAT? she said the wording was suggestive of RVD!! i freaked you all. i mean. i wAs crying into the phone. i told her i wanted it faxed to me, which she did. in the mean time, my husband (God bless him) was caling my cardiologist on his cell. he gave us his cell about a yr. ago. HE GIVES IT TO MOST OF HIS PATIENTS ? GO FIGURE.. cardiologist called me and i was in tears, (which i regret now BECAUSE SOMETIMES THEY WILL NOT BE AS FORTHRIGHT WHEN THEY THINK THEY HAVE A PANICKY, NEUROTIC female ON THE LINE) ) and he told me that he didn't believe that i have RVD. BUT ALL HE HAS IS THE FINDINGS SHEET FAXED TO FROM THE RADIOLOGIST. he said that since my SIGNAL ekg was totally normal, that he didn't think i have RVD. said that he would just live my life it it wee his or his wifes findings, althogh they are INCONSLUSIVE!! yes! a GRAY area.. only meeeeeeeee here is the findings from the radiologist, who after all ..they are the ones that actually read these things and then relay them on to drs.

The right ventricular wall is diffusely mildly thinned and has some hetrogenous areas of increased signal.Some of the trabeculae also appears thickened. Wall motion , however, is normal and chamber size isnormal. Overall volume of the right ventricular muscle wall is slightly less than expected.
Mitral and Tricuspid valves are normal. Aortic pulmonic valves likewise are normal. No left ventricular wall motion abnormality is seen.
CONCLUSION; Diffusely mildly thinned right ventricular muscle wallwith heterogeneous increased signal concerning for, but noy diagnostic of, right ventricular dysplasia. In this particular patient, with a relatively thin wall, it is quite hard to accuretely separate blood products interdigitating and small areas of trabeculee from TRUE fibro fatty infiltration.
Otherwise normal cardiac MRI.
I decided to take matters in my own hands and calm down and i actually called the radiologist. got her on the phone and she was super nice and just absolutely NOT willing to give a definate yes or no on the findings. said that my thin wall was jsut how i was born,but it makes it extremely difficult to decipher what is actually going on as to 100% RVD. she would only committ to 50-50. said that it does suggest it in some ways, but not 100%. said that the right ventricle was VERY thin (but the findings report says mildly didn't it???) I was very very upbeat. to her so she would talk freely tome and i had my daughter on a three way with us and she knew this. she was concerned about the future harmful arrhythmias that could occur.
i decided after we hung up to call St lukes Heaert Hospital in Houston. THE BEST ACTUALLY. i cannot see anyone until the first part of MARCH!! it wil be at lest 8 weeks, and i wil be seeing the head of the electro dept there.
i still have on my trust ole event monitor and wil return it on the 18th. i still have short burst of whatevers..and know no more than i did than before we went from the get go. i feel like shucking the event monitor, andjust living my life like this all never happened, but then irealize that i have a child an grandchildren that could have inherited this from me if i indeed have it. i owe it to them to get to the bottom of things. YES I HAVE HAD AN exhaustion breakdown of sorts. i am not well at all. i look horrible. don't care..but i have aged in just a few weeks. worry and stress are terrible huh? I have a follow up with my electro on wed. he is only there on wed. ..he told me as he was leaving wed. at our apt, before al the tests, that if the RVD came back positive, he would talk to me about a defibulator. my cardiologist thinks i do not need one. today he said.. if you do thta, then everytime you walk up a flight of stairs and your heart rate gets up to 150 , then it wil fire, electro said he really hated to have to put one in me. he is good, and as i stated agressive, but also soncervative, meaning to me that he isn't trying to throw me into the defibulator just to make money for himself.
i am so weak you all and tired. i appreciate all your prayers. i cannot believe that after the mri..btw.. it wasn't bad for me as far as being claustrophobic, but you have to hold your breathe so much. like 30 sec at a time and this went on for 45 or more minutes..
i would love to hear from all of you and your thoughts on my HORRIFFIC lil situation. thanks so much.. mimi