I was diagnosed with neurocardio syncope about 10 months ago. I have been having blackouts/seizures on average about twice to three times a year (max) for the past 12 years. I have had 17 in total and they tend to last 30 secs siezures and about thirty mins in total before i'm fully right. I feel very tired after they occur and can sleep for long periods (hours) afterwards. Also i feel weak afterwards. I generally get an idea that thy could occur by single jerks before hand. These are as if i have lost consciousness for a split second and my eyes close and i can lose power in my legs, not enough to fall as i regain consciousness again before i have time to fall. These occur a few times before the main occurance happens. After the first instance i had all the tests done for epilepsy. These came back clear. However, about 5 years ago a neurologist diagnosed me with epilepsy. I was put on medication with all the usual side effects. I never felt this was correct as the main questions the neurologists always asked was did i wet myself during the instances or did i bite my tongue, both of which never occurred. I always felt it was more to do with my heart and when i went to a new neurologist i led them down the lne that it could be my heart. They agreed and sent me to a cardiologist last year. I had a tilt table test which i felt okay with in the first 25 minutes. Then i was administered drugs to induce syempton and lasted 11 minutes before i had to stop the test as i felt a blackout on the verge of occrring. I also has a holter test and a stress test. After these three tests i was diagnosed with neurocardio syncope. I'm fairly happy that the diagnosis is correct. However, i was advised that it is something i will have to live with i.e. no medication to resolve. These instances almost always occur in the morning not long after i have woken up. I would be a fairly physically fit individual and i play regular sport at a reasonable level. I was just wondering has anyone any similarity with what i have posted and does anyone have any ideas on the things i should do and athings i should avoid to help prevent these occurrances. They have become more regular in the last four years eg. 3/4 per year where as before that it was roughly once a year at most. If anything i have calmed down in the time since they have increased i.e. less exertions and nights out. I know that this helps even though they have occurred more regularly but again i just wondered if anyone has any advice in helping my situation. Just for the record i am now 30 years old and the first instance was when i was 18. They tended to happen a lot after nights out drinking and in general always occur when i'm exhausted in the morning after i had a night out or for whatever reason i'm tired such as physically exerting activities. They have also occurred the moring after i had a hot bath the previous night and other instances where i was possibly lacking in hyration from the previous day. Again i stress that it seems only to occur the morning after and never in evening times
Thanks in advance
Last edited by alan2877; 05-04-2007 at 08:10 AM.