Orthostatic Intolerance...anyone with stories to share? - Heart Disorders Message Board

gillian30 · 06-12-2003, 01:03 AM

I'm 30 and was recently told I have orthostatic intolerance.(Specifically, POTS and neurally mediated hypotension.) I am very uncomfortable upon standing or even sitting too long...feel weak and hollow in the chest and fatigued and anxious. I've also had other health problems such as dizziness and lower back pain while walking, over the past year. I have already researched many internet sites about this problem, but would rather have more personal point of views and first hand accounts of this illness. If anyone has any experience with tachycardia caused by upright posture, and feelings of pre-fainting spells, or has any first hand stories of this illness, I'd love to share. Thanks in advance.

ryan32 · 06-12-2003, 12:59 PM

hi gillian. i was diagnosed with orthostatic hypotension...also neurocardiogenic syncope 10 years ago. you describe symptoms that were happening to me on an ongoing basis. it took almost 2 years and a number of doc's to finally get a diagnosis. i'm happy to report i only have occasional episodes now. i never had tachycardia. mine was bradycardia. mine is under control with medication, diet and hot weather avoidance. how are your days going? is this happening on a daily basis? please feel free to ask me any questions.