i was diagnosed with PSVTs (brought on 2yrs ago by pregnancy) and went in for ablasion in june - 3 hour procedure - 1 ablasion- did not know what world i was in - no pain etc.. however they could not get all of the areas because of their proximity to my phrenic nerve (controls breathing) and the fear that i would end up on respirator. So I was referred to another hospital out of state that had a newer mapping machine. this one was an 8 hour procedure where they found 5 different types of arrythmias and ablated 9 areas.. this time i felt all of it.. from insertions of the catheters into both groin sites and my neck - to the ablations them selves which were excrutiating. plus for most of the time they kept my heart rate at 240.. it was truly a horrible experience not at all like the first. I do believe they fixed the main problem - i know longer pass out - however now i have totally new symptoms. now my heart seems to beat very hard instead of fast. i have visual disturbances now upon exertion. i am out of rythem most of the time now - constantly having to cough etc to try to get it into sync. My heart rate is slow now too sometimes dropping to between 35-40 bpm. i am 34 and feel like i am 90 and i am sick of telling my kids i am too tired to play ( i was very active before). i also have nerve damage to my right thigh since surgery which is not coming back as i was told (its been 3 months). My cardiologist is contemplating a pacemaker at this point and really want one at this point if it will give me my life back! Is there anyone out there that is or has had a similar experience?? any input would be appreciated...
[This message has been edited by khudsonwv (edited 09-21-2003).]
[This message has been edited by khudsonwv (edited 09-24-2003).]
Sorry to hear your story. From what you said it sounds like the ablation did help your tac PSVT's. Your probably suffering from your bradycardia heart rates. A pacemaker probably would be valuable to you. Find a new elecrophysiologist that you like and trust. You need to see a physician you can trust.
Hope you let me know how you make out.
thank you for your response - i have the best cardiologist - unfortunately there are only three electrophysiologists in the entire state - the dr who did my first ablasion was awsome - however he did not have the equipment needed to handle my case ( no one else in the state did either) so i was referred to virginia. dr there seemed very knowlegible but didn't seem to care about making me comfortable thru the procedure.. follow up with my cardiologist in 2 weeks will see where it goes from here..
back in the hospital yesterday.. heart rate 31 - bp 70/50.. felt really awful.. i was hoping someone out there who has had similar problems could give me some input.. probably getting pacemaker this week .. i love the idea if it will help but hate that it has ended up with this at 34 years old... any input would be greatly appreciated..