Originally Posted by jcn
Thanks so much for your reply. The CTA actually showed no enlargement (after 5 years) so that was such a relief! The cardiologist did say he would want to repair it if it got to 5cm. He wants to put him on medicine to lower his blood pressure but his blood pressure is already so low - it seems strange. He said he needs to come back in 6mos and he'll probably be monitored now every year after that.
How old is your son? And do you know the reason his is enlarged? The doctor said we might want to have my kids checked out just to make sure there is not a genetic component. I am taking them in for their checkups in June and I am going to ask about it then.
Thanks for your message, my son is only 17 and it was found by accident as his legs were going blue so I took him to the local GP. My son was sent for a heart echo and it showed up the dililated aortic root with two very small leaks. Well I was devesated as i thought he was going to die. In a couple of years it has got abt 2mm bigger which is not much, but what the underlying cause is they thing could be connective tissue. It is not Marfrans as the heart specialist did some very routine tests, so they need to find out why. It could be he was born like this.
My son was going for a CT scan but they wont do it because of the high dose of radiation and because of his age, so they have suggested an MRA do you know anything about this?
I am glad your hubby well is ok, I know its worrying but if its monitored its ok. As my specialist said that my son wouldnt collapse and die, but as a mother how can you not worry.
Hope to hear more from you,