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Old 09-25-2011, 10:11 AM   #1
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Shae Lee HB User
Exclamation ASD Closure

Hi. I am 31 years old and 31 weeks pregnant, I have had a terrible pregnancy and after investigating they have found that I have a large hole in my heart 5.4cm in diameter. I have to have my baby taken out by c-section at 36 weeks has they are worried my heart won't hope with a natural labor. Then approximately 3 months after bub arrives I will be having open heart surgery. It's all been extremely overwhelming and quite frankly I'm a total mess!. I'm so sad that I will be leaving my new little baby to go have surgery and also I am terrified of complications and post op pain. I would be extremely grateful to hear from someone that has gone through this surgery. I know I should be grateful that this was found before my heart began to fail but instead I just feel ripped off and so upset that it had to happen at a time in my life that should be so great...having my first child. I've always wanted to be a mum and now I'm terrified that I won't be around for my beautiful baby. Am I over-reacting? Is the surgery ad scary as what I think?

Regards
Shae

 
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Old 09-25-2011, 12:29 PM   #2
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Re: ASD Closure

You are not overreacting, it is perfectly natrual. You will soon be mother and will soon face repair surgery. Has the surgery met with you to discuss the procedure and what will be done to repair the hole. I do not want to guess, but they might use a patch to seal up the hole, it is done all the time with no serious complications. You must talk to the doctors to get reasurance that everything will be fine. Your baby will be fine also. You just got to talk to the doctor and you will be fine. It will help put your mind to rest. Hugs for today and let us know if you are able to get with the doctor to discuss the upcoming surgery.
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Last edited by rosier; 09-25-2011 at 12:29 PM. Reason: missing word

 
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Old 09-25-2011, 08:04 PM   #3
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Shae Lee HB User
Re: ASD Closure

Thanks for ur response . I haven't meet with the heart surgeon yet as the heart specialist hasn't told me who will be doing the surgery yet. He has said that it will be closed using a patch that will be stitched on. He is quite reassuring but my imagination just seems to get carried away. Im just so scared that it is consuming me. Have you had this surgery before or know someone that has?. I will be meeting with the heart specialist again this week so hopefully I will get a but more info on the surgery. Thanks again for taking the time to write.

Shae x

 
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Old 09-27-2011, 04:54 AM   #4
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Re: ASD Closure

On the knowledge on patch repair, I have read up on the subject from reliable sources. It is good to now more, weither it pertains to yourself or not. Knowledge is the key to all health possibilities. They use a mesh with children still, but has improved over the years. It has to be replaced every few years as the child grows. Then they have a patch sown in for permancy. They have come a long way in the repair department. Experiments make it possible for the rest of us to survive longer. Good luck in your search for knowledge and keep us informed. Hugs for today.
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Old 09-27-2011, 08:54 AM   #5
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Shae Lee HB User
Re: ASD Closure

Thanks very much for the info. I will keep searching for any info I can get and hopefully what I find will offer some comfort . Thanks again :-)

 
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Old 09-08-2012, 11:28 PM   #6
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Question Re: ASD Closure

Hi Ladies,

I am so glad that I find this site last night. Of course, I wish I have find it earlier. And Shae, I am everything is well with you.

I am now at age 34. I just found out the I am diagnosed with ASD back in June for my general checkup. On the same day, my husband was sent to ER and I had to take care of him for a week. It was just a very unpleasant experience.

When I first learned from my cardiologist about my heart disorder, I was told that this could not be waited and procedure/surgery has to be done this year. She said I could not be pregnant at this time. I was totally freak out and thinking that it sounded very serious and that I could die any moment though I wanted to enjoy life a bit before the surgery and thinking to postpone it until next year. I hate to go to hospitals. I afraid of needles and everything that's surrounding it. Unfortunately, god has played a joke on me. Anyway, with encouragements from my family, I finally contacted my cardiologist to perform the TEE procedure. It's a procedure where they get to see a clear image of all the position of the valves and the size of the hole. Prior to that, I have done an echo. I was told that the size was 1.6cm. It sounded very scary since I am a petite person and my heart is very smaller. Anyway, two days before the TEE procedure, I found out that I was 5 weeks pregnant. I am so surprised that out of those doctor appointments, I've never been asked if I was pregnant. Anyway, I messaged my cardiologist immediately. she said in this case, we'll have to the the surgery soon before the baby grows bigger. However, she switched to MRI instead of TEE. A few days later before my MRI appointment, she called again and told me that MRI wasn't an option either after consulting with the high risk OB. I started to get a little bit of frustration and wondered if she knew her stuff??? I went to see my OB and my OB suggested that it was somewhat risky and that I should considered my health first since the pregnant was not planned. Although I had not thought about having babies at this time, since it happened, I really wanted to keep it. But with all the frustration (the ASD and pregnant), I felt very sick. I couldn't sleep and throw up everyday. I really affected my work and I felt like I was a dead person. I consulted with my cardiologist, she said it should be fine to wait after giving birth for the ASD closure because I was totally health. With medicine along the pregnant, there should be any problems. My husband was extremely worried about my mental health. He knew that I could not swallow pills, etc. He suggested me to terminate the pregnancy. I felt confused. The first time when I met with her, she told me that it couldn't be waited or now she said differently. My boss suggested me to ask for second opinion since my cardiologist told me different things every time when I met with her, so I asked to schedule a consultation with her and the high risk doctor. However, when my husband and I arrived to the appointment, it was only my cardiologist was there. She said the same old thing that I am very very healthy and that 2cm of a hole is absolutely not a problem. I just need to take pills through out the pregnancy and might need to go to the hospital for IVs or bed rest. I almost fainted. When I asked her statistics about the number of ASD patients with successful labor, she said she didn't know and I was her first patient with this issue. Her last word was to have me keep the baby. And was told that I could meet with the high risk OB after 12 weeks of pregnancy. I was once again very frustrated since I could not find out any new information and not able to discuss with the high risk OB. At the same time, we felt like she just want me to be a tester, to be her first pregnant patient with ASD. She mentioned that the hold is small, so most likely, a procedure is all it is needed. I know it will be more complicated to terminate the baby after 12 weeks. My husband and family members were extremely worried and of course, we lost confidence in her, but couldn't do anything. I didn't want to change doctor since she was just my cardiologist and not the surgeon perform my procedure or surgery.

I finally recovered from the pregnancy termination. Trust it, it was very sad. I wish I have found this site and knowing that a lot of people with large ASD are able to go through labor successful. I could have kept my baby!!

I went for the TEE procedure two days ago. Gosh, I almost died from the TEE procedure. However, the most depressing thing is that I was told that the hole is 2.8cm. I remembered I was told that the hold will not grow. How could it increased from 1.6cm to 2.8cm in less than two months. She said the two valves might not be long enough for the procedure (tube going through the tight) and the open heart might be the only option. She will have to have further discussion with other cardiologist. When I asked why was it better than it was shown on the echo, she said there were much difference. Oh my god, 1.6 versus 2.8cm..it is more than 1cm difference. Once again, I was very frustrated. I feel that the worst thing is that you have no confidence in your doctor. Why am I so unlucky??? Anyway, I am just waiting for result. I know for sure that I will have to do the open heart surgery. I heard that there are two types, does anyone out there know what are the choices and which one is better? If a surgery is a must, I'd rather have it sooner than later. The waiting period isn't fun at all. Though it's scary, there is no other option. I can now only persuade myself that I am very lucky because I am giving a second chance to life if I choose to do the surgery. I will sure enjoy my life and spend more time with family after the surgery. Also, is it normal to have chest pain and shoulder pain all the time?

Many thanks,
Kate

 
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