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Old 10-22-2011, 02:46 PM   #1
Join Date: Oct 2011
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lvn jen HB User
Norpace for neurogenic heart syndrome

Hello to anyone with neurogenic heart syndrome/disease. I'm on norpace only two weeks now and have been on a long journey to get a diagnosis for my agonizing last year and a half of periodic bradycardia and hypotension with fatigue, syncope, head pain and so on!!! Would love to hear from anyone with similar experience!!!

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Old 10-23-2011, 08:38 AM   #2
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Re: Norpace for neurogenic heart syndrome

I've had fainting and arrhythmia's since age 9 but largely ignored until I was 42. Everything under the sun was blamed for my episodes like wanting attention, stress, anxiety, not sleeping, not eating, etc etc.

I had a tilt table test that showed profound bradycardia, and my heart stops when I faint so I had to have a pacemaker implanted with an ICD (defribrillator) for malignant arrhythmia's (polymorhphic ventricular tachycardia). I was dx with NCS, OI; hypotenstion, profound bradycardia and malignant arrhythmia's.

Even with a pm/icd, meds and lifestyle changes; I still faint and have problems. In june I fainted and hit my head on the side of the tiled tub suffering a concussion, contusion and sprained neck; when I had my ICD interrogated I found out I had 3 VTach episodes.

It's been a long 35+ year journey for me and I still don't have alot of answers or help because dr's don't understand autonomic disorders very well. Some dr's say it's due to the arrhythmia's and fainting yet others say it's due to the autonomic nervous system and even my HOCM (hypertrophic obstructive Cardiomyopathy).

good luck on norpace and finding what works for you

Last edited by mod85; 10-23-2011 at 09:16 AM.

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