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Farrah10 09-26-2012 12:51 AM

Please please help
 
I need big time help determine whether my condition is heart related.

Symptoms:
Constant shortness of breath
Heart palps-feel heart in throat
Rapid heart rate at times about 110
Adrenaline surges
Upper limb weakness
Pressure surges up back of neck and head

Unable to sleep most night bc symptoms if I fall asleep my body often wakes me up as if I can't breath and I feel like I'm having a heart attack. Chest tightens, can't breath etc. its terrifying! I will often jump out of bed when this happens and focus hard on getting my heart to calm down and calm my breathing. I suffered from this back in June till about mid july with it gradually going away but it started back up about a 2 weeks ago.

I find my self up literally all night bc I feel so awful. I've been to 3 cardiologist who all say its not my heart. Lung specialist sat its not my lungs. Thyroid is perfect. I've had 2 cts of chest with contrast which were normal. I just don't understand why no one cam figure this out. It's ruining my life causing me depression and anxiety.

ladybud 09-26-2012 01:16 AM

Re: Please please help
 
These symptoms could all be related to hyperthyroidism. I wonder what tests were done when you say your thyroid is perfect. If all they did was a TSH, that is not enough. You can have T3 toxicosis (high levels) with a normal TSH. I would look back at your lab records and see what was done. The other thing I would ask for is an ANA test for lupus. Many lupus patients have tachycardia and shortness of breath as inital symptoms. The upper limb weakness can occur both in hyperthyroidism and lupus. These symptoms can also be from anxiety, but I always like to rule out physiologic causes before thinking that direction, unless you can clearly see these happen when you are anxious about something. Hyperthyroidism usually causes sweating, thirst and weight loss, sometimes diarrhea. I remember your threads from before. I hope you get some answers soon.

sjb 09-26-2012 09:00 AM

Re: Please please help
 
Greetings Farah10! You have my sympathies. I would also see if I could get a professional to investigate the kidneys since there are adrenaline surges and perhaps pituitary hormones. Of course everyone makes their own health care decisions in life and is in charge of their own health care. I would make some lifestyle health changes and avoid sugar at least since sugar can cause anxiety. Peace, sjb

Farrah10 09-26-2012 01:34 PM

Re: Please please help
 
Thank you both for your responses. It truly helps! I had a full thyroid panel done. Tsh, t3 and t4 as well as thyroid antibodies. They did not check reverse T3 tho. I've also had my ANA checked to rule out autoimmune conditions. It's frustrating bc I feel like its heart related but my doctors do not.

I like the idea of checking my pituitary gland as that has not been an avenue I e checked yet. Do you know the best way to check that??

ladybud 09-26-2012 01:42 PM

Re: Please please help
 
Pituitary hormones can be checked in the blood, but I'm not sure how those would relate to your symptoms. Do keep in mind that caffeine really stimulates some people's hearts, and cutting out all caffeine may be worth a try to see if it helps. Adrenal glands can produce too much adrenaline which can cause symptoms similar to yours. An endo would be the one to consult for that, but it is a rare finding. I would certainly eliminate the caffeine for 3-4 days and see what difference that makes.

Farrah10 09-26-2012 03:16 PM

Re: Please please help
 
[QUOTE=ladybud;5062441]Pituitary hormones can be checked in the blood, but I'm not sure how those would relate to your symptoms. Do keep in mind that caffeine really stimulates some people's hearts, and cutting out all caffeine may be worth a try to see if it helps. Adrenal glands can produce too much adrenaline which can cause symptoms similar to yours. An endo would be the one to consult for that, but it is a rare finding. I would certainly eliminate the caffeine for 3-4 days and see what difference that makes.[/QUOTE]

I have been off caffeine for 3 weeks. I have mild adrenal fatigue which my doctor doesn't think my adrenals are bad enough to be causing thsese issues.
I really don't even know where to go to figure this out. I have know Idea what to check next and wither do the doctors. I did do some neurotransmitter testing to see If that could be causing anything and get those results tomorrow but If that looks good I have no idea what I'm going to do next :(

Farrah10 09-26-2012 04:06 PM

Re: Please please help
 
Thank you both for your responses. It truly helps! I had a full thyroid panel done. Tsh, t3 and t4 as well as thyroid antibodies. They did not check reverse T3 tho. I've also had my ANA checked to rule out autoimmune conditions. It's frustrating bc I feel like its heart related but my doctors do not.

I like the idea of checking my pituitary gland as that has not been an avenue I e checked yet. Do you know the best way to check that??

sjb 09-27-2012 06:57 AM

Re: Please please help
 
Greetings Farah10! An endocrinologist may be able to check both pituitary and adrenal glands for these things with a blood test. Peace, sjb

JackBlack2012 09-27-2012 01:17 PM

Re: Please please help
 
What tests did the cardiologists have you do? While you were seen by them and took the tests, did you currently have symptoms? Or, did you feel normal while taking the tests?

Are you on any anxiety medication?

Farrah10 09-27-2012 10:46 PM

Re: Please please help
 
[QUOTE=JackBlack2012;5063045]What tests did the cardiologists have you do? While you were seen by them and took the tests, did you currently have symptoms? Or, did you feel normal while taking the tests?

Are you on any anxiety medication?[/QUOTE]

I had 3 echograms and echo stress test which I was having symptoms during, 24hour monitor that I wore twice, blood work, chest X-ray, everything he said looked normal. I was also having symptoms during holter. I've tried Xanax but it did nothing but make me sleepy which I can do bc in barely sleeping as it is.
I need to figure this out :(

ladybud 09-27-2012 11:33 PM

Re: Please please help
 
Farrah, I would ask to have a urine test for catecholamines. That is to test for excess adrenaline coming from your adrenal glands, the rare thing I mentioned before. Sometimes when symptoms are bothersome and no cause can be found, it is worth it to treat your symptoms so you feel better. Do you know how your BP runs? If it isn't low, a beta blocker may be helpful to slow your heart rate. Also, if position changes, like from sitting to standing trigger your symptoms, you may have orthostatic hypotension. It is important to check your pulse and BP lying, sitting and standing to check for that. You can ask at your Dr's office for them to check postural Vital signs. Some people have an exaggerated response to position change, and their BP drops and pulse rises when they are upright. It is called POTS, Postural Orthostatic Tachycardia Syndrome. It can be treated if it turns out to be that. I hope you find some answers soon.

Machaon 09-28-2012 05:08 AM

Re: Please please help
 
[QUOTE=Farrah10;5062090] ... Symptoms:
Constant shortness of breath
Heart palps-feel heart in throat
Rapid heart rate at times about 110
Adrenaline surges
Upper limb weakness
Pressure surges up back of neck and head[/QUOTE]

Farrah, you could have mild asthma. Have you ever tried a daily Asthma med, like Flovent? If not, you might ask your doctor to consider a trial period on Flovent, for a month or two, to see if it could help you.

Have you ever been on heart meds, to slow your heart, like ace inhibitors or beta blockers or calcium channel blockers, or digoxin? If your blood pressure is at healthy levels, digoxin might be a good choice because it slows the heart rate while not lowering the blood pressure.

[QUOTE]Adrenaline surges[/QUOTE]

What happens to you during an adrenaline surge?

On a side note: Do you have any furniture or rubber products or throw rugs or wood products, in your home, that have a strong odor?

Farrah10 09-28-2012 09:36 AM

Re: Please please help
 
[QUOTE=ladybud;5063342]Farrah, I would ask to have a urine test for catecholamines. That is to test for excess adrenaline coming from your adrenal glands, the rare thing I mentioned before. Sometimes when symptoms are bothersome and no cause can be found, it is worth it to treat your symptoms so you feel better. Do you know how your BP runs? If it isn't low, a beta blocker may be helpful to slow your heart rate. Also, if position changes, like from sitting to standing trigger your symptoms, you may have orthostatic hypotension. It is important to check your pulse and BP lying, sitting and standing to check for that. You can ask at your Dr's office for them to check postural Vital signs. Some people have an exaggerated response to position change, and their BP drops and pulse rises when they are upright. It is called POTS, Postural Orthostatic Tachycardia Syndrome. It can be treated if it turns out to be that. I hope you find some answers soon.[/QUOTE]
Yes just had those checked and they were in good ranges. I'll definitely look into pots!

Farrah10 09-28-2012 09:40 AM

Re: Please please help
 
[QUOTE=Machaon;5063403]Farrah, you could have mild asthma. Have you ever tried a daily Asthma med, like Flovent? If not, you might ask your doctor to consider a trial period on Flovent, for a month or two, to see if it could help you.

Have you ever been on heart meds, to slow your heart, like ace inhibitors or beta blockers or calcium channel blockers, or digoxin? If your blood pressure is at healthy levels, digoxin might be a good choice because it slows the heart rate while not lowering the blood pressure.



What happens to you during an adrenaline surge?

On a side note: Do you have any furniture or rubber products or throw rugs or wood products, in your home, that have a strong odor?[/QUOTE]

Yes I've been the asthma route. Tried inhalers when I first at these symptoms in June but they did not help. We do have newer wood furniture but when this started the first time I was In Japan where there was no strong ordered furniture. Oh and my blood pressure has been great.


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