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Old 10-01-2012, 11:32 AM   #1
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Mitral valve disorders

Hi everyone! Just got my echo and holter results back. Echo showed that my mitral valve leaflets are thickened with calcifications which is causing a moderate amount of regurgitation. Left atrium is dilated. I was diagnosed with MVP when I was 5, I am now 32. Holter monitor showed heart rate varies dramatically, called it sinus arrhythmia.
My resting heart rate is around 100, this morning it was 120, I am always out of breath. Have had high blood pressure since I was 20. Can't find a good medicine that works and keeps working.
Anyone else with a similar experience?

Next step is a stress-echo...

 
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Old 10-01-2012, 02:13 PM   #2
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Re: Mitral valve disorders

Hi lovinghorses! Sorry to hear about your dilated atrium and your constant breathing problems.

I am in a similar boat as you. I have problems with all four of my heart valves. Both my left and right atria are severely dilated. I've got permanent atrial fibrillation. I suffered from chronic, difficult to treat high blood pressure for many years, until I finally got it under control and down to very healthy levels.

Of all of the symptoms of heart failure, I hate the breathing problems the most. I am sorry that your life is effected so much by breathing problems.

Fortunately, most of the time I no longer have to tolerate breathing problems; and after a 25+ year struggle, my health and heart failure have significantly improved. Do your breathing problems get worse at night?

I have documented how I have had to restrict my life, in order to survive. I have to admit, someone has to be very ill, like I am, to do what I have had to do to survive these nasty heart and health problems.

If you are interested in reading the major changes and restrictions that I have done, to improve my health and heart disease, please glance thru my "Heart Disorders" thread: What I have done to survive Heart Failure & AFib with a high quality of life. The link is: http://www.healthboards.com/boards/heart-disorders/742271-what-i-have-done-survive-heart-failure-afib-high-quality-life.html

Quote:
Originally Posted by lovinghorses View Post
Next step is a stress-echo...
Usually, after an echo there is a summary report that has specific, important measurements and evaluation. You might consider requesting a copy so that you can refer to it, and evaluate it yourself, at your home.
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⇒ Avoid allergic & non-allergic irritants/triggers
⇒ Low calorie ovo-vegetarian diet
⇒ Power walk, weight lifts, pushups
⇒ Coreg 25mg bid

Last edited by Machaon; 10-01-2012 at 02:14 PM.

 
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Old 10-17-2012, 01:55 PM   #3
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Re: Mitral valve disorders

Thanks so much for your reply Machaon! I will be sure to read your post right now. I went and picked up a copy of my echo report about an hour ago. I had my stress test done last week and it was ok so I am cleared to exercise again. But I am quite worried, it only took about 4 mins on the treadmill and my heart rate was over 200.
My report states I also have mild regurgitation of the tricuspid valve also. This is the first time I have heard this mentioned. But it did say no mitral stenosis which is a relief. I guess the calcifications might be from when I had scarlet fever when I was younger. They aren't really sure. The calicifications are on my leaflets which I have read are rare usually they are on the ring.
So, now I guess it is sit and wait until something else happens!

 
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Old 03-15-2013, 07:37 AM   #4
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Re: Mitral valve disorders

Quote:
Originally Posted by lovinghorses View Post
But I am quite worried, it only took about 4 mins on the treadmill and my heart rate was over 200.
Hi lovinghorses? I was wondering how you were doing.

Have your doctors been able to improve your heart rate problems?

Quote:
My report states I also have mild regurgitation of the tricuspid valve also. ... I am always out of breath. ... So, now I guess it is sit and wait until something else happens!
What medications have your doctors tried on you? Have you experienced any improvements in your breathing problems?
__________________
CHF, A-Fib, HBP, Diabetes, Asthma doing great

⇒ Avoid allergic & non-allergic irritants/triggers
⇒ Low calorie ovo-vegetarian diet
⇒ Power walk, weight lifts, pushups
⇒ Coreg 25mg bid

Last edited by Machaon; 03-15-2013 at 07:38 AM.

 
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