Originally Posted by pedgies
Got call from Doctor today. He told me I have nonspecific hepititis. What is that? Does anyone know?
He said all blood test for A, B, and C came back negative. Since my liver enzymes are still rising and I still have a fever he is finally going to send me to a gastro.
I will be so glad to know something even if it is bad then I will know how to fight.
It doesn't sound like your doctor knows, either. I don't know whether this is a real diagnosis or whether it is a discriptive term your doctor is using. Basically, it means that your liver is unhappy but no cause has been identified.
If your doctor gave you only an antibody tests for those viruses, it could mean you are in an acute phase of a viral hepatitis. You would need a molecular test (PCR) that detects the virus because you may not yet have an antibody response.
About 15-20 % of those exposed to the virus spontaneously clear it from their body without any medication in the first year. By year two, nearly 45% will clear it. Beyond that, it is a virus that can be managed. Do not drink a drop of alcohol! This can increase the reproduction of the virus and lessen you odds of clearing the virus. so, if you haven't had the PCR tests for hepatitis C or B, those are likely what the specialist will do next.
You mention the most likely causes, but there are others. If you haven't been tested for autoimmune hepatitis (especially if you are female) this might be one test to consider. An AI test is commercially available.
A liver specialist (if you can get to one geographically and insurance wise) would be the best referrral. Even gastroenterologists are more generalists when it comes to the liver than the hepatologist
who specializes specifically in the liver.
I would ask for copies of your lab results and an clearer explaination from your doctor about what basis on which he has made that determination. It may be simply elevated enzymes. You wouldn't need a hepatologist necessarily for that.
Even with a virus or another identified cause, drinking alcohol, smoking and eating high fat foods can raise your liver enzymes. In case where this has been ongoing and includes obesity (but not always) and a sedentary lifestyle the cause can be fat in the liver. This is very common and can be treated through lifestyle alone very often, but it will be a lifelong commitment to better health. Since you have a fever and rising enzymes, this is less likely to be the problem. It is not usually sudden.
These are just some ideas for you to talk to your doctor about and to do some research on while you get more information.
I hope you are feeling better soon. Let us know how you are doing.