Pegetron starting april 25th - Hepatitis Message Board

peg_faith · 04-11-2003, 12:04 PM

HI there, I have been reading your posts for awhile now. Muy husband is starting treatment on the 25th of this month. We are both very nervous, and trying to stay focused and positive. I am extremely scared for him and the side affects sound horrible but I do understand that each person is differnet on how they are affected. I will be coming in here to read and learn from you guys on treatment as well. Lost1 and Diva I have been following your posts, thank you. I will be back .
Keepin the faith....

LOST1 · 04-11-2003, 01:08 PM

Peg-Faith-
Welcome to the board,the more you come here and read, it seems the less nervous you become, most think of hep C as a killer diease like the plaque,
and treatments worst than cancer kemo theropy, but as they become informed, they/we all learn thats not true.

I hope we hear more from you, which treatment is hubby signed up for?

Be POSITIVE, be well+

------------------
--Get Outdoors-Enjoy Life----Neil

DirtDiva · 04-12-2003, 10:31 AM

Hi Peg,

I understand your concerns for you husband. We definately have a kinship. I think it's just as hard on us "significant others" as it is on them.

The best thing you can do for him right now is just support him. I understand that you have concerns and worries just like him. I for the most part have tried to keep mine to myself....actually not to myself, I come here!!!!! Then I relay the advice to my husband (with a litte editing...teeeeheee!).

It's not that I want to keep anything from him, I just don't want him to overly worry when it might affect treatment. I try to underplay a lot of things we've heard. If a side comes up and we have a question then I relay ALL information that I've found. I've tried to just keep the "what if's" to a minimum. If your husband is "computer friendly" then you won't be able to keep much from him. Just try to not to focus on the bad things people say.

Yes, some people do have a very difficult time with treatment. Some people have a very diffifult time with liver problems.....then for some unknown reason, some people sail through treatment. My husband never had ANY symptoms of liver problems before our primary care doctor caught the high inflammation level(after a big bout of "drinking while boating" session, as we call it).

I do believe (just my personal opinion and insight)that if you're health is in the toilet to begin with, then you MAY have a tougher time than most on treatment. It's important to take care of yourself, before, during and after treatment. Small changes will make a difference.

Deal with the sides as they come...they may never get as bad as what you read. You're husband may turn into "Godzilla" on the loose but remember, it's only temporary. Try to remember at the bad times, how much you love him and how bad you want him to get well. Just KNOW that there will probably be some bad times but you'll get through it, both of you will. How long will he be on treatment by the way?

Just keep the faith, in yourself, your husband and the doctor and you'll do fine. Take things one day at a time or as hubby and I are saying "one shot at a time".....get out, do things, stay busy...

If there is anything I can do to help, just post!
Susan

askherjohn82 · 04-14-2003, 07:23 AM

hi peg faith and a warm welcome to the board.you have come to the right place, there is alot of knowledgeable people that are carring,and that are in the same situation.it's a "panic"situation i find for those who are starting treatment, but when you read up and learn more,you will eventually relax.prayers are with you.
keep the faith, bless you............mj