ANYONE HAVE THESE - CRYOGLOBULINEMIA OR FIBROMYALGIA ? - Hepatitis Message Board

DOCTORSLETMEDOWN · 04-19-2003, 02:36 PM

CRYOGLOBULINEMIA / FIBROMYALGIA

Do any of you have either one of these & if so can you explain your symptoms, how you were diagnosed & what you are doing for it.
Me personally my biggest complaint is just achey all overe & joint pain but still do what I want just suffer for it & through it but it's been that way so long I don't know any other way.
I had my labs done a month ago & everything was fine but ast & alt were elevated.
My wife now that she has been diagnosed thinks she has it all.
She has had headaches, stomach muscles hurt like she has been doing sit ups, achey all over & had a spell of throwing up & feeling nausiated.
All her labs were great ast & alt were normal & have never been elevated.
She has had these symptoms several years but has gotten worse in the last year.
No energy.

askherjohn82 · 04-22-2003, 08:32 AM

as for pain, well i just learned to live with it, but there are days that i feel "that's it i've had it"(from r/a)i won't take tylenol at all!(my choice), however i do take advil gel caps(for migranes)they are of great help as i only take them on those "i've had it days"!i do seldomly get the nausea, crampingetc, as your wife and i take a gravol and it really works for me. i spoke to the liv doc regarding (gravol)as well as a gp, and both said that it won't hurt me, just take one when it acts up bad.i hope this will be of some help for yourself and wife.
keep the faith, bless you................mj

LOST1 · 04-22-2003, 08:40 AM

DRSlmd-
Howdy Bud,
I had all the symtoms of cryo, which I think was worst than any of the HCV symtoms, the Cryro I found is quite common for us with HCV, but they all dissappered with the Pegasys treatment, maybe thats one of the reasons I feel so dam good.
cool huh

be positive, be well-

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--Get Outdoors-Enjoy Life----Neil