Treatment scam? infections from treatment? - Hepatitis Message Board

hcvsd · 04-20-2003, 08:12 PM

I,m in week 9 of pegintron and rebetol, I have had blood in my urine @ 3 weeks was on 2 seperate antibiotics for 2 weeks and that cleared up. Now in week 9 I have an infection in my mouth, along with re-occuring canker sores. so now I'm again on antibiotics this is the third time. I have the basic sides fever, anmeia, and weight loss, but these infections are a bit#$. I have two friends that gone through the treatment and a year later they have tested positive again, Im starting to think this is just a phamacidical scam! People test negative then 6-12 months later there positive. My goal if anything is just to slow it down since i'm Genotype 1a, but i'm tired of misleading information, my DR doesn't want to do a viral load at three months because the insurance may stop treatment if Im not responding, Im approved for 6 months but why stay on if I'm not responding at 3, so the drug company makes $12,000 more for nothing?

Wes1212 · 04-20-2003, 11:19 PM

hi. i had a problem with infection in my mouth that wasn't taken very seriously until i called a nurse at the "be in charge program" my blood counts were very low and the nurses on the phone told me not to worry about what anyone thought but to go wherever i had to to get help. <snip>

the hospitals and doctors are there for you to not have to suffer!! THEY CHOSE THEIR JOBS, LET THEM DO IT!

[This message has been edited by Wes1212 (edited 05-04-2003).]

DirtDiva · 04-21-2003, 10:17 AM

Hi,

Those sores are painful. When my Mom was on chemo she had those everywhere but her mouth was the worst. Unfortunately when treatment attacks...it ATTACKS EVERYTHING even the "good" germs we need in order to keep our mouth "clean" when those "good germs" are attacked it leads the way for mouth sores.

Sounds like you're under a doctor's care so they've obviously done SOME blood work. Perhaps they didn't take into consideration the red AND white blood cell count. Have that checked also as there are drugs you can take for it. There is also some topical things you can put on it while eating.

Sorry to hear about your 2 friends. I'm hearing half and half...some people are reoccuring and some people have been completely free for years. You just do what right is for you. I would never try to talk someone into doing treatment, not doing treatment, quitting treatment or continuing treatment. For my husband, he decided he would try it the 6 months (Geno2), give it his ALL and then if it goes away--great, if it doesn't-----well, at least he tried.
Take Care,
DD

askherjohn82 · 04-22-2003, 07:51 AM

very well put Wes1212 !
keep the faith, bless you.................mj

hcvsd · 04-26-2003, 07:31 PM

Thanks for the info. when I started treatment I thought I would get lucky with minor side because I worked out 3 times a week and jogged and Im only 31 also. But it has been a bad experience with complications, as for the work out thing, I tried a few times and kept getting to dizzy and felt faint, (AND COULD ONLY JOG 2 MINUTES) but thats a side I have if I get up to fast. The nurse said just hold on to something. I hate treatment I'm jeaoulus of you people that have less sides effecs. I hope I last but dont think I would go no more than 6 months. because of 1a type If positive at 6 months my chances of it working on 48 weeks are slim to none! I dont know why people with 1a would stay on if still positive at 6 months? Why are some people on longer than others people say I guess geno type.