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Old 04-26-2003, 09:08 AM   #1
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anteek HB User
Question New Here and a question no one seems to answer for me.

Hi Everyone

I was diagnosed with Hep C when I gave blood in the wake of 9-11. I contracted the virus through a needlestick while working in a hospital. I have genotype 1a with autoimmune antibodies. The good news, my biopsy was given a grade of 1/4 and showed that the high autoimmune antibody count is not liver disease but related to a possible other autoimmune disease (lots of rheumatoid arthritis, MS and Lupus in my family).

My question - to treat or not to treat? My Doc says treating is a good route but risks activating my autoimmune disease. Anyone else out there in this boat with me? Does anyone know of any good studies that could help me decide?

I'm babbling. Any help would be much appreciated.

 
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Old 04-26-2003, 11:39 AM   #2
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hi anteek, a a very warm welcome to the board.myself i have had this since/82, but found out in/99. i have never done treatment, but eating nutritious foods, drinking lots of water,etc.has helped. to treat or not to treat was also offered to me in /99.i felt that i needed to learn more.you have come to the right site here, as there is alot of valuable info here, keep on reading the board, never feel uncomfortable by asking "anykind of questions here" folks are very carring and will share there info.best to you.
keep the faith, bless you...........mj

 
Old 04-26-2003, 12:34 PM   #3
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Maybe you should ask your doctor about Zadaxin. It is a drug that helps to super-boost the T-cell production and may be beneficial.

 
Old 04-26-2003, 01:05 PM   #4
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First of all, welcome to this board.
Always good to have a new face around the place.

You ask about treatment and autoimmune. Interferon treatment is contraindicated (as in: do not prescribe for this patient)for those with the autoimmune disease you have mentioned. The balance of probability is against a good result without activating (prematurely) the diseases you have listed. Your doctor has done his homework there.

This is of particular significance to you who is newly infected. You have to be careful about your self-care (no smoking, abstain from all alcohol and make sure you stay as thin and active as you possibly can)

Treatments, other than interferon, are still in the experimental stage although the marketing efforts have clearly begun.

There is no reason for you to try to access an experimental drug since you have no liver disease and no symptoms. I recommend waiting until we have a real cure that is both safe and effective. So far, we don't have that.

In my opinion, person newly diagnosed should not take any unecessary risks with treatment, approved or unapproved.

Hepatitis C moves slowly, when it progresses at all. Most people newly infected can wait and weigh future options, if necessary, while maintaining optimal health. This is not so with other disease, like some of those you have listed.

Someone once said that a lie can travel around the world before the truth has its socks on. That is true with a lot of the information (read: marketing) that you hear about the treatments on the internet.

Again, the autoimmune issues make treatmnt risky. In any case, recommendations for treatment make this decision somewhat premature for you anyway. I hope you and your doctor will investigate the autoimmune issues more thoroughly. Potentially, this can be much more serious than hepatitis C.

I hope this helps,

thanbey



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[url="http://www.hcop.org"]www.hcop.org[/url]
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Old 04-26-2003, 08:09 PM   #5
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Thank you all for your warm welcome and great information. It's wonderful to feel less alone and in such great company.

Thanks again!

 
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