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Old 06-29-2003, 04:17 PM   #1
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hamboney69 HB User
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hello to everyone on this board just wanted to let you all know i have been diagnosed with hep c and have probably had it for about 20 years my ex wife has it im waiting on a referral form my family doc to go to the gastrointestinal specialist and talk to him. my doc says he is pretty sure i will be having treatments but i have to have the biopsy first im gonna do what ever they want to try to over come this its scary to think about but after reading alot of your posts i think i can take it. At least i hope i can i have 4 kids and have to be here to support them the best i can while im on this earth so ill do what is needed, no matter how it makes me feel.ive allways partied and drank thats going to be hard to get used to doing without. never much during the week just on the weekends WISH ME LUCK! you all are very inspiring

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Old 06-29-2003, 05:48 PM   #2
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Hi Hamboney69,

I'm another newbie to this site and to the HCV diagnosis, and like you, I've probably had it for 20+ years unknowingly. Sounds like we are in a very similar boat, but my ex was lucky and escaped it.

Let us know the results of your tests so we can compare notes and go through this thing together to some extent. It's a lot to learn, and if you look at one of my other postings about some of the sites I found recently (see the 24-hour response posting), the info there might be useful to you too. The webcast I found from UC Davis for primary doctors was in pretty simple laymans terms and explained a lot.

Good luck with your tests. Don't be too worried if they call for a biopsy - they really put the fear in me beforehand (and I know we need to be prepared), but it REALLY wasn't as bad as all that. Not much discomfort at all for me anyway and it healed quickly.

Anyway, both glad and sorry we are all here going through this. As you may have seen, I am having problems giving up my partying lifestyle but it's getting easier everyday, and maybe it was a good thing to do anyway! My friends really like the fact that I am always available as designated driver!

The only problem is every time I think, ok, well I can do "x" (like drink NA beer instead of alcohol, or coffee instead of NA beer, or smoke pot instead of drinking anything)someone shoots it down and points to my liver as being the poor recipient of all bad things that I consider enjoyable)! Won't they give us a break?!! Now, if they tell me sex is bad for my liver, I am really going to take exception!!

Good luck and hang in there. We'll get through this!

Robyn

 
Old 06-30-2003, 02:30 AM   #3
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hi hamboney69
and a warm welcome to the board, glad you came to this site, you won't be dissapointed!folk's here are great.myself i've had this 20+years, i just went to see my liv-doc if you scroll down to "update"topic starter"askherjohn82", you may find it of some interest.i had my liv biopsy a few years ago.it seems that you have a "postive outlook" on this and that will be of great help as we need to stay strong.prayers are sent your way as you begin your journey
keep the faith, bless you.........mj

 
Old 06-30-2003, 10:20 AM   #4
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Welcome Hambone and Robyn!

As you can see you are not alone in this disease. What's so funny is that a lot of us are so much a like! I used to drink like a fish then switched to N/A beer and that got kicked to the curb too!

Well, gotta ask what genotype you are, viral load and then liver stage after biopsy?

Keep us posted on ya'lls condition and march to the beat of your own drummer.

JeannieRee
(had this 17+ years/geno 2b, stage 1 fibro/11 weeks into treatment pegasys/copegus. Feelin' groovey.)


 
Old 06-30-2003, 07:26 PM   #5
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Hi Jemah,

I think I've had this 20+ years, actually had high liver enzymes noted in the early 90's also (blood donation) but it was before good tests, and doc said not to worry, it's probably nothing! Oh well, 10 more years of carefree times resulted.

Anyway, I have to write it all down when I visit the liv doc for follow up cause they throw all the numbers at you and they make no sense at the time(except when they say, this is good... yada yada!). I don't recall the viral load etc. but LFT is good.

What I do remember is Geno 1a, Stage 1 fibro and low inflammation (1 of 4 also maybe?). Anyway, they said it was all pretty good considering I've had it a long time and certainly drank more than my fair share on occasion. I will get all the exact stats and start keeping track now that I am getting more familiar.

Looking forward to sharing more with you later! Glad to hear your tx is going good!

Am off for vacation and work in sunny CA for 2 weeks. Darn those microbreweries!! Happy 4th of July all!

Robyn

[This message has been edited by Robyn_Fla (edited 06-30-2003).]

 
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