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Old 07-03-2003, 03:54 AM   #1
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askherjohn82 HB Useraskherjohn82 HB Useraskherjohn82 HB Useraskherjohn82 HB User
Smile hi everyone

well, i am feeling sooo much better.since my last "update".i'm feeling undecided right now (to do treatment), on one hand i've followed "the treatment", even made a decision to treat(after 4 years),then the liv-doc say's he doesn't feel that i need to yet.still on the other hand, i feel ready to "do the treatment", but knowing that the liv-doc is concerened regarding"anti-deppresents", that alone causes me concern.i just feel mixed up regarding the whole thing!any replies would be much appreciated.
keep the faith, bless you.............mj

 
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Old 07-03-2003, 09:05 AM   #2
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Cool


MJ-
Well Howdy girl,
I think you should not be pressured into treatment if your doc feels you are not ready or that there may be a problem, Just because maybe many of us others decided treatment was right for us and the majority of us are doing great.

I asked about the antidepressants also,pre-treatment, my specialist said the protocol for pegasys in Canada was NOT to prescribe anti-D's unless you need them even though it may take a month for them to kick in and start working, this scares some people.

I am, for one, am very happy I did not, I have absolutly no reason to take any anti-d;s, although some may need them, but they are another drug you will have to go though withdrawal at treatment end, to list some of the problems with anti-D's, some cannot drive or fuction on these drugs, which compounds problems because they just lay around and veg-a-tate.

My experiance on treatment,and not to take anti-Ds, has influanced several people not to take anti-Ds, even though their Docs thought it was part of the treatment protocol, and are also very happy they did not take any, unfoutunatly in the US, drug companies have made it look manatory for treatment protocol.

It is a personal decision, do not let myself, or any medical professional that thinks its protocol, make a dramatic decision like that for you, if you are normaly very depressed, or lose your temper, treatment MAY compound and dramatically increase these symtoms.

Treatment is not for everyone, it is your decision, along with your Docs, because you may not need treatment yet,

regardless I wish you well, treatment or not, MJ, how is everything else?

Someday we will make this right,
One day we will win this fight.
Do not let treatment control you,
Control your treatment.
Be positive, to achieve a negative, be well all.



------------------
--Get Outdoors-Enjoy Life----Neil

 
Old 07-04-2003, 06:27 AM   #3
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Smile

hi neil
thank's so much for shedding light on this for me i appreciate your response.i am medicated for hyperness, and have been for many years.anti-dep causes the panic attack's on me.i am happy to say i'm feeling fine now!my hubby is layed off now until sept.we are going to niagra falls this weekend(leaving tommorow,will be back sun. night), i really do feel that i need to get away.my sleeping has been great since i've started to recouperate from the pnemonia.and i haven't needed any (night med. to help me sleep), guess i was just plain exhausted!i try not to take night meds, i'll go like 3or4 nights without one then ,if i don't take one i'm up all night.it's something that i am going to deal with at my own pace as i feel the less meds, the better.i've found a place (within the area we bought our condo)for swimming, and that really helps my back and exersize for me is much easier i find in the water!(ducky)D).thank's again for responding.
keep the faith, bless you...........mj

 
Old 07-04-2003, 08:20 PM   #4
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MJ

I am somewhat of a hyper person myself, as a matter of fact, prior to knowing about having the virus, many friends and coworkers accepted my hyperness as part of my nature. I believe it is actually anxiety caused by a chemical imbalance perhaps exacerbated by the virus somehow. I always lived with it and avoided using drugs because of their side effects.

I found that during Rebotron treatment my anxiety became very high, which then lead to depression due to negative reactions my hyperness caused in other people (yeah, even people who care for me). Half way through treatment I started taking xanax, which we previously discussed (I think). I find xanax (alprazolam) or valium (diazepam) helped to calm me down. I don't find them addictive, and need only a partial (half) dose on occassion, so maybe I am not as hyper as others might be.

So I figured, for myself, that I wanted to reduce the anxiety over having the virus by getting rid of it, and also that if I cleared it, that I might permanently reduce the chemical imbalance that was making me hyper.

I now seem to be a much calmer person, and only rarely do I resort to anti-anxiety pills. Yeah, treatment caused my anxiety to increase a whole bunch, it is one of the more common side effects. Depression is not an issue for me, I have dealt with suicidal thoughts in the past, life is too priceless to throw out, I want to live and to live life to its fullest.

There is no guarantee that treatment will cure you, and the increased anxiety that may occur could cause you to quit treatment. My approach was to try and if I could not tolerate the treatment then to quit.

I know others who were not anxious persons and became so intolerable on Rebotron that they had to quit, they were driving everyone else in their life crazy.

Maybe it is because I am already anxious that I knew how to deal with it, with relaxation techniques, exercise and occassionally antianxiety meds as required, that I managed to go the full course of treatment. Still caused some strife amongst friends, but, hey, what are friends for? ;-)

Another consideration is that Pegasys and Peg-Intron side effects are much less pronounced than those of Rebotron. Rebotron was a 3x/week injection of IFN which peaked with marked flu and other side effects and the dosage of ribavirin may be higher as well, depending on your genotype, body weight, etc. So the concerns are possibly much less when considering Pegasys treatment, although the warnings and advice are the same as for Rebotron.

If you are concerned about treatment making you more anxious and you cannot tolerate increased anxiety then it is worth considering avoiding treatment. My approach was to fight what I think is contributing to my anxiety, and this conviction is what I live by.

It is not a fun situation, no matter the prospect, but it all depends on your attitude. At least you have a choice today, and the choice has been made better with the improved treatments, fewer/lesser side effects, and better response rates.

Your choice to get out swimming regularly and to keep active are very good. I have learned that exercise is excellent for hyperness and anxiety. And it is important to keep up the activity during treatment. Neil and others on this board are very good examples.

Hope this helps you.

Diana

 
Old 07-05-2003, 04:04 AM   #5
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hi diana
thank's for your reply.i do know where the anxiety stems from.and have dealt with that issue many years ago.compared to "now"i have it undercontrol, providing i take my med.on time.i was on zanax also, but it wasn't helping,however one time i was given "paxil", that night i had a panic attack.i found out that i had hep in/99,and after alot of phone calls etc, i finally recieved my medical reports dating back to /73.i have been transfused 4 times (last one being in 91), but it was the transfusion i was given in /82 is how i got it.once again thank's for your reply.
keep the faith,bless you........mj

 
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