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Old 10-09-2003, 01:54 PM   #1
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melanie27 HB User
Unhappy Is my Husband going to die from HCV??

My hubby has had HCV for 18 years he got it from a blood transfusion .5 years ago they offered him interferon but we declined because we couldnt afford him to get sick we wanted to buy a house first.He was at a stage 2 then we went back into the dr finally after numerous new symptoms springing up bronchial asthma, Hypoglycemia, mUCSEL SPASMS, SORES all over his body & dermititis on his scalp, bloody stools,& pain in the area of his liver the liver dr looked over his symptoms relized he was also BIPOLAR & Tore up the treatment sheet & said he was not a candadate for treatment now it was to late & with him bipolar it would be too risky.We left devestated so what now they did an scope down his throat a few weeks ago & took a biopsi of his stomache they said the lining was changing we go tommorrow to find out whats next ..Is there any hope without the treatment? I no once he's at a stage 4 he can get on a transplant list but a lady in our church did it & she's still sick..HCV is in your blood..Im so at a loss Hubby is so discouraged & thinks he going to die now ..any advice info please help...

 
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Old 10-09-2003, 05:03 PM   #2
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thanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB User
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It has been a while since we have had a post like yours, Melanie.

First of all, most people with hepatitis c die of something OTHER THAN the hepatitis C. That is a fact.

Second, when the diagnosis is made at a stage 2 biopsy result, there are a lot of choices a person can make to prevent liver disease from progressing. None of these seemed to have been discussed with you and I'm sorry they weren't. Having good lifestyle choices in combination with regular monitoring by a knowledgeable provider is invaluable.

Third, unless the doctor did a biopsy of the liver, he cannot say whether the symptoms your husband is experiencing are due to worsening liver disease. Unless hubby is a very heavy alcohol drinker or a heavy smoker, or obese it is very unlikely that he has suffered worsening disease. Even if he has progressed, there is still the high probability that he can intervene and limit whatever damage may have been done. Have you gotten copies of your husband's lab reports?

Maintaining a normal weight, no alcohol, no smoking (or second hand smoke!) good nutrition, managing his stress and energy levels through regular and moderate exercise will probably put him on course once the cause of the current problems have been identified. It may even resolve the problems themselves, but I have no way to know that for sure. I am not a doctor and do not play one on the internet.

So,try not to panic. As you read through the posts here, you will find many people who thought they would die of hepatitis c when they first came here.

At stage 4 liver disease (surprise!) he would not be sick enough for a transplant. Stage 4 is only the beginning of cirrhosis (liver scarring) and there are several stages of cirrhosis before end stage liver disease occurs, if ever it occurs. Hepatitis C progresses slowly, when it progresses at all.

Interferon therapy is not a guaranteed treatment. It can make things worse, rather than better. In your husband's case, being bi-polar, much worse.

Still with me? You have lots of reading to do and there are a number of people here to support and offer their own experiences of survival, management and coping. Go through the threads of messages on this page and then find many more pages in the archives.
You'll see what I mean.

Not being a candadate for the interferon is NOT a death sentence by a long way!

Hang in there with us. We have all been where you are right now and things do take on perspective as you gain information, support and start to make lifestyle choices that support good health and happy living.

Some people have even considered the diagnosis a blessing. Maybe, in time, you'll be one of them.

Last edited by Administrator; 03-17-2010 at 06:47 AM.

 
Old 10-09-2003, 08:30 PM   #3
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Some people have even considered the diagnosis a blessing. Maybe, in time, you'll be one of them.

Thanbey , you hit home on the above comment.

Melanie, I was devestated, absolutely full of fear when my husband was diagnosed with hepc about 4 years ago. I really hear your fear and concern in your message and my heart goes out to you and your husband.
When reading Thanbeys post to you I am so grateful to say my husbands diagnosis is a blessing today, something I never thought I would ever say. We are a totally clean and sober family and doing a real good job raising our kids. It has been a huge change in lifestyle for us, a very positive one. We were straight when he found out and it became clear that it was going to stay that way.
I read alot and ask alot of questions and some stuff I just don't understand but Iam learning which helps to take away my fears.
I wish you much luck with your husbands results and hang in there.

Faith

 
Old 10-10-2003, 07:32 AM   #4
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Hi Melanie! I just wanted to add that one of the reasons the doctors wont let me try treatment again is due to my severe depression. I've even been hospitalized for it so they won't even consider it. I don't want to do treatment again anyways. I tried treatment back in '99 and only lasted 8 weeks. I had to quit because of the severe side effect I had one of which is that it made my depression even worse. So current treatment isn't an option for me and I have decided to just live with the disease even though I now have cirrhosis. Take care!

Terry

 
Old 10-10-2003, 09:55 AM   #5
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Thank you all so much youve all been a huge blessing with your posts!

DH stopped drinking & useing drugs several years ago about 8 yrs now.We go to the Liver DR today to find out how his stomache Biopsy went. Hopfully we will find out what Genotype he is soon.When the Liver DR told us he was stage 2 he told us without treatment it would progress rapidly Im now wondering what does the dr know that he hasnt told us..He's one of the top of the line Liver Dr's out here.DH's ALT #'S WERE 155 & AST was 188 theyve checked them several X's now & there always high the Liver dr said he has been ative HCV now for years its never been inactive.We will see what he does today weree thinking its on to a colonscopy & Biopsy soon.Dh's last COLONSCOPY THEY found 100 + polyps .Weve heard theres other treatments besides interferon anyone no if thats true? We did try Vitamin C mega dosing & Milk thistle & alpha lipioc acid for 6 months & he felt great for 6 months but it got to expenssive so we quit them.I just feel so horrable for DH on tope of his Bipolar acting up he's so sick he can barely function I dont want him giving up please pray the Liver DR helps us today now that Dh is on His meds for bipolar..Thank you all for your help I truley apprecieate it may GOD bless you all...

 
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