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Old 10-14-2003, 02:21 PM   #1
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DOCTORSLETMEDOWN HB UserDOCTORSLETMEDOWN HB UserDOCTORSLETMEDOWN HB UserDOCTORSLETMEDOWN HB User
Angry Went To The Gastro ? What Do You Think ?

Well I went to my gastro for my yearly check up.
I asked him if I could get the liver / spleen scan with isotopes some sort of nuclear injection that they can see the blood flow through the liver that my wife got from her gastro.
He said there was no reason to get it.
My wife's gastro said it was better than just a liver sonogram.
I asked him if I could get the fibrospect test that gives a liver score of 1,2,3 or 4.
It is suppose to be helpful in getting a good picture of your livers condition.
It's done with a simple blood test & although it's not a biopsy it gives you a pretty good idea of your livers condition.
Again he said biopsy or nothing.
My insurance company said they would pay for these tests if he asked for them & got them pre certified.
He would not even order the test if I paid for it all.
I asked about the arthritis test & told him my wife had it & it came back positive & the cryoglobulinemia test He said why do you want to know ? what difference is it going to make ? what would it change & what would you do about it?
I told him it had been 2 years since my pcr & I knew that viral load supposedly does not mean much unless you are treating but I still wanted to know if it was about the same or if it was higher.
Again he said there is no need it's a waste of money.
He said either treat or don't treat but there was no need for the tests I ask for.
So when do you want to start treatment he says? It's $28,000.00 & there is a 50/50 chance he says.
I say I am geno 1A how many have you treated & how many are SVR & for how long ? he did not answer.
Then he jumps to when are we going to do your colonoscopy ?
I asked about a new test for that that is done with a scan & he says insurance won't pay for it.
Then after arguing my points as to why I wanted what I wanted he agreed to the PCR / viral load, arthitis & cryoglobulinemia & of course all the usual lab work.
I asked about the ammonia test & again was told you don't need it.
He said by my last years lab work he figures I would be a level 1 or 2.
Then says even with a biopsy sometimes it's hard to figure out the level you are at ?
I tell him again that's why I want the fibropspect test & the liver spleen scan to have a better idea.
He wants me to believe that just my basic lab work is enough.
Last he says so when do you want to come back ? 3 months, 6 months, one year or not at all ?
So there you have it.
I am not saying he is right or wrong I just want your input.

 
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Old 10-14-2003, 03:03 PM   #2
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IMHO, I think you need to find a hepatogist. Although, he may be only be trying to limit the variety of tests if he thinks you are'nt going to treat anyway. I have posted before asking if anyone has experience with the Fibrospect test I docs are not using it, why not?

 
Old 10-14-2003, 10:46 PM   #3
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The way I look at it, the more damage we have the more careful we should be. If it isn't any worse, it can give us peace of mind. It has taken me 36 years to get to early stage 2. We are likely to make a few important life decisions when equipped with knowledge. I think I would find a new doc. With answers like those I would never know when he is completely truthful, or just don't want to take the time to work with the insurance company. Of course that is my opinion and I'm not pleased with most docs, anyway.

alice

 
Old 10-15-2003, 08:23 AM   #4
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Hi Docs,

This gastro is apparently not the nice guy type, but his information and opinions are not crazy. Most of the tests you discussed with him are indeed of limited or very uncertain value, and his desire to protect you from the added bother, risk (no procedure is 100 percent risk free, even if just the risk of error) and expense for tests he does not believe will affect your decisions or your health is a fair position. It's not your position, though, and you are the boss of your body, so he did eventually go along with you.

The cryo test is one I endorse, since it is a "side effect" of hep c that is potentially more damaging than the liver issues we all know about. So, if positive, it might affect your decision to treat.

There is no useful info from an ammonia test except in cases of established cirrhosis, at least as far as I know, and you seem far from that.

He is correct about tx cost more or less, although you have insurance so the whole amount won't be your worry. and he is about right about the 50/50, although we know its just a bit worse for 1a's. not far off, though.

So, not a sweetheart, but not a crazy guy either would be my reaction. I'd be more worried about the fact that he would not answer some of your questions than about the answers he did give. I favor docs who really will discuss stuff--there's so much to figure out. Hard to do alone.

That's my reading, anyway.

peace


sean

 
Old 10-15-2003, 07:36 PM   #5
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Hi Doctors.... I'd get a new doc. Sounds like this guy is as uncommunicative as my gastro was. After my biopsy I dumped him. I'm doing just fine with a GP who asks me what I want to do and gives general guidance. Of course, my GP is a resident, so she is more open minded and inquisitive. She apprreciates any information I can give her.

Love & Blessings, Kackles

 
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