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Old 07-10-2008, 06:58 AM   #1
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Location: Oshawa, Ontario, Canada
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starshine1ca HB User
Question Now diagnosed as "fibrosis stage 4 (Cirrhosis)" - what is my prognosis?

Quote:
Originally Posted by Trying2B View Post
HELLO EVERYONE, ALL THE POSTS I HAVE READ ARE ALL DOING WHAT THE DRS SAY TO DO. DOES ANYBODY GO OUTSIDE OF THE BOX?? WHAT DO YOU HAVE TO LOSE!! ARE YOU LOOKING FOR QUALITY LIFE OR QUANITY!! SURE THE Tx MIGHT HIDE THE VIRUS BUT YOU LIVE WITH THE SIDE EFFECTS EITHER WAY. HAS ANYBODY READ " TRIUMPH over HEPATITIS C " BY LLOYD WRIGHT, IT MIGHT GIVE YOU A DIFFERENT OUTLOOK??
Hi there,

My name is Anita and I am new to this site and actually just ordered Lloyd Wright's books as I was previously on Interferon for 7 months and did not go into remission. I have had Hep C in my body for over 40 years as I contracted it at the age of 15. Yesterday I found out that my biopsy shows that I am now at "fibrosis stage 4 (Cirrhosis)" Now is that stage 4 cirrohosis? I am a bit confused and what I am trying to learn is what this means....what my prognosis is..and my specialist could not give me an answer. She recommends 72 weeks of treatment on Peg-Intron and I truly fear doing this as I am prone to depression and the last treatment had me suicidal. I lost my husband 2 years ago and feel I am not strong enough emotionally to deal with the heavy duty side effects of the drug. Therefore I am trying to find an alternative treatment. I am also on my own and cannot afford NOT to work and I know I was not able to through the 7 months of Interferon. Has anyone had any success with alternative treatment? I am trying to remain positive and research all I can. I am definately a fighter but I do know myself well enough to know I do not feel I am emotionally able to do the Peg-Intron right now. Any comments or help would be truly appreciated.

Wishing you a wonderful day...Anita

 
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Old 07-16-2008, 07:50 PM   #2
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jessy28 HB Userjessy28 HB Userjessy28 HB Userjessy28 HB Userjessy28 HB Userjessy28 HB User
Re: Help Yourself Beat C

Here is a good article on the metavir scale which I think is what you are wanting information on. I believe there are four stage in the first inflamation part and then four in the fibrosis to cirrhosis.

[url]http://www.hepcchallenge.org/CiC_conference07/presentations/CiC%20DEN%202007_overview_cooper.pdf[/url]

Last edited by moderator2; 07-17-2008 at 06:03 AM. Reason: please read the rules before posting then you don't have to wonder about what is allowed or not

 
Old 07-24-2008, 02:38 PM   #3
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Join Date: Jul 2008
Location: calgary alberta canada
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dynaboy HB User
Re: Help Yourself Beat C

I have taken interfuron treatment for 11 months in 2004 I have a clean bill of health and have had hep c for 20 years! If anyone wants to ask me any questions feel free to ask me.I quit drinking while taking treatment and am only now a social drinker.I got hep c from a mva accident surgery. I am 36 years old and run a busy trucking company.

Last edited by dynaboy; 07-24-2008 at 02:49 PM. Reason: wanted to add more

 
Old 08-01-2008, 05:42 AM   #4
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Join Date: Aug 2005
Posts: 123
Trying2B HB UserTrying2B HB User
Re: Now diagnosed as "fibrosis stage 4 (Cirrhosis)" - what is my prognosis?

HEY STARSHINE, HOW ARE YOU DOING? I JUST WENT TO MY DR. AND MY VIRAL LOAD WENT FROM 8MIL TO 1.3 MIL IN SIX MONTHS. I AM GENO 1A AND HAD HEP C FOR OVER 30YRS BUT JUST FOUND OUT 2 YRS AGO. I STILL BELIEVE THE DRS KNOW SQUAT ABOUT HEP C SO DO YOUR RESEARCH. MY DR STILL WANTS ME TO TRY THE Tx FOR 3MO, BUT I STILL REFUSE. HE WASN'T IMPRESSED WITH THE DROP IN MY COUNT AND SAID THE ONLY TEST WOULD BE A LIVER BIOPSY TO TELL THE CONDITION. I ALSO SUFFER FROM DEPRESSION SO HE WOULD NOT GIVE THE Tx ANYWAY. GOOD LUCK TO ALL, AND GOD BLESS!!!
JOE

 
Old 09-22-2008, 11:29 PM   #5
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Join Date: Sep 2008
Location: seattle WA
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edel5810 HB User
Re: Help Yourself Beat C

This is for DYNABOY
I'm new and need some info and help.

 
Old 09-24-2008, 03:31 PM   #6
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Join Date: Jul 2008
Location: calgary alberta canada
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dynaboy HB User
Smile Re: Help Yourself Beat C

Quote:
Originally Posted by edel5810 View Post
This is for DYNABOY
I'm new and need some info and help.
what would u like to know so I can answer your questions.

 
Old 04-20-2011, 01:32 AM   #7
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Join Date: Dec 2001
Location: cushing, Oklahoma, United States
Posts: 6
janma2 HB User
Re: Now diagnosed as "fibrosis stage 4 (Cirrhosis)" - what is my prognosis?

Hi, I am at stage 4 chirosis for 2 yrs. now. A gastroenterologist and a hepatologist told me peg and inteferon is not a option for me. In a weak state of stage 4 there is only a 25% sucess rate with treatment and the other 75% die from treatment or the disease. My suggestion, live life as you always have, some days are hard. I am sure you know the days when all your muscles hurt, too weak to get out of bed and mostly sleep for 24-48 hours, chills, low fevers, abdominal pain its hard at times. I love to travel and expect to loose a day every time I go because the exhaustion of the trip brings on one of these attacks every time. In the meantime most days I live as full a life as I can still go and travel, go to the gym, shopping and whatever I always did trying not too push myself too hard.
A regimen of vitamins is essential a one a day and usually extra vitamin D willbe given. Get proper care from a team I mean you need a regular MD that has a copy of all the test the other specialist do, a hepatologist, a pain management doctor, and you can even get a diet from a nutritionalist, also include a course of muscle treatments at a physical therapy place it helps keep them in shape and the moist heat feels great! Diet really matters I notice the difference when I don't eat right small amounts of protiens should be from white meat (lean) chicken or fish better yet nuts, beans and other high protein foods that break down easier than meats, avoid high sodium foods to reduce adema (swelling in feet and ankles) avoid most processed foods full of preservatives. Eat lots of fruits and veggies small portions of food several meals a day do not fill your stomach up this will cause pain. I am not a doctor but with all the research, advise and meds from my team of doctors, and living a better lifestyle it really helps. Keep a positive frame of mind I really beleive this helps heal and fend off flare ups from chronic diseases. I have lost 45 pounds and stay active and have finally come to terms my doctor says I am a inspiration to others. Never give up because that ugly little virus will beat you down if you let it. Hope this helps and good luck, have fun, get support and always know you will be okay no matter what. We may be in the same boat but like the titanic we will play on as the band did while it slowly sinks, always facing destiny with courage. God bless you all

 
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Old 04-20-2011, 02:20 AM   #8
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Join Date: Dec 2001
Location: cushing, Oklahoma, United States
Posts: 6
janma2 HB User
Re: Now diagnosed as "fibrosis stage 4 (Cirrhosis)" - what is my prognosis?

My hepatologist said chirosis stage 4 has up to 5 year mortality rate and they took 18 vials of blood the results of the test are then put into a MELD chart which gives them a estimate of how long you have left 1-5 years IF you believe the docotrs but I try hard to prove them wrong. I am waiting on my MELD score but really not concerned I will live as long as I live and do not think a doctors estimate chart will tell them a accurate result. This is based on the average person each case and each persons will to live and follow a healthy lifestyle to add ot longevity is not accounted for in thier charts.
I am at stage 4 chirosis for 2 yrs. now. A gastroenterologist and a hepatologist told me peg and inteferon is not a option for me. In a weak state of stage 4 there is only a 25% sucess rate with treatment and the other 75% die from treatment or the disease. My suggestion, live life as you always have, some days are hard. I am sure you know the days when all your muscles hurt, too weak to get out of bed and mostly sleep for 24-48 hours, chills, low fevers, abdominal pain its hard at times. I love to travel and expect to loose a day every time I go because the exhaustion of the trip brings on one of these attacks every time. In the meantime most days I live as full a life as I can still go and travel, go to the gym, shopping and whatever I always did trying not too push myself too hard.
A regimen of vitamins is essential a one a day and usually extra vitamin D willbe given. Get proper care from a team I mean you need a regular MD that has a copy of all the test the other specialist do, a hepatologist, a pain management doctor, and you can even get a diet from a nutritionalist, also include a course of muscle treatments at a physical therapy place it helps keep them in shape and the moist heat feels great! Diet really matters I notice the difference when I don't eat right small amounts of protiens should be from white meat (lean) chicken or fish better yet nuts, beans and other high protein foods that break down easier than meats, avoid high sodium foods to reduce adema (swelling in feet and ankles) avoid most processed foods full of preservatives. Eat lots of fruits and veggies small portions of food several meals a day do not fill your stomach up this will cause pain. I am not a doctor but with all the research, advise and meds from my team of doctors, and living a better lifestyle it really helps. Keep a positive frame of mind I really beleive this helps heal and fend off flare ups from chronic diseases. I have lost 45 pounds and stay active and have finally come to terms my doctor says I am a inspiration to others. Never give up because that ugly little virus will beat you down if you let it. Hope this helps and good luck, have fun, get support and always know you will be okay no matter what. We may be in the same boat but like the titanic we will play on as the band did while it slowly sinks, always facing destiny with courage. God bless you all

 
Old 07-03-2011, 04:33 PM   #9
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Re: Now diagnosed as "fibrosis stage 4 (Cirrhosis)" - what is my prognosis?

Quote:
Originally Posted by starchiness View Post
Hi there,

My name is Anita and I am new to this site and actually just ordered Lloyd Wright's books as I was previously on Interferon for 7 months and did not go into remission. I have had Hep C in my body for over 40 years as I contracted it at the age of 15. Yesterday I found out that my biopsy shows that I am now at "fibrosis stage 4 (Cirrhosis)" Now is that stage 4 cirrhosis? I am a bit confused and what I am trying to learn is what this means....what my prognosis is..and my specialist could not give me an answer. She recommends 72 weeks of treatment on Peg-In tron and I truly fear doing this as I am prone to depression and the last treatment had me suicidal. I lost my husband 2 years ago and feel I am not strong enough emotionally to deal with the heavy duty side effects of the drug. Therefore I am trying to find an alternative treatment. I am also on my own and cannot afford NOT to work and I know I was not able to through the 7 months of Interferon. Has anyone had any success with alternative treatment? I am trying to remain positive and research all I can. I am definitely a fighter but I do know myself well enough to know I do not feel I am emotionally able to do the Peg-Intron right now. Any comments or help would be truly appreciated.

Wishing you a wonderful day...Anita
Hi i am on the same affect as you and depress also one thing i deal with and COPD /ASP MA along with lung desease to. and hi Blood pressure, heart trouble with blood clot too. So now i no way my doctor want give me the ok for treatment along with i just had a daughter who recover from nearly dieing from a complete nervous breakdown, i mean one that kill her newborn baby.
She was put in a mental hospital at long beach harbor. And now one in either side of the family even had family in this manner, so we where loss and pray like we where crazy prayer uno, she loss her mind and eat her on bowl and fight any one in sight and never did drugs but she was rape, and she believe watch Craft an also they use Strong pill and shock treatment too. Now she better and save Christian lady and in chore in chruch. now i taking care of me and i loss becase of the depression of my daughter lossing her shape she was a 5 size and now a size 20 and breathin heavy and has aspma to like me .
if she not careful she will not live to be as old as me. i have a lot to do with her may family blind me put me in a spot, so dose my daughter she mike me fill bad only around stanger at time she say unapropiated remark due to her illness. So Girl i do understand you problem sometime i want to take a drink and go danceing to get over my problem. like i use to do then i reminber i still not well i can,t drink so when thing are to hard on me i pray and take a mild relaxer, ok so back to hep C i stay depress but i do facial treatment and by something new and take a walk then eat out an that seem to work for me.
So don,t lat it take u down at less you can work that your HUSBANK OK.
an the Dr. sometime don,t want toput depress peopllle on the treatment due to it already make u depress taking the treatment ok.

 
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