I will be starting the new hep c treatment this Sun Oct 2, I am terrified!!! I am a mother and I go to school....the doctors seem to think that I got hep c 34 years ago when i was 1, I had 5 blood transfusions....I guess at this point it does not matter where or how, just fight to stay healthy for my family and of course myself. I could use some hope right now, my husband is verrrry supportive, almost to much, he thinks I will go through this like it's nothing...he was tested last week and was negative, thank god If there is anyone who could mabey give me some good energy, so I'm not so scared I would greatly appriciate it.
Hi, I just want you to know that i just started the treatment myself 3 weeks ago. I was too very scared starting out but honestly with 3 weeks in I am pluggin along just fine, Let me just tell you it's been more of an emotional battle then physically bothersome. That is why i have joined this support online. to hopefully find encouragement when i am having one of those low days. In just the past couple of weeks i have already recognized my body's changes with this medication and the worst thing yet is the headaches. I just want to send you all the postive energy i can and let you know that so far it has been a cake walk, no lie. I too am a student the frist week u won't wanna go to school but u have to make your self and then its easy from there on out. I promise you. well best of luck to you and please feel free to email me if needed. have a good night and don't worry your pretty head off, it's going to be just fine.
The following 2 users give hugs of support to: jodee o finet5466 (11-17-2011), luyingjie (01-25-2012)
The Following 2 Users Say Thank You to jodee o For This Useful Post: justinwonder (11-26-2011), luyingjie (01-25-2012)
Thank you so much, I really did not know how great that would feel to hear from someone in my shoes...it felt awsome!!! I feel alone in this, I don't want to tell anyone, afraid of the stigma with it, just want to conker it and move on Good luck to you on your journy, i can already tell that starting this thread was what I needed, so I don't feel so alone in this.
The following 2 users give hugs of support to: hartnik chelee (10-18-2011), luyingjie (01-25-2012)
The Following User Says Thank You to hartnik For This Useful Post: luyingjie (01-25-2012)
Ha, Girl me and you both, only 3 friends of mine know exactly what i am going through do to all the stigma attached. Honestly i feel like you read my mind on just about everything you reply'd on. Lol~ I too feel like This new thread thing is exactly what i needed! I would like to wish you luck as well and I just encourage you to remember this place is meant for people like you and me, So don't hold anything back~ you can let it all out here, no need for fronts. I say that mainly because i need to REMIND myself that. because, if your anything like me you'll hide your true feelings even from a support group! ttyl!
The following user gives a hug of support to jodee o: luyingjie (01-25-2012)
The Following 2 Users Say Thank You to jodee o For This Useful Post: hartnik (09-29-2011), luyingjie (01-25-2012)
well as far as saying everything i feel, I will try, yes I do hide my feelings from the world, I don't know if it's because I'm shameful over this, or just still in disbelief that this could happen to me! I have to told 3 people, and sometimes I am fearfull that I even did that. My poor husband gets the full force of my feelings and that is not always a good thing sense he is a 100% optimist and right now I have done nothing but poor out my weak side to him...it's driving him crazy due to the fact he just wants me to be happy and thankful for this oppurtinty to get better. Well here is to a new friendship and support <3
The following 2 users give hugs of support to: hartnik finet5466 (11-17-2011), luyingjie (01-25-2012)
The Following User Says Thank You to hartnik For This Useful Post: luyingjie (01-25-2012)
Wow I feel you on the shame level, even though it is intense for me sometimes thank god it is just a feeling, like they say (mainly in A.A.) This to shall pass. I sometimes think how crazy i am for feeling so shameful over something like this, i can't help but feel "dirty" and feel like "damaged goods" but the thing is many people are suffering from this and cannot get the oppurtunity to get treatment let alone they can never recover from it. and we both know where this disease can lead someone when untreated. We will see the end and at that point we can leave it in the past where it belongs! you know, how i said i've only been on treatment for 3 weeks? well when i went to my doctors appt. today he was giving me a word of encouragement and said hey your an 1/8 of the way done! OMG woman when he said that i was like already? i know it's only a fraction, but that goes to show how quick times goes by. It sounds like your man loves you alot and i'm sure he feels helpless and thats part of the reason why its driving him crazy. I encourage you to keep a journal and when u start to feel discouraged reread your entires and you will see the growth.make sure to write down the good times and the bad times its really important cuz if you just stick to writing the bad stuff you will probably not continue to use that tool. i know it may sound lame but sometimes it's the simple stuff that ends up working out the best. Then of the school your attending, I bet you among those people theres at least a handful of people who are going through the same thing. I was talking to my eng. teacher last week about my current situation and she said , girl there are so many people walking around this campus just as you are, they either don't know it yet or are living it. It totally opened up my eyes, and helped me not feel so alone.well if the whole journal thing doesnt work out, you can always lighten your load on me, girl. I wont try to fix you, I'll just hear you out. deal? well likewise, you have support and a friend here as well! ttyl~
The following 3 users give hugs of support to: jodee o chelee (10-18-2011), chopper2011 (10-01-2011), luyingjie (01-25-2012)
The Following 2 Users Say Thank You to jodee o For This Useful Post: hartnik (09-30-2011), luyingjie (01-25-2012)
A journal sounds great...thanks I hope you are feeling good today, I was just curious how old are you and do you have any kids? I'm 35 and have 4 children, they are my life!
The following user gives a hug of support to hartnik: luyingjie (01-25-2012)
The Following User Says Thank You to hartnik For This Useful Post: luyingjie (01-25-2012)
hey i just wanted to say sorry about the last long message, i'm just so grateful that i have someone to talk to... you know? that may have been a little much though. lol~ well i am 25 years old and i currently have no children, maybe some day. what's the age range of yours and genders? i would love love love to have twins someday! but im definitly waiting until im in my 30's just so i am fully ready and hopefully grounded alittle more! I am definitly feeling good today, alittle tired but life is great in this moment! How about you, are you feeling depressed? or what not? well i hope you have an awesome second half of your day!
The following user gives a hug of support to jodee o: luyingjie (01-25-2012)
The Following User Says Thank You to jodee o For This Useful Post: luyingjie (01-25-2012)
Good Morning~ I loved your looong message. I have a 3 year old daughter, a 4 year old son, a 8 year old daughter and a 11 year old daughter. They are wonderful. I think worry is setting in, my stomach has been hurting for a week, I have had stomach problems and that is what actually led me to the doctor and that's how I found out about this...well he bybassed the stomach promblems, I'm sure assuming that they are hep c related, and ordered my treatment. I just hope the stomach issues will go away with the liver getting better that all. So do you have a facebook so we can instant message if we need to, I am a great listener and again it's nice having someone to talk to that is feeling similiar to me. You truly are what is making me feel possitive right now, which I know sounds wierd sense we really don't know eachother, but god does everything for a reason....I have never in my life wrote on a message board, just because I am so private, but I'm glad I did this time So what are you going to school for? I'm going to get my degree to be a paralegal. Alright girlee, going to get a cup of coffee and start my day, propablly go to the gym, but you have a great day, and I will talk to you soon
The following user gives a hug of support to hartnik: luyingjie (01-25-2012)
The Following User Says Thank You to hartnik For This Useful Post: luyingjie (01-25-2012)
I will be starting the new hep c treatment this Sun Oct 2, I am terrified!!! I am a mother and I go to school....the doctors seem to think that I got hep c 34 years ago when i was 1, I had 5 blood transfusions....I guess at this point it does not matter where or how, just fight to stay healthy for my family and of course myself. I could use some hope right now, my husband is verrrry supportive, almost to much, he thinks I will go through this like it's nothing...he was tested last week and was negative, thank god If there is anyone who could mabey give me some good energy, so I'm not so scared I would greatly appriciate it.
I am single AND with my daughter and no man or any one but the lord so i no you be find you have support well my daughter and i are sickle a lot she had half of her kidney remove from that they say it was cancel and she lucky to be alive. i have hep C and is week sometime but i take liquid milkthe and al acid as well and vitamin and more if i need it like eletric like drink with K in it this is vip also. get sleep toooo
Last edited by Administrator; 10-01-2011 at 11:49 PM.
The following user gives a hug of support to finet5466: luyingjie (01-25-2012)
The Following 2 Users Say Thank You to finet5466 For This Useful Post: jodee o (10-01-2011), luyingjie (01-25-2012)
Hey chick,
I am only able to say a quick hello and check in with you. weekends are super busy where i'm living, not after november though. YAY! yeah i just am also a very private person. Im grateful u liked my long reply because i was like wow, she probably thinks im nut. and we have so much in common that im like blown away everytime i read one of your responses! so, as far as school, maybe a radiologist tech, or something that has to do with reunificating women with their children due to they're struggles. My mom got lost in her addiction and lost me so since ive always wanted to be reunified with her and never had that oppurtunity, i would love to be able to help others. like they say ur pain is your passion. so i guess that may be a social service worker? i'm so new at this whole college thing, that rigt now i'm just feeling the school vibe out mainly. you know? im actually taking a career devlopment class at the moment so hopefully by the end of the semester ill have a better idea. So how long do you have to go to become a paralegal? that's quite a goal too! way to go! you know i think thats special you have such young healthy kids, sometimes their smiles can just take away all your pain. speaking from word of mouth. lol~ let me tell you lately when im in a store and i walk by the little kids section i find myself daydreaming. tick tock tick tock... lol but im a long way from that~ especially since they say taking this medication can really have harm on a child if you become pregnant. anyways, i'd also have to have a decent man, thats something i'm definitly without right now. its for the best, im sure.
somedays are better than others. so wow i know i said this was going to be short, just goes to show how much i enjoy our new found support. well, sorry to hear about ur stomach problems, i can relate.
well i should really go now, room time in 10 minutes. Hope you have an awesome day! and let me know how ur doing! talk to you later and may god keep you until then!
Last edited by moderator2; 10-02-2011 at 06:18 AM.
The following user gives a hug of support to jodee o: luyingjie (01-25-2012)
The Following User Says Thank You to jodee o For This Useful Post: luyingjie (01-25-2012)
Hi i am a mother ans my daughter is in her 20 yrs so i am on herb an vitimin only let me no how your treatment come out to. i don,t think i can handed that stuff. lol by and stay in school
Last edited by Administrator; 10-01-2011 at 11:48 PM.
The following user gives a hug of support to finet5466: luyingjie (01-25-2012)
The Following User Says Thank You to finet5466 For This Useful Post: luyingjie (01-25-2012)
Well good news took my first shot last night, I felt great this morning, got up and made pancakes for everyone and then took my first dose of intevek, felt weird a couple hours later, not bad though...so I am relieved at this point. Glad I got to hear back from you, I feel happy you are my friend have a great week....
The following user gives a hug of support to hartnik: luyingjie (01-25-2012)
The Following User Says Thank You to hartnik For This Useful Post: luyingjie (01-25-2012)
Well good news took my first shot last night, I felt great this morning, got up and made pancakes for everyone and then took my first dose of intevek, felt weird a couple hours later, not bad though...so I am relieved at this point. Glad I got to hear back from you, I feel happy you are my friend have a great week....
Yes it good to no we are not along we have each other to support and life is to short u no... I am so glad you are all right. this is your first treatment so late me no how you are with the other treatment i love to no. God bless you and I
THANK U
The following user gives a hug of support to finet5466: luyingjie (01-25-2012)
The Following User Says Thank You to finet5466 For This Useful Post: luyingjie (01-25-2012)
Hey chick really glad to hear that your frist day went so well, hopefully it remains that way. some people have more severe symptoms then others. i'll be sending good positive energy your way and hopefully you will have easy breezy treatment. It's supposed to rain here tomorrow, im really bummed yet i love the fall so, what can i say. I just am not mobile right now so it's hard having to walk to the buss in the rain. it's a good distance too! oh well, keep me in your thoughts. Well, keep me posted and i'll be definitly getting back to you tomorrow, have a good night!
The following user gives a hug of support to jodee o: luyingjie (01-25-2012)
The Following User Says Thank You to jodee o For This Useful Post: luyingjie (01-25-2012)
well what a journey this will be, I felt great the day of my first shot, the last 3 days have been a little difficult dealing with the fatigue and nasia, had a couple crying spells, and it was wierd because I really did'nt know why I was crying...if this is as bad as it gets, I will take it in return for good health though <3 I'm just trying to keep my head clear, I think the hardest part right now is taking care of 4 children and not having the energy...hopefully my body gets used to it and I get some soon...xoxo
The following user gives a hug of support to hartnik: luyingjie (01-25-2012)
The Following User Says Thank You to hartnik For This Useful Post: luyingjie (01-25-2012)
well, hey im glad that u have a good positive adittude about it.. im sorry i havent been near a computer lately~ busy. well honestly the frist 2 weeks are rough... depression wise but since i just had my fourth shot i am definitly loving life... and that hump seems far away now.. just make sure to ask for help ur not super woman u know. u deserve a break at least once in a while~ i've been tasting metal ALOT lately but nothing gum cant solve for the time being... u know? i hate to say this but i have to cut this one short~ ill hit u back tomorrow~ keep on keepin on~ well ttyl~
Last edited by moderator2; 10-06-2011 at 06:40 PM.
The following user gives a hug of support to jodee o: luyingjie (01-25-2012)
The Following 2 Users Say Thank You to jodee o For This Useful Post: finet5466 (10-10-2011), luyingjie (01-25-2012)
my heart goes out to u i was in your shoes 6weeks ago . ive been getting through my treatment but with afew side effects haed aches cold simptoms . now im starting to get deppressed so ill be getting some tablets for that this week but the doctor told me these things could and most likely will happen to me and most people that do this treatment . so im just warnning u in case u start to get deppressed say to your doc and it normal for the treatment good luck with the rest of your treatment your friend in liverpool england
The following user gives a hug of support to canbeleng: luyingjie (01-25-2012)
The Following 2 Users Say Thank You to canbeleng For This Useful Post: finet5466 (10-10-2011), luyingjie (01-25-2012)
Oh well, thank you. I definitly experienced my share of depression since i have been on this medicine. but i am still going along very well. the frist two weeks were the hardest emotionally. but i have seemed to get over the hump pretty well. How is your treatment going so far? were you able to get some tablets to help you? well hope all is well, and hope to hear back soon, your friend from Santa Rosa, CA.
The following user gives a hug of support to jodee o: luyingjie (01-25-2012)
The Following User Says Thank You to jodee o For This Useful Post: luyingjie (01-25-2012)
Oh well, thank you. I definitely experienced my share of depression since i have been on this medicine. but i am still going along very well. the frist two weeks were the hardest emotionally. but i have seemed to get over the hump pretty well. How is your treatment going so far? were you able to get some tablets to help you? well hope all is well, and hope to hear back soon, your friend from Santa Rosa, CA.
Hello
it nice to here from you and yes i still taken the milkthisle and alpha acid and other mongosten straight product, but i am inching all over, and very depress at time but i am older so maybe it change of life. lol-- also i feel like i am getting the fluid all the time. but i still want to continue taking the same thing until i see better it take time. I hope you get even better to. look like you have it under control.
The following user gives a hug of support to finet5466: luyingjie (01-25-2012)
The Following User Says Thank You to finet5466 For This Useful Post: luyingjie (01-25-2012)