My husband was diagnosed with hepatitis c genotype 1a officially in 2011. He was told that he had the rare genotype and the doc referred to it as "The Big One." My husband believes that he got hepatitis c because he was a dumb teenager with a two year history of drug use. He also has 4 tattoos from non-tattoo shops. My husband and I have been together for 13 years now and he hasn't done any drugs since we've been together. That I know was a part of his past, but it hasn't been a part of his adult life. We have two children together, ages 10 and 9, and they are both taking their dad's sickness very hard. I am making this post for mental help. I don't know how to support my husband the way he needs me to. My husband and I are young, and we both feel like no one, doctors, friends, family, NO ONE believes how sick he is. He has been to 4 different doctors and all 4 of them have treated my husband like he is exaggerating his pain. He was even denied Medicaid for help getting treatment. I am a student and I work at a job that does not offer insurance. I have no money to help my husband, so I don't know where to go for help. My husband continues to drink beer because he feels like it's the only way that he can deal with the pain, even though he knows it's harmful to his liver. I have had to watch my husband curl up in a ball holding his stomach while he cries how bad it hurts. My husband did concrete for 15 years before he found out he was sick, and he hasn't been able to work for the past 2 years now because of how bad his body hurts. My husband was a very hard worker and to observe him going from working so hard to not being able to work, I know he's not making it up. Our children have to hear their dad every single night throw up in the bathroom before they go to school. My husband's pain is becoming mentally unstable for us all. He is becoming angrier and angrier. He tells me all the time that he can't stand the pain that he is in. He feels like me and our children don't support him with what he's going through, but I know that it's angry talk that he doesn't mean and he's just saying it because he's in pain. I don't know where to turn for help or how to get my husband the help he needs. If anyone has any advice that would be great. How can I be a support to someone in this bad of shape?
Last edited by Administrator; 02-18-2013 at 07:48 PM.
[QUOTE=Talia429;5134969]My husband was diagnosed with hepatitis c genotype 1a officially in 2011. He was told that he had the rare genotype and the doc referred to it as "The Big One." My husband believes that he got hepatitis c because he was a dumb teenager with a two year history of drug use. He also has 4 tattoos from non-tattoo shops.
I just found this forum too. I was on several of them yrs ago and then just quit for awhile. I saw that is looks like no one answered your questions. I'm sorry to see that. I'm also sorry to hear about your husband. Actually 1A is the most common genotype, it's not rare at all. When the doc said the "big one" he probably said that because it's one of the harder ones to treat. That's what I have too. There are some newer drugs though now that are working better.
I certainly that your hubby not drink beer for the pain. It was described to me that drinking was like throwing gas on a barbeque when you have HCV. It will just eventually cause more damage and make the pain worse. If he has a hard time stopping, AA is great and lots of people in the meetings have HCV. I don't know where you live, but I live in California and we have sliding-scale clinics that people can go to. He would do better qualifying for Medicaid or Medicare if he can build up a record of doctor or clinic visits. Then he could probably qualify for Social Security Disability, I did, but it took saving up some records for the low-income clinic. The clinics also can usually help a person qualify for free treatment from the drug companies who make it.
Bev in the sunny Santa Cruz Mountains, CA