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Jessicat223 02-24-2005 12:25 PM

Twitches and Herpes related Neuro problems
 
I have HSV2 and since having it I have had intermittent fasciculation (twitches in muscle) in Legs. Does anyone else have this?

beaker24 02-24-2005 02:57 PM

Re: Twitches and Herpes related Neuro problems
 
I had big problems like this in the early stages of my genital HSV1. It has calmed down a bit now.

Jessicat223 02-24-2005 05:13 PM

Re: Twitches and Herpes related Neuro problems
 
Really...It has bothered me a great deal, no only because of the symptoms, but because of not hearing about any other people having this! Thanks for your reply.
As for the outbreaks, the first year was the worst, now my second year with HSV1 and 2, I hardly notice an outbreak at all, and it leaves in two days-BUT the tingling and neuralgia in my face and legs goes on for weeks. It is crazy- when I was first diagnosed with HSV 2 I thought I was going to dread the outbreaks, but I now fear the neurological garbage.

Thanks

internet! 02-24-2005 09:37 PM

Re: Twitches and Herpes related Neuro problems
 
Ive had HSV-1 for nearly one year. No noticeable outbreaks but nonstop neuropathy. it sucks bad.

Jessicat223 02-25-2005 06:53 AM

Re: Twitches and Herpes related Neuro problems
 
I am frustrated that when I was diagnosed, none of the doctors ever mentioned neourological problems that may occur.
And I have found that they never heard of it, but it is so real.

ALMOST 4 YEARS 02-25-2005 07:10 AM

Re: Twitches and Herpes related Neuro problems
 
HI ALL :wave: FOR ME I HAVE G-H2 FOR 4 YEARS AND NOT TO BAD ON O-B BUT.... THE TWITCHES JUST STARTED ABOUT 8 MONTHS AGO I HAVE NEVER HEARD ABOUT THAT... IT'S MOSTLY IN MY ARMS THAT I FEEL THEM... BUT THEY ARE A PAIN IN THE *** ... SOMETIMES MY HANDS EVEN TWITCH... I WONDER IF IT EVER GOES AWAY OR IF THERE O-B OF SOME KIND I'D RATHER HAVE THE TWITCHING THEN THE DOWN UNDER O-B......LOL WELL TAKE CARE ALL :angel:

Jessicat223 02-25-2005 10:45 AM

Re: Twitches and Herpes related Neuro problems
 
You know- I called the Herpes Support Line one time and asked about the twitches and the woman told me that people just "presume the twitches are from herpes, when they are unrelated". I was very upset with her lack of knowledge on the neuro end, being a " Herpes Expert".

I do get the twitch in my pinky and it feels like a phone ringing, buzz. Weird.
Hopefully they will subside, I feel better talking to others who don't think I am crazy for having these symptoms!
Thanks guys.
Good luck!

beaker24 02-25-2005 02:03 PM

Re: Twitches and Herpes related Neuro problems
 
I got very severe twitches in my legs for about 2 months after getting genital HSV1. I have read that HSV1 can be even worse than HSV2 from a neuropathy point of view although I would think both viruses can be very problematic!

I spoke to the doctor about it and she said it was nerves or stress from having H or from the fact I had recently started a new, quite high-pressure job. But to me, it was obvious it was the H. I went from feeling normal to BANG, this tingling, itchy pain in the nerves of my legs - and I wasn't imagining it!

It is a lot better now, I have to say, hopefully my body has adjusted somewhat. But in the early months it was driving me MAD!

internet! 02-25-2005 08:21 PM

Re: Twitches and Herpes related Neuro problems
 
Ive found that it seems like a lot of people with HSV1 do get the neuropathy. It happens with HSV2 too but it doesnt seem as commonplace. More people Ive talked to who've experienced or do experience this tend to have HSV1 rather than HSV2. I have no medical backing on this and since its not even recognized as a symptom, it probably never will be studied but I wonder if it doesnt have something to do with the virus reacting in strange ways to being "out of place"

Jessicat223 02-26-2005 07:16 AM

Re: Twitches and Herpes related Neuro problems
 
I have HSV1 and 2.
So it could be from HSV1. The neuralgia is bad in the face, so I presume it's from HSV1. I take Xanax and it sort of helps it.
Does anyone ever get weird feeling in the toes? I get a feeling like numbness, but not quite?

unlucky_guy 02-27-2005 02:24 AM

Re: Twitches and Herpes related Neuro problems
 
I developed twitches in my legs soon after I got infected...then they slowly spread to the rest of my body. Its been over a year, and I'm still getting muscle twitches all over my body....legs, feet, hands, fingers, face, behind...you name it. Sometimes there are days when they really bother me, but other times they aren't so bad. I don't think they will ever go away so you kind of just have to get used to them.

Herpes sux :confused:

Champ17 03-20-2005 07:13 PM

Re: Twitches and Herpes related Neuro problems
 
Would having cold feet also be apart of this neuropathy problem?

spjp 03-20-2005 09:17 PM

Re: Twitches and Herpes related Neuro problems
 
can someone try and explain what the numbness and twitches feels like/acts like

Greentreesquid 03-23-2005 10:38 AM

Re: Twitches and Herpes related Neuro problems
 
i notice people with shingles get this nuerophy. has everyone been blood tested to make sure they have herpes. i mean.. ive never heard of a person only having pain and not have any visible symptoms.

[QUOTE]Ive had HSV-1 for nearly one year. No noticeable outbreaks but nonstop neuropathy. it sucks bad.[/QUOTE] internet you have never once had a visible outbreak?

Greentreesquid 03-26-2005 03:15 PM

Re: Twitches and Herpes related Neuro problems
 
Neuropathy can be caused by weight gain?


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