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Old 03-18-2005, 05:49 PM   #1
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Argh! My son has an ob but nothing to culture! (vent)

This is SO frustrating!!! My son's (5 months) face started looking pimply night before last. No biggie, he tends to get those baby pimples and they clear up within a day or two. By last night he was just looking unusually rosy. This morning he looked rashy. By late morning I could see small ulcers forming. This was within a few hours of his bath, so he had been wet then lotiony. He was playing and drooling so it stayed pretty damp. I called the pedi who was able to see him late afternoon, but by then his skin had dried up. You can still see where the ulcers are, but they aren't "juicy" (for lack of a better adjective there) when the skin dries up.

Since he is less than 6 months old, he is still at risk for developing herpes encephalitis again. The course of treatment is oral acyclovir for 7-10 days for recurrence in the skin, but he can't be started until a culture is performed.

The last time when recurrence was suspected (but probably not truely an ob), he developed two barely raised bumps that were paler than the skin around them where a lesion had been previously. Today he had the same pale bumps all over his scalp in the places where his lesions had been before.

I am pretty sure he is recurring, but I can't do anything about it but wait and see if it blisters or if the ulcer-looking things become culture-able again. ugh! Frustrating!
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Old 03-19-2005, 07:05 AM   #2
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Re: Argh! My son has an ob but nothing to culture! (vent)

I am sorry, hsvmom. You always show such a positive attitude, but I know how it hurts like crazy to watch your baby hurt and to worry what will happen next. How does he react to the bumps? And how do you keep him from rubbing them?

Is there a reason that he can't start the acyclovir right away? Does it have some harmful side effects?

I hope he recovers quickly. Good luck.

 
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Old 03-19-2005, 08:16 AM   #3
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Re: Argh! My son has an ob but nothing to culture! (vent)

They don't seem to bother him much, thank goodness. He is a chubby boy and his baby arms don't quite reach a lot of his head! LOL! And he is still only developing the skills it takes to rub his head anyhow (caught him doing it this morning though). My bigger concern is his baby brother rubbing them. So I don't worry about him fooling with the bumps. I try to keep a cap on him, but he's getting active and doesn't keep it on well anymore. His cheeks look awful though. He gets drool and breakfast all over them and they look even worse, but it doesn't seem to bother him until I have to clean him up. He usually loves getting his face wiped, but I can certainly see why he doesn't like it right now.

Acyclovir is generally VERY safe in children. There were actually a couple of studies published re: cases where children were accidentally administered incedibly high doses and had NO ill effects! But there are some risks associated, kidney problems and lowered nutrifil counts (the white blood cells that fight off bacterial infections). The count should be above 1500. At 1000 they start watching closely, at 500 they stop the meds. He got down to 200, which is why he isn't on it for the sake of suppression like he should be. Also, b/c he drops, they have to do weekly CBCs if he stays on it, which is pretty rough on him (5+ sticks usually ). So they want to be able to document that it's actually an outbreak

Thanks for the encouragement! It still looks like it will get a bit worse before it gets better, but it is temporary. It's just that risk of encephalitis that worreis me...I don't think any of us are ready (or ever will be!) to go through that again.
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Old 03-19-2005, 05:38 PM   #4
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Re: Argh! My son has an ob but nothing to culture! (vent)

i can truely understand none of my children have been diagnosis fear of embaressmant. but at times notice the bumbs and i don't know how to explain to babysitter when he gets his rash or a scape on his nose or the corner of his mouth! will dsmo cream work on the children too?

 
Old 03-19-2005, 07:28 PM   #5
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Re: Argh! My son has an ob but nothing to culture! (vent)

I'm not worried about people knowing my boys have herpes. They survived a terrible horrible life threatening disease, and though it means people realize that I probably have genital herpes, I am proud for them to know what fighters I have. But that's just my personal take on it. I am not sure if it works on children. I personally wouldn't try it on mine even if people said it did work. Ethan is at risk for recurrance of herpes encephalitis until he is 6 months old (or maybe even 8.5 months because of his prematurity). With that risk involved, I will gladly give him the acyclovir.

The good news is that since my younger baby didn't have lesions he is not likely to ever have outbreaks. That's one relief!
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Old 03-29-2005, 02:12 PM   #6
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Re: Argh! My son has an ob but nothing to culture! (vent)

HSVMom, did you have an OB when you were in labor? Were any lesions detected. I am afraid of this ever happening to my future child(ren).

 
Old 03-29-2005, 06:07 PM   #7
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Re: Argh! My son has an ob but nothing to culture! (vent)

Quote:
Originally Posted by yourspecialmiss
HSVMom, did you have an OB when you were in labor? Were any lesions detected. I am afraid of this ever happening to my future child(ren).
I've never had any lesions or symptoms of hsv either before or after my pregnancy and delivery! 70% of hsv infected babies contract it from mothers who have never had symptoms!

Please don't be afraid. It IS something to be aware of and educated about and you definately need to be open and candid with your ob/gyn when the time comes. But if you have hsv before you are pregnant your chances of passing the virus onto your baby is anywhere from <1%-5%. Even if you had a lesion at the time of delivery and delivered vaginally the highest risk is 5%! The biggest risk is to moms who contract the virus during the last 2-3 months of their pregnancies (I was on hospital bedrest during that time! But b/c it was hsv-1, the infectious disease docs said it had to have been a primary infection during my last two months!).

There's a lot of info out there if you are interested, but basically your odds of having an hsv infected baby are much lower than the odds of nearly every other complication! now, supressive therapy is an option and surgical deliveries can reduce the risk (IF you have symptoms! not even needed otherwise!). And if you deliver vaginally, the chances can be reduced further by avoiding internal monitors and having your membranes ruptured for 6+ hours.

I'm sure that when you are ready your baby(ies) will be beautiful and healthy! My boys really are a rarity.
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