i finally got my doctor to test for herpes (long story)... but when I asked him what kind of test was being done I wasnt sure from his response what it was...
He said it was...
A serialization blood test that would determine if herpes was present and was type specific as to it being Type 1 or Type 2. I asked him if it was an IgG or IgM test and he didnt seem to know what I was asking. He went on to say that if I wanted to know what type of test it was... it was an ELISA test.
Is this IgG based? or the less accurate IgM? or what?
Well, it sounds like it was an Igg, if the doc claims it will tell you which type it is. An Igm wouldnīt do that, it would only tell you if antibodies for found. The Igm looks for different kinds of antibodies than the Igg, hence the Igm could be negative with an older infection. Strange that the doc didnīt know if it was an Igm or Igg...But if it will show type, then itīs an Igg. I hope you had the test done 12-16 weeks past exposure, any testing before that could give you a false negative.
I believe the Elisa has both an igg and an igm test. It sounds like that man just quoted the lab company's description. At least he knew to get a type specific IgG test, but still... How could he not understand your question about IgG or IgM?
Just like the other tests, it's recommended that you wait 12-16wks after exposure, like pp said. BUT, because it's possible this wasn't actually your first exposure, the results won't be usesless. And the kit is really inexpensive, so it shouldn't be too bad to retest in 2-3 mo to get the most accurate results.
The Zeus Scientific, Inc. HSV-1 and HSV-2 IgG ELISA test systems are enzyme-linked immunosorbent assays (ELISA) for the qualitative detection of IgG class antibodies to Herpes Simplex Virus (HSV) in human serum. The test systems are intended to be used to evaluate serologic evidence of primary or reactivated infection with HSV. Due to cross-reactivity of shared antigens, both tests must be run in parallel on the same sample to fully evaluate a patient serum. These test systems are for in vitro diagnostic use.
The Zeus Scientific, Inc. HSV-1 and/or 2 IgM ELISA test system is an enzyme linked immunosorbent assay (ELISA) for the qualitative detection of IgM class antibodies to Herpes Simplex Virus (HSV) in human serum. The test system is intended to be used to evaluate serologic evidence primary or reactivated infection with HSV, and is for in vitro diagnostic use.
...so I think it both tests are available. I would be very upset with a physican who wouldn't answer my questions with a straight and understandable answer. Ugh!
Your telling me... heres a quick summary of my story so far...
I stupidly recieved oral sex from someone June 6th, who said they had been tested for STDs in may and hadnt been with anyone since. As im finding out, theres a wide variety in what testing for STDs means (no oral swab taken or tests done). To top it off I hadnt had sexual contact with anyone in a year, and had surgery for a hernia in april.
Two days later I started getting minor pain/burn during urination and by the end of the week had a tender area on the under side of my penis... I went to the doctor and he took a swab of my urthrea to test for gonnahrea / clymadia but nothing else since there were no lesions just a small red irritated area which he said didnt look like anything, even after I asked him about herpes, and mentioned my mild fevers, lower back pain, diarea, upset stomach.
The tests came back positive for gonnahrea, and I was treated with a single pill for gonnahrea (not treatment for clymadia even though they usually treat for both when you are found with one)... A week later there was no change, I called the doc and he said wait it out a few more days... it still didnt get better so he referred me to a urologist. About this time I also started taking Lysine on my own which may or may not of helped... it felt a bit better, but could have been me getting used to it too.
The urologist again said the irritated area 'looked like nothing' and a new small red spot on the head of my penis wasnt anything either... he treated the original gonnahrea diagnosis with a shot and told me to come back in a couple weeks.
Around this time I started treating the irritated area with Super Lysine+ ointment... it stopped the sting/itch for the most part, but if there was any healing it was minor.
About 6 days after the shot, there was little change... but I noticed a spot on my eyelid that looked kinda like pictures of herpes id seen online so went to an eye doctor just to be sure. The eye doc thought 'it might be herpes' without me mentioning it... and recommended I be put on valtrex and get it cultured... but I had to go back to my doctor for that.
My urologist wouldnt return my eye docs calls, so he eventually called my original doctor... who wanted to 'have me come in next week', take a swab of my eye then if its still there, and if the test results came back positive then put me on valtrex.
Since its not IN my eye yet, the eye doc thought it important to get on valtrex ASAP as if it gets in my eye it can lead to blindness. So I got a little irate and went to my doc and made myself heard that day... he looked at the area on my eye (which my eye doc was concerned about leaking into my eye) and squeezed it, rubbed it, etc. etc. and said... ah that doesnt look like anything. In the process he made the wound on my eyelid alot worse and still didnt culture it which the eye doc wanted done. He did take blood for a bloodtest (giving the explanation in my original post as to what test it was) and put me on 1g valtrex twice a day for 7 days.
Now, considering the time since infection im wondering how useful the test will be and which test he actually had done. Ahhhh.
Ive been on Valtrex since Thursday... the area on my eye has scabbed over, urnation is still not normal but less burn than it was... the red spot on the head of my penis is almost gone, and the irritated area on the under side of my penis WAS almost back to normal. I say was, because it felt normal enough that I had an erection... didnt do anything with it though... but that seemed to be enough to restart something... either the stretch reirritated the skin, reopend micro lesions, or caused a new OB. I did have some mild back pain shortly after the erection but maybe im reading too much into it. Btw, ive never had any back pain in my life prior to the start of this.
The most annoying thing is that the under side of my penis, probably the most tender skin in that area for me... has been irritated for over a month, feels like theres a tiny cut somewhere that stings. And in all that time both doctors that have seen it just say... ah that doesnt look like anything, wouldnt worry about it. When asked about herpes, have been told 'thats not herpes'... then after all that find out that it may be herpes and I may have translocated it to my eye sometime in the past month.
Is this typical of the medical community? Anyone have any comforting words, or ideas what else I can do... Is it typical for initial outbreaks to be so mild as to allude the doctors and still last over a month? Or is it more likely that im having continuious outbreaks all minor but continous? Or is there something else out there with the same symptoms? something curable, hey I can hope.
Considering things have been getting better since ive been on valtrex (as long as I dont get excited <g>) If i had to guess i would think I have herpes, and since I recieved from oral contact and how mild it is (in intensity not duration) and the possible translocation to the eye... id probably lean toward it being Type 1. Which leads me to a couple more concerns.
First, if the OB is still going on after the valtrex, and the tests come back false negative I dont know where to go from there?
Also, my doctor told me this about treatment and it sounds 1/2 wrong... he said that if you have Type 1 that you are treated for the outbreak and are DONE WITH IT... like it goes away... but if you have Type 2 you HAVE TO be on repression therapy for the rest of your life.
I know that if you have H your never DONE WITH IT, so im wondering how many folks are being treated for genital Type 1 and go on to infect others... second the number of OBs varies from person to person, and the virus can become resistant to therapy over time... so if you have Type 2, but dont have alot of OBs it seems odd that you would have to be on daily valtrex for life, sure i can see doing it to help avoid transmission to others, but manditory.
All that and my experience thus far makes me think the docs arent well informed. Any help folks?
Wow! Complicated story!
Well, if your blood test comes back negative then I would definitely recommend that you do repeat it 12-16 weeks past exposure. Donīt trust a ngative result before that.
If your blood test then eventually comes back positive for hsv-1 then there is really no way of knowing for sure if you have it just orally, just genitally or both. It would take a swab of the genital area to know for sure. Hsv-1 genitally generally recurres less, but there are exeptions.
Of course it could be that your blood test comes back positive for hsv-2 and this cuould mean that youīve had the virus for a longer time and it just now decided to surface. Would be very rare to get hsv-2 from oral sex, hsv-2 does not like the oral area.
Hard to say about your eye. But if it was herpes then it would suggest more hsv-1, itīs hsv-1 that tends to give eye problems, should they occure.
As for supression, well, people do it for various reasons. Some to cut down obīs, some to to cut down transmission, some for both. Itīs up to you and your partner to decide which is best for you.
I would wait for the first blood test and then test again in due time, i.e. if your results would be all negative or just positive for one of the types. Just in case, this way you would know for sure what exactly it is you have.
Yea, much more complicated than it needed to be... you would think that if you came into the doctors office saying you wanted tested for STDs that the doctor would test for STDS, not just what he thought it might be based upon visual observation. If he would have done as I asked, it may have never got to my eye.
My fear is that it is herpes, the test will come back negative, then ill go the next two months without any relief... Its been about 30 days now and its been ongoing... never any blisters... but a red irritated area thats been my constant companion for a month so far. Super L-Lysine+ ointment helps with the sting, but not much else.
Is it typical to have an initial outbreak for over a month?
In the beginning I thought, it sounds like herpes but is fairly mild compared to what id read online, but after a month with anything irritating it starts to creep into your life.
Geez, what a story. No, drs aren't real well-informed about h, but these drs seem especially dull and stubborn. I would go to a different general dr if I were you. Never go back to that guy.
I have hsv-2 and have never been on Valtrex, or any other meds, for that matter. I did absolutely nothing for h for many years. Now I am trying some herbal remedies and immune system boosters.
You can get fungal and bacterial infections on your penis, too. I can't believe that guy wouldn't culture the spot. If that spot is still painful, you should go to a clinic somewhere that will do what you ask. If you are trapped into going to that same jerk (because of insurance), go in and insist on getting a culture, and tell him you don't want to hear any of his crap. OK, be a little more polite, but really!!! You're the one paying him--he's there to serve you, not to deny you the care you request under the guise of expertise (hah!) So maybe the conversation would go something like this:
you: I'd still like this area cultured.
him: but blah blah blah blah...
you: OK, but I'd still like it cultured.
him: no, because blah blah blah blah...
you: I understand, but I want it cultured.
etc etc etc
Stick to your point and insist. You want to know what this is, not just whether it's h. Tell him you want to know WHATEVER it is.
Meanwhile, you'll learn a lot by doing some searches on this board and reading a lot of older posts.
Thanks for the comments backpacker... your correct that insurance plays a roll in my putting up with this idiot... im fighting another war now...
My test results came back yesterday, Neg HSV2, Pos HSV1. Its a blood test so it doesnt definitely say that its genital... but since ive been on valtrexx for 7 days it has gotten better... not gone but better.
But on to my war... my inital 7 days of valtrex ran out today... so I called about getting a refill since its helping. After taking a day to get back to me, they said that HSV1 should be CURED (yea, cured as it over, done) by 7 days of Valtrex... but since im still having problems he would refill the perscription 'just this once'... but after this 7 day course... NO MORE.
Basically hes saying that it should be cured, and if its not... to bad so sad... no more meds for you. If i still have a problem I need to come back into the office... and have him look at it again... of course hes always said that 'its nothing' because there are no blisters. been saying that for a month.... so im wondering what ill do after the next 7 days.