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Old 03-18-2006, 10:42 PM   #1
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Blood Tests results negative but having 2nd OutBREAK!!

I was clinically diagnoised with herpes by the Dr specialising in Sexual diseases. I had about 6 ulcers at my genital areas in Feb this year, caused me great intense pain when urinating for a few weeks. But the results for both blood test (type 1 and 2) and culture tests are negative and my bf who does not have any symptons, is also negative. Is this possible? ??He is my only partner for the past 6 years and I'm his only and first partner.

Today I found one ulcer at my gential area again and I've been feeling itchy down there. Feeling slight pain when urinating too. I'm just so worried cos I never thought my second outbreak would be so early. Indeed, I was feeling quite stressed lately and having lack of sleep and poor diet before the outbreak. Would it really cause an outbreak???? Thanks for your comments! I will see e doc again next week. Hope we'll be fine soon!!

 
Old 03-18-2006, 11:20 PM   #2
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happiness is HB User
Re: Blood Tests results negative but having 2nd OutBREAK!!

I've done some internet research and one site said that so-called type-specific EIA test blood work, is an unnecessary expense and may not offer results that can be trusted giving someone a false sense of security about a test that is falsely negative OR the patient can be given a false anxiety about a test that is falsely positive. It had a list of the tests and the accuracy of them so I guess you would need to research the type of test you had to see how reliable a test it is. Also, February is probably not enough time to have antibodies. It can take up to 3 months. If you have blisters, go back to the doctor and tell him you want a swab taken from the blisters. That is the most reliable way to know. Maybe your boyfriend should be tested again in a few months just to be sure.

Last edited by happiness is; 03-18-2006 at 11:23 PM.

 
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Old 03-19-2006, 12:23 PM   #3
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Re: Blood Tests results negative but having 2nd OutBREAK!!

The more you read on the Internet, the more confusing this virus becomes. What's alarming about some web sites is the information is outdated, not of the general consensus or flat out wrong. Even the Center for Disease Control web site (cdc.gov) has vague information on testing and treatment. To make matters worse, the medical community is not up to speed with current information in regards to testing and treatment. Do not assume your doctor knows all about Herpes, cause they most likely don't. The most common thing they're incorrect about is that you need symptoms in order to be blood tested.

As a patient, you'll get an STD checkup, they'll tell you you're fine, yet you probable have no idea what you were tested for. And there's an 95% chance you were NOT tested for herpes because it's not included in a standard STD checkup. They may draw blood, they may say all your blood work is normal, but it doesn't mean you were tested for herpes. You need to requested it.

There are still several bad blood tests on the market, and some older ones too. Yet Doctors still order them because they're not up to speed with proper testing. The only tests that are FDA approved for herpes testing in the United States are:
BioKitHSV-2 Rapid Test
HerpeSelect HSV-1 and HSV-2 tests (ELISA and Immunoblot)
CAPTIA HSV IgG Type-Specific ELISAs

The way these tests got FDA approval was using the 'Gold Standard' WesternBlot blood test. You can get the WesternBlot test, but most doctors don't know about it, it's expensive, hard to get. Usually, the HerpeSelect test is all you need.

So, when you get tested, make sure you know what you're being tested for, and what test you're getting. Skip the older IgM test, their results are of little use in testing for herpes.

My recommendations for testing are:
Never accept a visual exam as proof that you have or do not have herpes.
Request an IgG type specific test. HerpeSelect is the most common.
Get tested for both HSV1 and HSV2.
Make you doctor pay for an IgM test if he/she orders it.
Get hard copies of the results so you can post them if you have questions.

Never, accept someone telling you over the phone your results. Get hard copies, this way you can double check the results and just what test was performed.

All blood tests recommend waiting 12-16 weeks post possible exposure before getting tested. Some people will seroconvert (turn positive) as soon as 2 weeks, most by week 8, the rest trickling in after that. By week 16, 98% of the people who will turn positive have done so. There are rare cases where someone could take longer than 6 months, even one year. But those are very very rare. Bottom line is the longer you wait the higher the accuracy of a negative result.

Cultures have a high rate of false negatives, so it should always be followed up with a blood test.

Last edited by over21; 03-20-2006 at 06:39 AM.

 
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Old 03-19-2006, 05:57 PM   #4
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Re: Blood Tests results negative but having 2nd OutBREAK!!

Blueberry, does your BF have cold sores? He could have passed on the herpes virus if he has cold sores thus giving you genital herpes. I'm not sure if you are aware that you can have hsv1 genitally. You will have virtually the same symptoms as if you have hsv2. Also he wouldn't have had to have an active cold sore to pass it to you. As far as your test coming back negative, if both of you are truly faithful to eachother, the test coming back negative is more than likely a mistake. You two have been with eachother for 6 years so it is possible to have herpes without having an OB until years later...but the blood test, if accurate, should still come back positive even if you didn't have an OB. It couldn't have just appeared out of nowhere. Like I said, if your BF has cold sores he certainly could have only recently given the virus to you through oral sex. Sometimes people can be together for years before infecting the other partner. The other possibility is that he just was recently infected by someone else...well it's always possible because you can only account for your faithfulness.
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Old 03-19-2006, 09:25 PM   #5
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Re: Blood Tests results negative but having 2nd OutBREAK!!

I'm the one who had several doctors tell me the blood tests wouldn't tell me if I had herpes . . . they would only let me know if I've been exposed to it. After reading your post, I do see where I have been misinformed. Does that mean that in my case, my DH (who has never had an outbreak) could still test positive and that sometime down the road he could actually have an outbreak? Does it also mean that he could be a carrier and pass it on to someone else? Wow . . . honestly I'm completely shell shocked. Our assumption was "he's never contracted it from me, and being careful all these years has kept him safe." But now from what I'm understanding is it is more like "he may have it but to date he has never had an outbreak." Thanks for the info . . . even though it has been a rude awakening.

Last edited by happiness is; 03-19-2006 at 09:27 PM.

 
Old 03-20-2006, 09:14 PM   #6
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GettingWellAgain HB User
Re: Blood Tests results negative but having 2nd OutBREAK!!

Yeah, the fact that someone can just be a carrier but never have an outbreak is a scary concept. It really angers me that all these years I thought I was STD-free (although I still tested negative for everything, which I think it incorrect but that's another story) because standard STD tests don't include herpes testing. I can't imagine how many teenagers are sent home from the clinic with a "clean bill of health" yet have herpes. I really wish people were more informed about herpes; doctors especially. Also, although doctors are extremely helpful, one should never put all of their faith into a doctor's words and should always take responsibility for their own health, by learning all they can. The clinic that I recently went to (PP), told me, "Nope, there is no way you have herpes", by visual examination only. The clinician said that it was impossible to have herpes without blisters and that I was over-reacting to a little irritation that was probably caused by shaving. Um, INSIDE my labia? Hello, I don't shave there. I knew she was wrong but I left and tried to find another doc, but I couldn't get into my other OB/GYN soon enough AND they wouldn't accept my insurance, so I made another appt. at the same clinic to demand a blood test. The next time I went, I saw a totally different clinician who knows everything that we know here in this forum, that herpes is not always blisters. She was totally okay with giving me a blood test, told me that my fears were valid and my symptoms matched, and she said she wanted to do type-specific testing. Sooo, I got that done and it was negative, but here I am having a 2nd outbreak. I guess I just tested too soon. Now, I'm going to go back to the clinic for a third time and show them my little white spots and demand medication--at least ointment. I've used my mom's whole tube of acyclovir ointment which she paid 135 bucks for--for less than an ounce! Prices are disgusting without insurance. Sooo...here I am still hoping my boyfriend hasn't contracted herpes from me, because I don't believe I got it from him. Blah. This herpes thing really sucks...sorry for babbling on so much. :-)
~Katalina
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Old 03-21-2006, 06:26 AM   #7
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Re: Blood Tests results negative but having 2nd OutBREAK!!

Solstice...don't worry about babbling on...that was a very interesting read! Thanks! I can't believe that first clinician was soooooooooo ignorant to Herpes...it's so frustrating. The things I've read here about what doctors tell people about herpes is unreal...it's no wonder herpes is spreading faster than wildfires in Texas!!!!!!
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Last edited by keepsgoin; 03-21-2006 at 06:32 AM.

 
Old 03-21-2006, 08:45 AM   #8
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Blueberry79 HB User
Talking Re: Blood Tests results negative but having 2nd OutBREAK!!

Dear all, thank you for ya valuable responses! I would like to share what I experienced for the past few months. Last year, end of December, I experienced pain when passing urine and the doctor said it was due to the allergy/ complications after my Brazillian Wax (Did in November) cos they really did waxed all the way. She just prescribed a wash and I was fine after 5 days. I believed her. I did not look for blisters or abnormalities down there.

In mid January, I felt pain when passing urine again so I used the wash and was fine after a few days. I didn't consult any doctors.

However, early February, I felt intense, terrible pain when passing urine again. I went to another family doctor. She did urine tests and said I had yeast infection but no UTI. She found some gential ulcers which I've never noticed them. On the same day, I was referred to my current doctor who specialises in sexual diseases. She said it was definitely Herpes and she did urine test and said I had UTI too but no yeast infection. So can you imagine having two sets of different results at two different clinics on the same day with regards to UTI and yeast infection?

I was truely upset and stressed I had to endure both the physical pain and emotional pain cos I never ever thought I would have a sexual disease! The pain I had to endure when going to the toilet was beyond words can describe. But it was finally over in a few weeks and I was well again by mid February.

My bf and I did the tests in mid Feb and went to get our results. Both blood tests (type 1 and type 2) were negative but she said she clinically diagnoised I have herpes based on her experience. She said mine is definitely Herpes, no doubts about it. She said 8 weeks should be sufficient to do blood tests. But I only first saw the ulcers in early Feb which was 3 weeks before the blood tests although symptoms like pain when urinating started 6 weeks before the blood tests. The ulcers may be there earlier but I did not notice them.

I am wondering why both my bf and my blood tests are negative. It is impossible. Which is more possible?
1) If I get the virus from my previous partners ( more than 6 years ago), which is unlikely according to the doctor, surely my results would be positive but it is not. Would there be a mistake in the results? Perhaps I have the virus within me for all these years.
2) He has Herpes 1 and he passed to me when he oral me was what we thought was the most possible reason. But his results is negative. He has no symptoms of Herpes at all. Maybe there is a mistake in his tests and mine was negative cos it is not 8 weeks yet so not accurate?

I really appreciate you guys for being so patient with me. Right now, in March, I found one gential ulcer again. I'm really sick of it. December (pain when pass urine), January (pain when pass urine), February (horrifying pain plus 6 murderous ulcers), march (one ulcer)....When is this going to end???? Is one ulcer considered an outbreak? My doc is on leave for the next few days plus I'm having my menses so I cannot see her yet. I merely applied some antibiotic cream and hope it will go away. Should I apply Zorax cream with Acyclovir as the active ingredient instead? Thank you once again for being in this forum.

 
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