The symptoms of herpes on your buttocks are like symptoms everywhere else...they differ greatly with each person. One person could have a single sore or a rash appear, whereas another person could have several or many sores. They can look like a rash, a tiny red spot, a sore or lesion, or a blister. They can even look like a pimple with a white head. You may or may not have the tingling sensation, but usually there is SOME sign that you are about to have an outbreak, whether it be a slight tingling or other symptoms. Most primary infections are very dramatic and once in a life time events that happen 3-14 days after exposure...and they include things like fever, stiff neck, painful urination, watery discharge from the woman, itching and stinging or burning in the area, red spots that form blisters that ooze then disappear. These symtoms may last up to several weeks and their severity depends mostly on how soon one starts taking medication (acyclovir or valtrex usually). A first episode is not the same as the primary infection. Some times people never have a true primary infection because they have already built up some resistance to the virus. In these cases, the herpes appears in a milder form, usually without all those symptoms I mentioned above, but will include some, like the sore/sores or rash, or perhaps the burning sensation. Dr. Stephen Sacks, on of the authorities on herpes, says in his book The Truth About Herpes, that though herpes can appear anywhere on the body, it appears less frequently in the buttock area. That does not mean it won't show up there, it can. If you are not sure you have herpes, get one of those sores or the rash cultured as soon as it appears and you can most likely find out if it is herpes. Also, there are blood tests that specifically test for HSV. What you will soon learn is that though there are many similar experiences people with herpes have, there are just as many that are peculiar to each person. We all react physically to herpes in a little bit different way.
<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR>Originally posted by haveaquestion:
<B> Could anyone who has herpes on their buttocks share what the symptoms are like? Number of sores/spots? Tingling or pain prior to outbreak? How many? Do they form a particular shape? Itch?
Did it happen with your primary? If so did you also have sores/spots elsewhere?</B><HR></BLOCKQUOTE>
For years my only outbreak site was at the top of the separation between my buttocks. For whatever reason, there seemed to be a lot of spreading and the size wound up about the size of a quarter. I couldn't see it though, so I had to go by what others saw. I didn't know what it was for years. My doctor speculated (when I described it) it might be an ingrown hair but that didn't quite make sense to me. I finally decided to treat it like any other infection -- with respect and avoiding anything from it being in contact with others.
A few years ago the OBs suddenly started up specifically in my genital and anal areas and I haven't had an OB in the buttock area since (although I've had itching there sometimes). But while I was getting OBs there, they would last for quite a while (2-4 weeks) which might mean that there were multiple sites clustered in the same area and an OB in one would set the others off. (I'm speculating here.)
The fact that open sores were oozing was a real problem, as I would get seep-through on my clothes back there. I finally resorted to using pantyliners on my underpants to absorb it. I've shown allergies before to adhesive tape, and it's a very awkward area to cover with a bandage anyway, so attaching something to my panties seemed the best solution to protect my clothes.
My symptoms would start out with a slight swelling or stiffening in that whole area (upper buttock), where it kind of hurt to sit for very long. Then there came an absolutely maddening itch at the site! Scratching just made it worse and brought it on all the more, of course, but I thought I'd go mad if I didn't.
I also came to the conclusion that some of the itch was me actually feeling the whitehead growing. I tried not to touch it but I eventually found that if I broke the sore and let it seep out (using a kleenex or panty liner, not fingers), it helped the sore to heal a bit faster and easier. I'm not sure that works the same for everyone, so I'm not recommending it, but it worked for me. Especially in the earlier phase of this, the site would hurt and not just because I was literally poking into an open wound; the whole area was very sore.
(BTW, if you're going to try this, and if the sore is in the same place, you might want to be sitting on the toilet when you do this. I don't know if everyone's body is wired this way, but I've found that scratching that area can suddenly make me have to pee! Maybe my body is just weird. LOL)
I have had Herpes 2 for several years but around 5-7 years ago I noticed that instead of having the usual genital OB, I started having them above the buttocks, (to help Dr.s understand where I mean, I usually say "at the base of my spine") They seem to get the picture and I don't have to use words like "my crack"! First of all. I am replying because I found someone with the same scenario as me! Dr.s never tell you if something is common, unusual, etc... Most of the dr.s I tell, act like it is no big deal. No one can tell me why after years it decided to change it's exposure route. I always assumed since the virus lives at the base of your spine (CNS) that having an OB in that area was the shortest route. I never have a genital OB anymore, at least if I do, I don't even notice. And I would think in an area so tender,I would notice. I have noticed that they are more frequent in this area than they were in the genital area. Curious. I also tend to "break" mine. The one advantage to them being in that area to me is that it isn't a tender area and the urge to scratch sometimes overwhelms me. Proper hygiene of course is a must. Reply from anyone with outbreaks of this nature would be wonderful!
My understanding of why the OB site will shift like that has to do with the fact that the virus lives in and travels via the nerves. A nerve has a common source at the spine but branches out across a broad surface area on the skin. The virus can travel along any of those branches, thus producing OBs in different places from the same infection. Behind the thigh is another common OB site for some people.
Although...from what I've observed it seems to prefer to return to previous OB sites (but not always). Since my OBs suddenly spread to my anal and outer vaginal area a few years ago, I haven't had any OBs on my buttock (...which I have also described as "the base of my spine" to avoid more graphic descriptions <IMG SRC="http://www.healthboards.com/ubb/smile.gif">) ) but I have had recurring OBs on my genitals since then.
Why it will choose one location over another is not something I understand and I'm not sure the researchers have a good grasp on this either. I suspect there are many factors involved in how the virus chooses which branch to take on a given journey.
I am devastated. I have these exact symptoms except mine is on my right "cheek" yet dangerously close to the anal area. I have been having an extremely painful and ITCHY sore for several weeks now. As soon as one starts to go away another flares up right next to it. I can barely stand to sit down. I know I must see a Dr. but I am so embarrassed. I have not so much as held hands with a man (or woman for that matter) in over 9 years!!!
I started having a fear this was it when I couldn't find anything else it fit under. From my limited knowledge of this I thought it had to be on the lip or genitals.
Just two more questions.....do these sores scar. I seem to have a scar from the first two sores. I don't know if they will fade or not but so far they are still big rasberries. One is painless, while the other is still a little swollen and painful.
Is there anything I can do RIGHT NOW for this terrible pain and ITCHING!!!!! I cannot even stand to sit down or wear pants or lay on my back or anything. It is extremely sore, swollen and oh so itchy!!!
I'm so sorry to hear you're suffering so badly with it. <IMG SRC="http://www.healthboards.com/ubb/frown.gif"> I'm not clear on how long you've been getting OBs overall -- for the 9 years you mention or if the OB just suddenly appeared a few months ago (which I think is what you meant).
I completely understand how embarrassing it can be to go to a doctor with something like this, but I really think you're going to get the best help for it by doing that. Your doctor can give you some medication, both drugs and topical, that will help with the pain, itch and to speed healing.
If you're getting back-to-back outbreaks, then going on Valtrex or Acyclovir could (a) clear up the current OB now and (b) break the vicious cycle of reinfection if you continue on a preventive dosage after the current infection has healed.
In the meantime, if you're in the US you might try an over-the-counter cream called "Abreva" which is for cold sores but has been mentioned by PhoebeM (a regular poster here) as being helpful for genital herpes too.
Whatever you do, DO NOT use any cortisone-based cream on it!! This provides an ideal environment for the herpes to thrive and will make the OBs worse. Cortaid is an example to stay away from. If your doctor tries to write a prescription for a topical cream, make sure it is not cortisone based; if it is, ask for something else.
An anti-itch cream like Lanacaine might help to numb the area. An ice pack might help to bring down the swelling and ease the itch and pain a bit. And an over-the-counter pain killer can probably help with the pain.
Good luck! Let us know how you make out with it, okay?
Thank you so much for the suggestions. I'm going to try to get up the nerve to call for an appointment tomorrow. I know it will take a couple of weeks to get in though.
This is my first outbreak however it's been going on for a few weeks.
I thought of another question. About a month ago I had hurt my back. I went for physical therapy and had to lay on very hot heatings pads for about 20 minutes during that time I could feel a very very deep kind of pain. I also had electrical stimulation on the muscles in my lower back to tailbone area. Do you think this could have done something if it was laying dormant in the nerves in that area.
Thanks again for the suggestions. I've been taking massive pain killers, no help. I will try the ice packs. That whole area is very swollen and tender.
This is my first time posting although I've been coming here every day for about 5 months since I found out that I got HSV 2 from my girlfriend who had been raped (she was blood tested right after - oh if only I was educated then!). We've broken up now due to her not being able to handle the guilt of infecting me and life pretty much sucks for me now. HOWEVER, I do have something to add in this topic:
I've done amazing amounts of research and the only thing I know for sure is that nothing can be known for sure! I started with a rash where the pubic hair is and didn't change for weeks. When tiny blisters appeared I went to the Dr. and he gave me Famvir which I took for a week, outbreak got worse. It would not go away and stayed for about 6 or 7 weeks. What eventually worked was DMSO and hydrogen peroxide 3 times a day. I haven't had an outbreak in that spot since (3 months), but it popped up on my thighs and moved up my stomach and even my chest. It even showed up on my wrist! I wanted to die, for real. I now have about 4 dozen lesions from tiny red marks to healing scabs. I find a new batch every few days and they last 6 or 7 weeks!
OK, now I was wondering why my outbreak areas are changing/spreading and then I read about an experiment. I am sure all of you have heard about oxygenation (ozone, hydrogen peroxide, etc). Alot of people think this is quackery, I believe it will eventually cure all disease. The experiment involved HSV infected blood in a petri dish. Hydrogen peroxide was carefully added to a portion and the rest was left untreated. After a while researchers noticed that the virus that contacted the H2O2 was destroyed, the rest moved to the end of the dish where the H2O2 did not reach (IT KNOWS! LOL). I think because I constantly slathered H2O2 over my initial outbreak area, the virus "ran" from it. HSV hides in nerve cell ganglion and I've been doing research on this too. They say it "hides" in the sacral (base of spine) ganglion for genitally expressed HSV (1 or 2) and trigeminal (top of spine) ganglion for facial lesions. Well, this is "in general". There are four regions of the spine and the nerves supply different areas of the skin called dermatomes. The lesions on my chest were a safe haven because I was not applying H2O2 to the area of my spine that supplied the outbreak area. This is because nowhere did I hear that the virus could establish latency anywhere along the spine. My initial outbreak disappeared immediately after applying H2O2 and DMSO (to "pull" the H2O2 into the ganglion - this stuff will pull the dye out of your clothes and into your body!) and hasn't reappeared there yet, even though I get outbreaks in other areas every few days. I think I'm onto something. I've just started covering my entire spine with both substances. It's not even been 24 hours so I can't say anything yet. But I will keep you posted. Also, please remember that everything I say is just my own ideas and hypotheses. I could be wrong about my latest hunch, but I won't know until I try it, right?
Sorry for the long message. I am very messed up over all of this. But, I have hope that there is some way to rid ourselves of this. I am convinced, and I will leave no stone unturned until I find it or else I'll die trying. This board is invaluable as a place to come and share experience, research, and grief with those who truly understand. The regulars here have helped me without even knowing it and now I can say "thanks". I'll keep in touch!
The heating pads may have aggravated an OB. This virus loves a warm, moist environment and intense heat can aggravate. Forget tanning beds and too much sun exposure. If my face gets sunburned, I will sometimes get an OB on my face. While an outbreak can occur anywhere (if there is a nerve ending, it is a potential site for OB) they usually tend to go to warm and (but not always) moist places. Such as armpits, backs of legs/knees etc. As for the scars question, I say yes they do scar but the only scars I have are at the base of my spine area and my face. If they are clusters of bumps and they rupture and scab over, they will definately leave a scar. i think because the lesion runs so deep. Just like bad acne leaves scars.I don't think scars form in the genital area because the tissue is so different. Of course I can only speak for females. Soft tissue has a way of regenerating itself unlike other tissue. Unfortunately a doctor is your biggest help for comfort. And don't avoid them because of embarrassment. I kept it a secret for a long time only to realize that in their line of work, it is just another disease. They won't look at you like you are scum, they will act like you are discussing a sore throat. If they do act different towards you, see someone else. Keep in mind that this disease affects all types of people and to doctors it is a common thing these days. You will never know but they may have it themselves!
Thank you so much for the information. I had continued with physical therapy (a large part of which was laying on very hot heating pad) so maybe that is why I keep getting more sores. I cancelled todays appointment and probably won't go back.
A quick question about Abreva.....will it help relieve sores that have arleady erupted. I read somewhere to use it when you first feel pain, before they erupt?
I've been using ice packs and that feels wonderful and has given me some relief.
<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR>Originally posted by Nonexist:
<B>What eventually worked was DMSO and hydrogen peroxide 3 times a day. I haven't had an outbreak in that spot since (3 months), but it popped up on my thighs and moved up my stomach and even my chest. It even showed up on my wrist!</B><HR></BLOCKQUOTE>
I am quite alarmed to hear that you've been using DMSO for this. I'm not a medical expert, but I have heard that DMSO can be very dangerous unless you REALLY know what you're doing with it. And I have NO idea how it might react with a herpes-infected system.
DMSO (dimethyl sulfoxide), for those who don't know, is a liquid that, when placed on the skin, will "ferry" another substance deep inside body tissue. It is commonly used for getting medication into hard-to-reach locations of the body.
The PROBLEM with it is that it will not just take medication, it will take anythin else it finds too. Like you say, it can take the dye off your clothes and inject it into your body. If there is bacteria on the surface of your skin, it can take that inside too and cause infection.
DMSO must be used with EXTREME CAUTION since it can do more harm than good when not used properly. I'm saying this for the benefit of those reading this to please don't treat this stuff lightly.
<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR>The experiment involved HSV infected blood in a petri dish. Hydrogen peroxide was carefully added to a portion and the rest was left untreated. After a while researchers noticed that the virus that contacted the H2O2 was destroyed, the rest moved to the end of the dish where the H2O2 did not reach (IT KNOWS! LOL).<HR></BLOCKQUOTE>
I don't know of the study you mention, but this sounds suspicious. The HSV virus itself does not reside in the blood at all, but in the nerves. The antibodies that are generated as the body fights off the virus are found in the blood, but the virus itself remains in the nerves or on the skin where the infected nerve reaches the skin surface. This is why HSV+ people can still give blood without worry that it will infect anyone; because the virus itself is not in the blood.
So I don't know if your facts are confused or if the study is suspect or what, but what you're saying doesn't quite make sense.
<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR>I think because I constantly slathered H2O2 over my initial outbreak area, the virus "ran" from it.<HR></BLOCKQUOTE>
Whether it "ran" as you say or just forced the virus to branch out to new areas, I would be concerned that using H2O2 might be causing as many problems as it is solving for you. From what you say, there may be beneficial effects in the short-run but it sounds like it might be causing worse problems in the long-run.
I don't know anything about oxygenation, as you talk about, and it may well offer many health benefits. But HSV is a very tricky monster and I would be very careful that you don't wind up creating more problems for yourself by experimenting with it.
An example of something that seems to offer benefits but in fact does more harm is cortisone. It is often used as an anti-inflammatory cream, which would seem to make it ideal for herpes outbreaks, but in fact it provides an ideal environment in which HSV can thrive and spread.
It's your body and I'm not trying to say don't explore, but I would strongly recommend that you work closely with a researcher or researching doctor about this, since it is so highly experimental. And ESPECIALLY if you want to work with DMSO, which can be very dangerous and is a very controversial substance.
I also feel concern that others might read this and try to experiment too, and wind up doing more harm to themselves.
Experimentation is certainly important with incurable conditions like ours, but needs to be done with great caution and preferably in conjunction with someone who really knows what they are doing and has the experience to back it up. Please be careful with yourself and with how you present information to others who could do damage to themselves.
<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR>Originally posted by mater:
<B>Thank you so much for the information. I had continued with physical therapy (a large part of which was laying on very hot heating pad) so maybe that is why I keep getting more sores. I cancelled todays appointment and probably won't go back.</B><HR></BLOCKQUOTE>
Well, just wait until you're OB is better. Or ask the physiotherapist if there is a non-heat therapy you can try. You don't have to tell him/her why, just say it's uncomfortable and you have your reasons.
<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR>A quick question about Abreva.....will it help relieve sores that have arleady erupted. I read somewhere to use it when you first feel pain, before they erupt? I've been using ice packs and that feels wonderful and has given me some relief. [/B]<HR></BLOCKQUOTE>
I'm so glad the ice pack has helped! I honestly don't know much about Abreva than what I told you, but the package should probably say. Whatever it says for cold sores should theoretically apply to HSV2/genital OBs as well.
Thanks for your insight 1in4. I will have to check that study again, I retyped it from memory. If it says it was in the blood, then I know it's BS. As for the DMSO, supposedly because of the oxygen content it will destroy any bacteria, virus, and other harmful microbes that it comes into contact with. If it does bring the H2O2 deep enough into the tissue to reach the nerves, then it should kill the virus that resides there. Some NFL coaches use DMSO for muscle inflammation, it's not too dangerous if you know what you're dealing with.
As for the chaos with my OB sites, I agree with 1in4 that I may have forced the virus to move to a new batch of nerves. But, that's a good thing. That's why now I'm treating the entire length of my spine. This way there's no place for it to go, and it gets oxidized. This is my little experiment and I HAVE to go through with it, to find out for sure.
The people who control the medical industry are billionaire CEOs who fund the FDA and AMA and have a lot to lose if these oxygen therapies are widely known. These people are condemning us to live with this horrible virus and the potential for a cure through oxygenation has been known for half a century (for this and many other diseases such as AIDS, cancer, Hepatitis, etc.). Don't let them win, don't believe their lies. I urge you all to research the politcal side of the oxygen/ozone war and you will realize that money is the only reason we may have to live with this until we die. I made a promise to myself that I intend to keep:
<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR>Originally posted by Nonexist:
<B>As for the DMSO, supposedly because of the oxygen content it will destroy any bacteria, virus, and other harmful microbes that it comes into contact with.</B><HR></BLOCKQUOTE>
This is not what I've found from reading various sites about DMSO. In fact, most sites will advise extreme caution about making sure you use gloves when applying it (e.g., on horses, where it is often used). It is considered dangerous when DMSO gets combined with bacteria or fungus when entering tissue. In many people and animals, it can also cause skin irritation and allergic reactions, especially when used frequently or in large quantities (which for DMSO isn't much).
If you are going to use the stuff, I would strongly advise doing more research and reading about it to make sure you are not doing more harm than good to yourself. At the very least, I would make sure the skin surface and all instruments are squeaky clean and preferably sterile. A good swab with alcohol would be a good place to start, but if I was to try it myself I would do a lot more reading up about it and how to avoid problems with it.
<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR>If it does bring the H2O2 deep enough into the tissue to reach the nerves, then it should kill the virus that resides there.<HR></BLOCKQUOTE>
To be honest, that sounds like quite a leap of logic to me. I'll give you that **maybe** oxygenation **might** theoretically help squelch the virus in its active form (putting it back into dormancy and ending the current outbreak). But you sound like you're convinced that it will eradicate the virus completely from your system. Maybe I'm not reading you right, and far be it from me to discourage ambitions of a cure, but I would not want to assume based on "maybe's" or "if's" or intuitive logic when the stakes are so high (passing it on to others and possibly making yourself worse).
<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR>Some NFL coaches use DMSO for muscle inflammation, it's not too dangerous if you know what you're dealing with.<HR></BLOCKQUOTE>
That's precisely my point -- you must absolutely know what you're doing. People reading a message like yours, which encourages them to try it, may not be vigilant about proper precautions or do a lot of reading into it, and so won't know the best way to handle it. When I read some of your confused and conflicting facts and information I am concerned about you experimenting with it too, to be honest.
<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR>As for the chaos with my OB sites, I agree with 1in4 that I may have forced the virus to move to a new batch of nerves. But, that's a good thing. <HR></BLOCKQUOTE>
What on earth would make you think that's a good thing?? First of all, you're *guessing* that that's what happened. There's nothing scientific to back it up, other than inference from one study that sounds very suspicious.
Second, you're assuming that IF it did move into a new ganglion, it therefore left the old one. Again, there is nothing to support that. Even a lack of OBs in the old areas is not reliable evidence that the virus has left that area, since people go for long periods without OBs all the time.
Third, even assuming it has indeed entered another ganglion, that doesn't sound encouraging to me. It sounds scary. You might simply have caused it to spread, period. You might have caused some other problem to occur unrelated to what the herpes virus is doing.
If DMSO will transport substances like bacteria and fungus through the system, why not a virus too? That's speculation, but since you're not restricting yourself to established facts, you really have to take possibilities like that into account.
I have never heard of herpes moving from one ganglion to another other than through a new transmission at the skin surface. Again, I'm not a medical professional or researcher, but my understanding is that, for example, if you have oral herpes you won't spontaneously get OBs in the genital region -- it stays in the ganglion where it was first introduced. I believe that the only way it gets into any other nerve ganglion is via a new entry through the skin. I may be wrong on that, but that's the gyst of everything I've ever read on it.
<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR>That's why now I'm treating the entire length of my spine. This way there's no place for it to go...<HR></BLOCKQUOTE>
Except the brain. If you're really convinced that it is capable of pushing the virus around the nervous system, I wouldn't rule out the possibility of the brain being affected. It would be consistent with that line of thinking. Again, I'm not necessarily trying to squelch your ambitions or high aspirations, but I think you need to be a lot more thorough in thinking through what you're doing and how it might work, to prevent doing yourself harm.
<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR>This is my little experiment and I HAVE to go through with it, to find out for sure.<HR></BLOCKQUOTE>
Like I said, it's your body and you can make your own decisions about it. My concerns are (a) don't do more harm than good to yourself in the process, and (b) please don't encourage others to try something that is highly experimental, potentially dangerous and unsupported as yet by any studies.
You mention the drug companies. Drug companies have become notorious for releasing drugs and treatments only to find later that there are dangers associated with them. The downfall of these drugs is often lack of sufficient testing combined with too many assumptions that it will all be okay.
Please don't make the same mistake yourself by just assuming what you are doing is safe or that others will be safe if they try it too.
When drugs are forced off the market (e.g., by the FDA) it's not because they don't work, but because their dangers outweighed their benefits. I urge you to keep this in mind when you try new things. Just don't harm yourself needlessly in the process of trying to help yourself. Please be overly careful. <IMG SRC="http://www.healthboards.com/ubb/smile.gif">