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Old 02-07-2001, 08:02 AM   #1
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Stopping Lipitor

Hi,

I have been reading most of the post's here and would like to join in. I had a triple bypass 2 years ago (at age 47) and have been on 20 mg. of Lipitor since then. Everything seemed to be going alright,no side effects, my cholesterol numbers were down from 265 to 210 and I was able to resume my enjoyment for running. Only 6 months after surgery I was able to run a 5K and felt great. Now my legs and back are extremely sore everyday and I can barely walk a mile. I mentioned this to my doctor and he said it's not the Lipitor, "any side effects would have shown up sooner". I don't believe him. Does anyone know if this is true?
I want to get off this Lipitor but my wife is totally against it. I don't blame her, I'm very concerned myself. She want's to know why I want to gamble with my life because of some soreness. Well, it's not just soreness, it's getting worse and I need to do something about it. I'm miserable
I guess I'm looking for some encouragement on switching from the drugs to a more natural way of lowering my cholesterol. I have always had faith in doctors and drugs, so, giving up on them is a scary proposition. Taking this drug for the rest of my life is scary too.I'm determined to quit taking this drug and I have come to the realization that my doctor is not going to be much help.
My cardiologist say's there's a blood test called a CPK test to determine if the Lipitor is causing any muscle damage. Has anyone taken this test? Did it determine the soreness was caused by the Lipitor?
Thanks for listening,
DaveMc

 
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Old 02-07-2001, 09:06 AM   #2
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Re: Stopping Lipitor

This is quite a situation that you are in. The best way to find out if the lipitor is causing these muscle effects is to quit taking it for a month and see if there is any improvement. It is best, though, to do this with your doctor's involvement since you have a history of coronary artery disease. Sounds to me like you need to confront your doctor and force him/her to work with you. Get second, third and even fourth opinions if you have to. I also get the hint that you need to force some better communication between your primary and your cardio.

This is a common side effect of lipitor and you need professionals that will listen to you. Unfortunatly, you are one of the people that really need to be taking a statin drug if at all possible due to your history. There are other drugs, and other medical therapies, so take control and get your doctors working for you, not you working for them.

Good luck and please be careful.

<p>[This message has been edited by Dave345 (edited 02-07-2001).]

 
Old 02-07-2001, 09:24 AM   #3
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Re: Stopping Lipitor

Hi... My hubby had his ateries cleaned about 7 years ago and then went on Lipitor. He seemed to be doing fine, except for some pains and aches, but blamed it on his other meds., as he has type 2 diabetes and high BP. Only after I went on it last year and got very sick, mostly stomach problems, no appetite and lose of weight, did we research this STATIN stuff. I went off the Lipitor and then went on Baycol. Things seemed fine till the 3rd month and it started just like the Lipitor. Now both hubby and I refuse to take them. Since hubby has been off he is going to the gym almost daily and can wear shoes he hasn't worn in years, as the foot pain was really bad. Yes the dr. was a bit upset, but his cardiologist said there are plenty of other meds, out there to try, as not everyone can take the Statins. My dr. also is putting me on Questran Lite, which I will start soon. Like Dave said, don't just up and quit, especially with your heart history, but DO get your dr., especially the cardiologist to work with you. Keep us posted and the very best of luck. God Bless.

 
Old 02-08-2001, 07:29 AM   #4
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Re: Stopping Lipitor

Thanks for the reply's. I'm going to talk to my doctor about it and let him know my concerns. If he doesn't want to help me get off Lipitor, I'll find one who will.
I'm also going to take the CPK test next week along with a cholesterol test to see
what's happening with my body. I know I need to take my diet more seriously,
and get more involved with my doctors. Although, I am very tempted to just stop taking Lipitor and see what happens. I'll talk to the doctor first. Thanks again!

I wish you all the best,
DaveMc

 
Old 02-08-2001, 09:43 AM   #5
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Re: Stopping Lipitor

Keep us posted how it goes. Yes, take your diet and your involvement with your drs. very seriously. I couldn't get anywhere with my first dr. so after 5 months I dumped him and found a new one. I wish I had my old dr. of 30 yrs. as he was so easy to talk with, but he retired. Getting accquainted and trusting a new one is a little tuff after being with one so long. Good luck.

 
Old 02-08-2001, 08:49 PM   #6
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Re: Stopping Lipitor

Dave, good luck with this. Please be careful, also. It sounds like your wife is a very caring and concerned person that is really trying to look out for your well-being. She needs to understand that this is a good sign of a potentially serious side effect of lipitor. There is a post down the list from a fews days back from a lady called "Di" where I repeated some of my experiences with 10 mg. of lipitor. That started with nagging soreness in my back, so don't waste time fooling around with this. There are a lot of different drug classes and drug therapies that can get the job done, as well as "natural" supplents. Take care and be well and please do keep us informed on how things work out.

Dave

 
Old 02-09-2001, 07:34 AM   #7
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Re: Stopping Lipitor

Dave, I've read the message and can't imagine having that much of a reaction to a drug that is supposed to help you. I'm not having any problems with my eyes, however, my back is just as you described "nagging" and I can't stand up straight. My legs (especially the calf's & knees) are always sore and weak. Going up a flight of stairs is a painful experience. I'm going to get that CPK test Tues. morning
and I'll post the results as soon as I get them.



Take Care,
DaveMc<p>[This message has been edited by moderator3 (edited 02-09-2001).]

 
Old 02-09-2001, 10:13 AM   #8
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Re: Stopping Lipitor

Hi
I, too, had the same side effects from taking Lipitor. Mine didn't get really bad for over 1-1/2 yrs. and then it was so bad that I couldn't walk up a flight of stairs without pulling myself up on the railing. Still not realizing what was causing it, I kept on taking the drug. Then when cleaning the floor, I simply could not get up without crawling over to a piece of furniture and using my arms.
Then, what a blessing to discover this message board!!!!!! My eyes were opened then, I tell you, and I did go off Lipitor after talking to my dr. He really didn't think that the drug had anything to do with it. But within 2 weeks, much less leg weakness and getting better each day. The numbness on the bottom of my feet I have abit to this day almost 2 yrs. after quitting. Could be because he put me on Zocor and then on Baycol but both gave the same problems but not as severe. So now it's Pravachol and with no problems--yet. Been on it a mo. so will see.
Sorry this is so lengthly, but yes, Lipitor can be wicked for some people and okay for others. Keep after your dr. to do something. None of us should have to suffer like this from something is supposed help us.
Good luck.

 
Old 02-12-2001, 07:43 PM   #9
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Re: Stopping Lipitor

Wow this sounds just like me when i was taking lipitor , I would wake up in the morning and I could barley walk to the bathroom my feet and knees hurt so bad . It also gave me peripheral neuropathy (bad numbness in both feet ) too , which has not resolved itself thoug it's not nearly as bad as when I was taking lipitor , they can have these miracle drugs , have these idiots ever thought of maybe dosing this in maybe 2.5 mg istead of trying to feed everyone 10 mg or higher .


<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR>Originally posted by JB:
<B>Hi
I, too, had the same side effects from taking Lipitor. Mine didn't get really bad for over 1-1/2 yrs. and then it was so bad that I couldn't walk up a flight of stairs without pulling myself up on the railing. Still not realizing what was causing it, I kept on taking the drug. Then when cleaning the floor, I simply could not get up without crawling over to a piece of furniture and using my arms.
Then, what a blessing to discover this message board!!!!!! My eyes were opened then, I tell you, and I did go off Lipitor after talking to my dr. He really didn't think that the drug had anything to do with it. But within 2 weeks, much less leg weakness and getting better each day. The numbness on the bottom of my feet I have abit to this day almost 2 yrs. after quitting. Could be because he put me on Zocor and then on Baycol but both gave the same problems but not as severe. So now it's Pravachol and with no problems--yet. Been on it a mo. so will see.
Sorry this is so lengthly, but yes, Lipitor can be wicked for some people and okay for others. Keep after your dr. to do something. None of us should have to suffer like this from something is supposed help us.
Good luck.</B><HR></BLOCKQUOTE>

 
Old 02-12-2001, 09:45 PM   #10
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Re: Stopping Lipitor

Isn't amazing how we all had such similar side effects, but the drs. still say NO WAY, is it the drugs! I'm glad I was so firm and told my new dr. I refuse to take them any longer. I know I have to take something, as I don't want it out of control, but I agree they should be in smaller doses. Seems all the drs. want is to get those numbers down in such a hurry. Like anything in life, start small and work up if necessary.

 
Old 02-16-2001, 04:02 PM   #11
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Re: Stopping Lipitor

Interesting to find that after my blood test this past week, I find the Pravachol working just fine at 20 mg. and still no side effects --yet. I am waiting for that to kick in as it did with Lipitor, Baycol, and Zocor. Been on Pravachol 1 mo. now, so will see. I can't believe that SOMETHING won't show up pretty soon and it will be back to the same old thing of hurting each day. I will keep everyone posted as we go along here.
I am very much thinking that if this one doesn't work out, I will go on something natural, if possible, so I am closely monitoring all people's comments on their success with alternative treatments.
Good luck to us all!!!!!!

 
Old 02-17-2001, 09:15 AM   #12
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Re: Stopping Lipitor

Well JB, I wish you luck with the Pravachol. We'll keep our fingers crossed that there's no reaction this time. Did the Dr. put you on Provachol immediately after the other drugs? The reason I ask is, I just got my test results in yesterday and he want's to raise my dose of Lipitor to 40 mgs. WOW... I told them (over the phone) I needed to get in there and talk to the Dr. about dropping Lipitor altogether. I'm going to see him next Thurs. about this.
I'll ask him about Provachol. It may help me as well.
My numbers are: Chol. 178, HDL 28, LDL 103 & Trig. 233
I really don't find those numbers all that high, except my HDL should be higher.
Certainly not high enough to double my dosage of Lipitor!! My Dr. is in for
an ear full <IMG SRC="http://www.healthboards.com/ubb/smile.gif">
The CPK test (the one that shows muscle damage) is very confusing to me.
The results I received has a handwritten note that says "normal"... !!? The lab
statement has a ref. range of between 24-204,and my number is 185. That will need to be explained to me as well. My first question to him...DO I have muscle damage or not?
I have been dieting since my first post and have dropped 8 lbs. and some of my soreness had subsided a bit, but came back with a vengeance this morning. I can't imagine doubling my dose of Lipitor <IMG SRC="http://www.healthboards.com/ubb/frown.gif">
I'll let everyone know how this Dr. visit turns out.
Good Luck with your battle and keep us updated on the progress!

DaveMc

 
Old 02-17-2001, 10:41 AM   #13
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Re: Stopping Lipitor

Ok Dave, CPK results at that level show that there is some inflammation in your muscle tissue somewhere in your body. Most labs use a pretty wide "normal" range on nearly all of their tests. The key question here is what is your normal baseline range. Unfortunately, you and your doctor don't have that information. The only way to find out would be to stop the lipitor for a month to six weeks and redo the CPK values to know what the baseline reading for your body would be. Quitting the lipitor now for a short period of time is also the best way to find out if it is causing the soreness. When I flushed the lipitor down the toilet, it only took about six days before I started to feel a whole lot better.

Good luck since it sounds like you are about ready to give your doc his marching orders. I personally don't care how high or what my cholesterol levels get, I will never take another statin drug again. I looked into red yeast rice formulations this week, and decided not to take them, either. This is just another statin drug and I will not take it. I just got my results back this week and they weren't great, but that is as good as they are going to get for now.

Let us know how the "talk" with the doc goes.

Dave

 
Old 02-17-2001, 10:48 AM   #14
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Re: Stopping Lipitor

With those numbers I don't understand him wanting to double the dose either? I know when hubby's trigs. went up over 400 the dr. doubled him on the Lipitor to 40 mgs. and he was sick as a dog. He called his cardiologist and he disagreed with the family dr.. He put him back to his regular 20 mgs. because he said Lipitor isn't so great for trigs. anyway. That is when he wanted him to switch to the Niaspan, but of course hubby has now refused to take anything. He is waiting for his next dr. visit, which is in a couple of weeks to see what the numbers are. He is watching his weight, going to the gym every other day and hopeing for some good news this time. He has become so active since being off those Statins, he is totally against them. I still haven't started my Questran Lite yet either, as I am still trying to get this BP down to normal. It was doing fine the last 3 weeks on 2.5 mgs. of Altace, but spiked thursday and friday to about 146 over 89 and I know he wants it below 130. Guess if it keeps spiking I will have to go to the next dose of 5 mgs. Good luck to all of us, and hope we can get in shape both physically and mentally. I have been a wreck for over a year with all these damn drugs. Take care, and God Bless. JJ

 
Old 02-19-2001, 03:12 PM   #15
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Re: Stopping Lipitor

Hi
To answer your question, DaveMc, about when I began taking the Pravachol after stopping with the Zocor--it was about 2 weeks. I have had to wait 2 weeks between all of these drugs--don't know why-maybe to clear the old drug out of the system.
I cannot imagine taking 40 mg. of Lipitor. I was so sore and hurting with 20, but some people can do so and have no problems. However, with problems already at 20 mg., I don't think 40 mg. will make the aches, etc. get any better.
The only thing that I know to bring up the HDL is exercise. 30 min. a day for 4 days a week and it can be as easy as walking. It keeps my HDL's up in the high 50's. It's worth a try and is very easy to do unless, of course, you live as I do this winter in the snowland of the north. Then I go to a Mall and walk there.
I guess that I would definitely talk with my dr. about that big increase of Lipitor before I swallowed even one pill.
Still no problems with Pravachol-I keep waiting for the bomb to fall and to feel like something forgot to tell me that I died or something because I feel so bad. (ha).
Good Luck

 
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