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Old 06-29-2007, 11:13 AM   #1
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Beth re: Clonidine

Hi Beth,

I'm so excited for you regarding your b/p decrease. Just the boost you need for job hunting. I couldn't find the info about using Clonidine for Pheo. From my perspective it doesn't sound like a good idea. It made me so nervous & jettery besides the mental clouding. I think it increased my b/p but couldn't tell for sure because of all the nasty side effects which probably raised it. Oh, & I wanted to ask you if your Dr. had you titrate HCTZ when you took it. I've read that slowly introducing some drugs helps to decrease side effects. Hope everything continues to go well for you. Fam

 
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Old 06-29-2007, 12:00 PM   #2
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Re: Beth re: Clonidine

Hi Fam,

Just thought I'd take a moment to check the boards and immediately saw your post! Thanks for the words of encouragement and support re: the bp readings. This am it was 120/70 but I check it throughout the day....I did have one day where it went over 160/90 but only one day in the last 5 weeks isn't bad, so I continue to monitor and will proceed accordingly. My last bp med interfered with my sleep so I stopped taking it one day (so I could get uninterrupted sleep that night) and slept so well that I just couldn't bring myself to taking another pill....and my bp just dropped. I do think the side effects can elevate bp but I have no proof...and I have some other theories as well, but will keep them to myself until I am convinced my bp is under control....and yes, I do not fool myself into thinking I do not have high blood pressure---I certainly do, but I can control how to manage it.

As far as the clonidine goes, I have read that they do a "clonidine suppression test" to test for pheo! When I saw "clondine", I thought of you and your bad reaction. I've reread the info on it and from what I understand, it is a one time oral dose---blood is drawn before and after, and then tested for results. Beta blockers and thiazide diuretics (among other things) can give a false positive and for that reason these meds are discontinued 48 hours before the test.

As far as the hctz goes, I started out on a low dose, either 12.5 or 25 mg, but I would have to check. It was effective at lowering my bp immediately. However, my bp crept up and the dose had to be increased. I believe that the reason my bp crept up was because the fatigue interferred with my energy level so much that my lack of activity and my poor eating habits contributed to the problem.

But I would agree with your doctor about slowly introducing a med....and I will keep that in mind when I go on another med, as undoubtedly, I will need to.

Oh, and as far the hctz goes, it is one of those drugs that was never tested on older adults!!! Which kind of blows my mind since it is so widely prescribed. Will have to do a little blurb on the boards regarding that info...

The job hunting hasn't started yet, despite my accumulating debt. I really need to focus on diet and exercise now so I don't "relapse"...will set a goal of Sept 1 for employment but must be active now for lots of reasons.

I'm awful glad we're "staying in touch". I think of you often and hope and pray that your health improves daily.

Bsheba

Last edited by bethsheba; 06-29-2007 at 12:03 PM. Reason: typo

 
Old 06-29-2007, 04:19 PM   #3
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Re: Beth re: Clonidine

Now I remember reading about a "Clonidine Suppression Test." I'll be very interested in your theories regarding b/p & the info re: HCTZ. It took about a month for it to decrease my b/p. I'm the one not the Drs' who insisted on titrating most of my meds. I'm working on cutting down my calories. Lately, I've had trouble with some foods causing stomach problems. I'm down to 162 most days from 166 so I'm going in the right direction. Losing wt. & refining my stress reduction program are my only hopes in decreasing my b/p at the moment. Some meds do indeed increase rather than decrease b/p in certain people. That reaction is called a Paradoxical effect. The pkg insert for Clonidine lists that for a side effect for some people. I had initially asked my PC Dr. what that meant & she said she didn't know. Then I looked up the word to see if it meant what I thought it meant. A pharmacist confirmed my suspicion. I think the stress of dealing with hypertension (Drs, drugs, lifestyle change, etc.) does increase stress which in turn increases b/p to a certain degree especially those of us who have resistent HBP. I wouldn't worry about a few b/p increases. It's sustained b/p that causes the problems. Take care. Fam

 
Old 06-30-2007, 11:20 AM   #4
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Re: Beth re: Clonidine

Hi Fam,

I don't know how long it took for hctz to decrease my pressure but I was checked after 1 month and it was normal at that time. I'm glad you shared your experience with titrating the medication. More people (myself included) need to know what our options are! We need to be proactive because if we aren't, it's very possible our health could spiral downwards out of control---and we wouldn't be the first.

I'm sure you're please with your weight reduction! It's marvelous and I'm confident you'll continue to lose...those first pounds can be the hardest sometimes. I haven't done anything about my weight but must do so as I am 50+ overweight and I firmly believe that if I was a normal weight bp would not be an issue for me. But the pounds didn't pack on overnight so I can't expect them to fall off overnight (unlike the week after I disco'd atenonol, GRIN!), so I must start working at it. A friend of mine has lost over 100 pounds of weight!!! And wouldn't you know she didn't have high blood pressure when she was at her highest---but she doesn't eat meats so I guess it's understandable.

I appreciate the info on Pardoxical Effect! I wonder if it is a bio-chemical effect or is it a reaction to side effects? Maybe both? At least now I have a term I can do some research with. Although I used to think that my weight gain on bp meds drove up my blood pressure, I'm now thinking otherwise---I've only lost about 12 bp med pounds but my pressure continues to hover in the 120-70 range...but who know? Maybe my sleep apnea treatment has kicked in. I WISH I had treated my apnea before I started taking bp meds....I think alot of my problems could have be avoided had I done this..

Oh, and last but not least, I was talking with a friend yesterday and her doctor is a professor at the university....they have a satelite clinic about an hour from here (which I had known about but had forgotten) so I'm going to see if I can't get a doctor's appt at that clinic. My FORMER doctor told me I would always be on medication...and I suppose someday, given my poor eating habits, I may. BUT, right now, I consider myself prehypertensive, and given the side effects I personally have experienced on meds, I will risk not taking meds at this time in my life, and consentrate on diet and exercies.

Alas, again I ramble. Oh but I also wanted to thank you for the heads up on reading materials in a previous post. Must hit the libraries.

Thanks again for your feedback, insights, and support as I appreciate and value all!

Bsheba

 
Old 07-05-2007, 09:23 AM   #5
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Re: Beth re: Clonidine

Hi Beth,

I'm curious about your friend who lost 100 lbs. You mentioned that she didn't eat meat & didn't have HBP. Do you think there is a connection? I don't eat meat, chicken, or fish,but I do eat eggs & cheese. I'm making a big pot of veggie soup & pea soup today. I freeze most of my food so I can just take small portions out. Because of my acid reflux I find it easier to eat in the am & then just have milk at supper. That way I can swim in the afternoon without having to wait until my food leaves my stomach. I'm behind in my cooking. If I have good healthy food ready then I won't be as likely to eat too much bread etc. Have you tried listening to books on tape etc while walking etc. There was an article that mentioned pairing something you like with something you don't. Simlar to my pairing raspberry jam, pumpkin, & yogurt with my Lebetalol (in liquid form) or as Mary Poppings said "A spoon full of sugar makes the medicine go down." Fam

 
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