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Old 09-25-2008, 08:09 PM   #1
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Question New to boards, my 15 y/o Teen has High Blood Pressure...?

Hi, I'm new to the boards and I am hoping to get some answers or help. I've about had it with doctors and the run around. Here's my situation, any help is greatly greatly appreciated. Sorry, I'm gonna try to not make this too long!

My daughter turned 15 in February, but last October (she was still 14) our school nurse started noticing that she was registering higher numbers than normal for her blood pressure. At the time, she was playing basketball and our school nurse is always checking the kids out on an every two week schedule when they are active in sports. So after 2 months of steady high readings, she calls me and says she's very concerned. I take Samantha to our family doctor, he says it's "higher than he'd like" but he'll see her again in a month to recheck it and he sent us for blood work. Month later, it's still high, blood work normal. Blah blah blah run around for 3 months before he sends us to a cardiologist.

Cardiologist does Echo (and ONLY an Echo) and determines heart is enlarged. Sends us to a kidney (Renal) specialist.

Renal specialist does and continues to due a ridiculous amount of blood work, MRA Nuclear Studies, CT, X-rays, Ultrasound, the whole works. No answers to why. Puts her on Topril XL .25 mg and has us buy an OMRON wrist cuff and we begin keeping diary of morning and evening readings. We were seeing him every month and now he wants to see us in 6 months. Says it's probably genetic since my mother has high blood pressure. (My mother did not develop high BP until she was in her late 50's only AFTER having out of control diabetes and severe bouts of depression). I'm not happy with that "conclusion".

Last week Samantha passed out when she was getting water from the fridge (had been complaining about headache) and this morning the warning on her BP cuff signaled "abnormal heart rhythm detected". Renal doctor said to call cardiologist. Cardiologist closed today.

Oh, yah, I should mention....Samantha 15 y/o female....runs cross country (distance running 6-8 miles a day), then plays basketball all winter, spring time brings track where again she runs distance and starts running her 6-8 miles outdoors again and off the treadmill. She's 5'10" tall and weighs 127 pounds. Does not do drugs, smoke or drink. Does not drink caffeine or pop (occassional hot tea). Drinks lots of water and lemonade. Not much fast food.

I want to arm myself with some information. I don't know what to do anymore??? Everything I google implys overweight kids, bad eating, inactive, etc... I want to be able to ask the doctors questions that I should be asking but I don't know anything about teenage high blood pressure in healthy active kids. Are there other tests? Should we go to the Cleveland Clinic? I feel helpless. Any advise, anyone? Bless you for your time!

 
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Old 09-25-2008, 09:37 PM   #2
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Re: New to boards, my 15 y/o Teen has High Blood Pressure...?

Based on what you posted and all the research on the internet I done in the past 3 months. It sounds like your daughter may have an abnormal operating heart or just plain abnormal heart of some kind.

But actually with all that exercise, the bp should not be high. But if your daughter passed out, maybe she might be going through excessive anxiety?? maybe?

 
Old 09-26-2008, 03:04 AM   #3
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Re: New to boards, my 15 y/o Teen has High Blood Pressure...?

I am not 100% sure, but i'll take a guess here. First of all sorry for your problem. I know you are very worried about your child. If she passed out that may have been an episode of vasovagal or dysautonomia as they call it. The actual condition dysautonomia is a syndrome or a group of disorders of the autonomic nervous system that can present with low BP,and make someone pass out, and sometimes with high BP and sometimes with both. They can cause your heart to beat very fast,slow or irregularly. It's a very confusing disorder and the symptoms come and go and are often sub-clinical and hard to prove and doctors find nothing wrong upon examination, and then tell you your crazy.

It affects women more than men and often young women. It's a disregulation of the autonomic nervous sytem and can presnt with excessive sympathetic or parasympathetic symptoms or a combo of both. It can occur after a serious injury,trauma, or even as common as a virus, like after the flu. There maybe a genetic predisposition to it. Sometimes it fixes itself with time, other times it lasts for many years. People learn to live with it and take meds to control symptoms as there is no cure. These are the basics of it. Maybe you'd like to do some research and see if anything sounds familiar. At least your daughter is on medication, and I am sure that is helping with the BP, though it does not solve the underlying problem. Bless you and Sam too-

 
Old 09-26-2008, 04:35 AM   #4
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Re: New to boards, my 15 y/o Teen has High Blood Pressure...?

Your daughter's symptoms do sound a lot like dysautonomia. I just got diagnosed with this. I took 2 1/2 years before one of my doctors discovered this. Most doctors have maybe read about it, but don't know how to treat it. You have to find a doctor that knows about dysautonomia and he will tell you there is no cure and he can only treat the symptoms. If a young child gets it, she may grow out of it.
I was a runner and very active until I started with high blood pressure, then fatigue, dizziness upon standing. My symptoms did not come along all at once. Now, the more I do, the worse I feel.

 
Old 09-26-2008, 07:23 PM   #5
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bethsheba HB Userbethsheba HB Userbethsheba HB Userbethsheba HB Userbethsheba HB User
Re: New to boards, my 15 y/o Teen has High Blood Pressure...?

Quote:
Originally Posted by AMack815 View Post
... Says it's probably genetic since my mother has high blood pressure. .... I'm not happy with that "conclusion".
I'm glad you didn't fall for that line...it's a cop out...although there are studies to see if there is a genetic relationship, at this time there is nothing conclusive, per the US government.

When hypertension is detected in a young person it is often due to a secondary condition...and it sounds like your daughter's doctors have looked for some other cause. One condition that is often overlooked because it is thought to be "rare" is pheochromocytoma...(personally, I don't think it's all that rare...it's just that doctors don't think of looking for it, or they don't use the best tests out there). You might do an advanced search for some older posts on pheo....I suspect you might find some similarities, but more importantly, some guidance on what tests should be done to rule out this condition because, if I understand this correctly, there are only a few laboratories in the country that have good diagnostic tests for this condition.

Take care and good luck!

Bethsheba

Last edited by bethsheba; 09-26-2008 at 07:25 PM.

 
Old 09-27-2008, 04:46 PM   #6
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Re: New to boards, my 15 y/o Teen has High Blood Pressure...?

Also the enlarged heart concerned me. I know you said she had an echo, but has any other studies been done such as stress test? Toprol in and of itself can cause syncope episodes cause someimes it will cause the heart rate to go too low <60.
Toprol is a rough drug for adults, let alone a child.

Has congenital cardiomyopathy been ruled out? This disease is diagnosed frequently in teens playing sports cause often they will faint on the sports field.
I think you mentioned her kidney function is ok.
I would take my child to the Cleveland clinic in a heartbeat.
Bre

 
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