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Old 10-20-2009, 07:12 AM   #1
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HealthBoards Saved My Life! Sudden Spikes in Blood Pressure

I had been having episodes where my blood pressure would suddenly skyrocket and I would have chest pains and in general just feel like I was having an adrenalin rush. I thought I was having panic attacks. I went to the Doctor and he prescribed me an anti depressant, which did no good. To make a long story short, nothing my doctor did would fix the problem. I googled my symptoms and came across this thread on HealthBoards: http://www.healthboards.com/boards/showthread.php?t=56544

That thread mentioned pheochromocytoma. I did some more research on pheochromocytoma, and the symptoms I was having exactly matched those of pheo. I told my doctor, and he just dismissed the suggestion, and told me I should quit using Wikipedia. A month later, after none of the drugs he had prescribed were working, I finally convinced him to do the test for pheochromocytoma. My "fractionated metanephrines" were ten times higher than the upper end of the normal range. He sent me to an endocrinologist, and the endo confirmed that I have a pheochromocytoma. These things are ALWAYS FATAL if left untreated! Fortunately, I'm getting mine treated. I'm having surgery next week. But if I hadn't found that thread on HealthBoards, I never would have known! Thank god for the internet, and thank god for HealthBoards.

By the way, the endocrinologist prescribed me something that has completely eliminated the "episodes". I'm finally sleeping through the night without waking up with a pounding chest and trouble breathing.

 
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Old 10-23-2009, 08:55 PM   #2
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Re: HealthBoards Saved My Life! Sudden Spikes in Blood Pressure

Wow! What a story. You are certainly your best advocate for your health. I'm glad to hear you are getting teatment as you need it.

 
Old 04-20-2010, 01:36 PM   #3
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Re: HealthBoards Saved My Life! Sudden Spikes in Blood Pressure

I am having the same symptoms and am waiting for test results for pheochromocytoma. I would love to know what the doctor prescribed for you to eliminate the episodes.

Thanks..Laurie

 
Old 04-21-2010, 02:14 PM   #4
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Re: HealthBoards Saved My Life! Sudden Spikes in Blood Pressure

Hey Laurie, the endocrinologist prescribed two drugs, an alpha blocker and a beta blocker. The alpha blocker is an old-school blood pressure drug and it's rarely used anymore except to treat pheo's pre-surgery. The generic name is called phenoxybenzamine, and the brand name is called Dibenzylene. The beta blocker he used was called propanolol. The two drugs combined completely eliminated my symptoms until I had the surgery. After the surgery they stopped both drugs immediately and I never had the "episodes" again.

Good luck! If you have a pheochromocytoma make sure you get a good surgeon and especially a good anestheologist.

Sam

 
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