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Old 10-11-2005, 02:07 PM   #1
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Peripheral Neuropathy

Had a questionable encounter almost 3 months ago and plan on getting tested very soon. I have several questions and thought you all might be able to help out....#1 Had severe flu-like symptoms 4 weeks after encounter (mid - August). The symptoms lasted about 20 hours and then were completely gone. I know some people develop flu-like symptoms several weeks after infection by HIV. Could these symptoms only last 20 hours? Or could this just be the 24 hour flu, although mid-August seems like a weird time to get the flu.

A couple of week later I began to itch all over my body. Legs, arms, back. There is no visable rash and the itching is not severe. I would say rather mild although often. I find myself itching a couple of time per hour. Is itching a symptom of HIV? I believe it is usually accompanied by a rash but I am not sure.

During the last month or so I have also been experiencing shooting pains in may hands, feet, legs and arms. I usually get these pains a couple of times in an hour. They are like stabbing pains or electric shock pains. I did some research and found that these types of pains are known as Peripheral Neuropathy, which is sometimes found in people w/HIV but also caused by vitamin shortages, Diabetes, etc. I don't know enough to know if this is indeed, Periperal Neuropathy. My question is can NP show up early in the progression of HIV? I think it is found in later stage HIV, but I am not certain. Can anyone answer this question?

Last question I have read other posts and many people have repeatedly said that HIV transmission is actually pretty difficult and certain sets of conditions need to exist for transmission to occur. What "sets of condions" are people talking about?

I know trying to figure out if you are HIV based on symptoms is pretty darn stupid. But all of these symptoms coming together at the same time is a little bit spooky. And there isn't much I can do until the 90 day mark. Any thoughts from you would be greatly appreciated and probably help ease my mind some. Thanks for your time and thanks for listening...

 
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Old 10-11-2005, 05:44 PM   #2
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Re: Peripheral Neuropathy

Ok, so let me try to answer some of your issues before you jump into a Camaro and drive off a bridge.

But first the questions: explain the encounter: female to female/female to male/male to male? Vaginal/oral/or anal? Protected or unprotected? Was there an exchange of fluids ie semen, vaginal fluids, or blood? Attempting to diagnose by symptoms will drive you crazy and until you share the nature of the encounter, it would be difficult to determine your relative risk.

The flu-like symptoms: Sometimes the flu is just the flu. Sometimes a twenty-four hour bug is just the twenty-four bug. Yes, it possible that flue like symptoms could (emphasis on "COULD") be symptomatic but if you diagnose this disease by its symptoms alone you will be no further down the track that before. You really have to get tested to know the results and how to treat the illness, OK? Got it!? Sometimes the flu-like symptoms can be related to HIV (emphasis on "CAN") and that dignosis is called "acute seroconversion illness." But, again, that, in and of itself tells you nothing.

Itching is a symtom of poison ivy, poison sumac, poison oak. Also, contact derimities, a reaction to a medication that you may have taken for the flu, the sun, dry skin, etc. If everyone with itchy skin had HIV, things would be really worse than they are.

Peripheral Neuropathy, once again, in and of itself, is not a symptom of HIV. I had one friend who was HIV+ and developed peripheral neuropathy. I have never had peripheral neuropathy. Sometimes athletes, runners, swimmings and people who play contact sports. Typists develop peripheral neuropathy and it is sometimes call carpal tunnel syndrome.

The condition to contract HIV? At least one of the partners has to be HIV+. YOu can't get HIV if neither partner is HIV negative. And you can't know that until you are tested. Also, an exchange of bodily fluids (when a partner is HIV+) like semen during vaginal or anal intercourse. An exchange of blood - as in IV drug users who share needles or if you intercede in a fight and one of the participants is HIV+ and you get their blood into a cut. Vaginal fluids can also contain the HIV virus. Oral sex is not typically a high risk encounter even if someone ejaculates into the mouth of the partner UNLESS the receiving person has cuts or abrasions on the gums with some bleeding (this could be from brushing too hard), or abasions in the esophagus. ANywhere where the fluid can enter into the blood stream.

The bottom line: Get tested! You'll be saner if you do. chris

 
Old 10-13-2005, 09:58 PM   #3
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Re: Peripheral Neuropathy

Hello Dogsrule,

I have PN also. I have been searching for an answer for 8 months now.
I have tested and tested and tested for HIV. All together 9 HIV tests including 6 PCR DNA tests. I though I was going to have a nervous breakdown. I had night sweats, developed floaters in both eyes, and a cough for 4 months. I still have the floaters and the PN. I have seen so many Dr's. including an Infectious Disease specialist. All of this from 5 seconds of unproteced oral sex.
I did test positive for HSV I AND II. The PN is driving me nuts! I have PN just as you described ( My skin was itchy and now I have shooting pains in feet, wrists, and hands).
I don't stress over HIV anymore but Dr's. cannot tell me why I have these symptoms. Symptoms don't equal HIV. Get your test and try not to think about it too much. Not a day has gone by for me since Feb 18th 05 that I don't think of HIV. So I want to let you know you are not alone and I am sure your test will be negative.

 
Old 10-14-2005, 07:24 AM   #4
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Re: Peripheral Neuropathy

Hey Steve -

That sounds pretty brutal. What is HSV I and II? I am unfamiliar with those. That for the reply. It is comforting that I am not going through this alone.

 
Old 10-14-2005, 10:33 AM   #5
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Re: Peripheral Neuropathy

Steve -

Could you tell me a little more about your PN. What have the doctors said? What do they think it could be from? How often do you get pain? Is the PN related to HSV I and HSV II? Or are they unrelated. Do you believe that the PN is from your unprotected oral sex experience? I think it might be a vitamin shortage for me, or possibly stress. I haven't been eating very well the last five years or so. What type of doctor would you suggest I see? Thanks for all your help.

 
Old 10-16-2005, 10:35 PM   #6
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Re: Peripheral Neuropathy

Quote:
Originally Posted by DogsRule
Steve -

Could you tell me a little more about your PN. What have the doctors said? What do they think it could be from? How often do you get pain? Is the PN related to HSV I and HSV II? Or are they unrelated. Do you believe that the PN is from your unprotected oral sex experience? I think it might be a vitamin shortage for me, or possibly stress. I haven't been eating very well the last five years or so. What type of doctor would you suggest I see? Thanks for all your help.
Dogsrule,

My PN started in April 05. I had received unprotected oral sex for about 5 seconds on Feb 18 05 with a girl I met in a bar. I have seen so many Dr.'s and I have found they all have a different opinion. I was told that the HSV II virus could attack the nervous system causing PN but it cannot be confirmed and there is no way to find out what is actually causing my PN. I get the pains mostly on my hands and feet. Sometimes they feel like stabbing or shooting pains or just a painful spot.
HSV is short for herpes. I have never had any blister outbreaks. I don't want to scare you but maybe you should see your regular Dr. and ask for a HSV panel with IGM and IGG tests. From what I understand the IGM can tell if it was recent and the IGG can tell if it is an old infection.

Steve

 
Old 10-17-2005, 08:45 AM   #7
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Re: Peripheral Neuropathy

Steve -

It is difficult for me to believe that you contracted Herpes w/only 5 seconds of oral sex. Are you sure that the encounter you are speaking of is how you contracted Herpes? That could be the exact situation I am in. I don't have any outbreak either but am getting some pain as mentioned earlier. Also, have some joint pain, almost like arthritis. Any other info. you can think of would be helpful. Thanks.

 
Old 10-17-2005, 09:15 PM   #8
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Re: Peripheral Neuropathy

Dogs,

It is funny you have a hard time believing I got herpes from 5 seconds of oral. All the doctors I have seen give me that strange stare like I am lying or hiding something. I don't know if I got herpes from that encounter but I did get something from that brief encounter. I may have had herpes for a long time but never knew it.
I wish I knew what is causing these symptoms. I would give my life savings in exchange for an answer.

Best of luck to you.

Steve

 
Old 10-18-2005, 11:22 AM   #9
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Re: Peripheral Neuropathy

Oh I don't think you are lying or hiding something at all. STD's are pretty crazy...you never know what the deal is. It just seems weird that you could get something with that little contact. I have been researching herpes and really haven't found a whole lot of information on herpes and peripheral neuropathy being linked together. It seems while herpes does live in the nervous system it doesn't affect the peripheral nerves. Who knows. I am just as frustrated as you. My symptoms seem to be diminishing slowly although I am still getting some shocks and aching joint/bones. Are your symptoms diminishing, staying the same or progressing? Have you been experiencing aching bones at all? I know you said you were suffereing from shocks and itching. I don't have any rash, and I believe you mentioned the same. I read that HVS II is not contracted through oral sex, but HVS I is. I have also been experiencing some stiffness and some pain between my shoulder blades and at the base of the neck. It has just appeared the last four days. This really sucks.

 
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