It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



HIV Prevention Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 02-26-2007, 06:18 PM   #1
Newbie
(female)
 
Join Date: Feb 2007
Location: Illinois
Posts: 4
willowcpl HB User
Confused

Hello, I have some questions and thought maybe you folks have some suggestions as to help me not be so confused.

My husband of 10+ yrs has just been diagnosed HIV+. This diagnoses came after being tested for month's for different types of cancer. In December he had a swollen neck gland and had a CT scan that showed he had a cyst on the parotid gland. So his PCP sent him to an ENT. His blood counts where also low and was referred to a Hematolgist. The hematologist diagnosed him with Pancytopenia (low white, red and plateletts) and ordered a bone marrow biopsy which came back fine. He had a biopsy on the cyst and that came back benign.

The Hematologist decided to test him for HIV, just to "rule it out" since he could not find any cancer. The Test came back Positive for HIV. My husband is not a drug user or homosexual and swears to me he has been faithful since he has met me. He admits to having unprotected sex with his past relationships.
I had an HIV test and it came out Negative. I am being tested again in 6weeks then again in 3mos if the 6weeks test comes back negative.

After hearing my husbands test results I was pretty positive that I would be HIV+ as well.

Now that I tested Negative I am really confused. the research that we have been doing together is contradicting to us.

Hiv can be detected within 3-6 months of being infected. It can also lay dormant for 8-10 years. So if my husband is telling me the truth and he was infected prior to us being together then why am I negative?

Trust me I am absolutely happy that I am, I just cannot understand why!
Did I dodge a bullet or am I just going to have to wait to get sick before I know I have this disease?

Thanks, any suggestions or explanations is greatly appreciated.

P.S. I am meeting with my Dr in a couple of days and my husband is seeing an infectious disease specialist in late March.

 
Sponsors Lightbulb
   
Old 02-26-2007, 08:03 PM   #2
Senior Veteran
(male)
 
Join Date: Oct 2006
Location: new jersey
Posts: 3,773
smiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB User
Re: Confused

hello,what you have discribed is possible,lets hope you dodged the bullet and keep comming back as negative,you should, if you still have been negative this long.my partner infected me as soon as we went unprotected,some people it dosent happen to at all ,you just never know.
good luck to you and your husband will need your support more then ever
he will be ok.

 
Old 02-26-2007, 08:20 PM   #3
Newbie
(female)
 
Join Date: Feb 2007
Location: Illinois
Posts: 4
willowcpl HB User
Re: Confused

Quote:
Originally Posted by smiteler View Post
hello,what you have discribed is possible,lets hope you dodged the bullet and keep comming back as negative,you should, if you still have been negative this long.my partner infected me as soon as we went unprotected,some people it dosent happen to at all ,you just never know.
good luck to you and your husband will need your support more then ever
he will be ok.
Thanks smiteler, I appreciate your kind words and I do hope that it does keep comming back neg. My husband is in disbelief and now thinks that he has a false positive. We both can't believe that only one of us is POS and not the other after 10 yrs of exposure. I'll learn more, I'm sure once I speak with my Dr.

 
Old 02-26-2007, 08:35 PM   #4
Senior Veteran
(male)
 
Join Date: Oct 2006
Location: new jersey
Posts: 3,773
smiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB User
Re: Confused

someone else that used to come here alot had the same situation,so its not impossible, he was positive for 7 years and his partner was neg so it can happen.its not the end of the world for your husband, support him and let him know he will be around awhile.i thought the worst and 10 years later i'm still going strong, so he will be ok.

 
Old 02-26-2007, 09:04 PM   #5
Newbie
(female)
 
Join Date: Feb 2007
Location: Illinois
Posts: 4
willowcpl HB User
Re: Confused

Quote:
Originally Posted by smiteler View Post
someone else that used to come here alot had the same situation,so its not impossible, he was positive for 7 years and his partner was neg so it can happen.its not the end of the world for your husband, support him and let him know he will be around awhile.i thought the worst and 10 years later i'm still going strong, so he will be ok.
Thanks again, Like I said the only reason why my husband thinks its a false positive is because I am negative. He was confirmed with the Western Blot Test. How accurate is that test? We have read that it is possible to have a false Neg with Western Blot as well.
Neither of us has been tested prior to this. My first test was Neg. I go back in 6 wks for another test.

In the beginning we thought he may have Lymphoma because of his symptoms and the diagnosis' the Dr's where coming up with. (swollen glands, neck, arm pits and groin, low red, white, platelet counts and weight loss.) the Dr. only decided to test him for HIV as a way to rule out since all of his other tests where coming back inconclusive. is there a possibility that he may have something else other than HIV? Is there any other diseases out there that cause low immunity with low blood counts or swollen glands? And if he is already showing these symptoms how far along is he with the HIV?

If he was infected it was greater than 11 yrs ago. Can he just now show symptoms? And how the heck after all these years can I not be infected? If I am truly Neg I surely do have an angel looking out for me

 
Old 02-26-2007, 09:21 PM   #6
Senior Veteran
(male)
 
Join Date: Oct 2006
Location: new jersey
Posts: 3,773
smiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB Usersmiteler HB User
Re: Confused

some people go a long time without knowing so its all quite possible,the real answers will lie with follow up testing to know for sure what the story is.anything else is just guessing.there has been false positives so that is possible also.good luck and let us know how you make out and reguardless of the outcome you will be ok.

 
Old 03-01-2007, 05:55 PM   #7
Newbie
(female)
 
Join Date: Feb 2007
Location: CA, USA
Posts: 9
Vixen72 HB User
Re: Confused

Back in the early 90's, I had several scenarios that could have caused this for me, but it wasn't until 2001, that I thought I had a really bad flu, went to the doctor, she did a xray, said I had pneumonia and the same visit, was admitted to the hospital. The doctor's couldn't figure out why someone my age could have pnemonia so bad. They asked me if I had ever been tested for HIV, I said no and agreed to be tested. They ran the test three times to make sure and sure enough, it was positive, I had PCP. This was 2001, I had been with my boyfriend back then, husband now (married in 99'), since 94' and we never used protection prior to my diagnosis. After finding out my status, he got tested and continues to get tested and thankfully, he is still negative!! So I probably had the virus from 8-10 years, before I ever had any kind of sign.

Your husband and yourself, should continue to get tested. If your husband still shows positive, his doctor needs to get him on some sort of cocktail. If you still test negative, I wouldn't give up on the testing just to be sure, but I would say that you are lucky and I would probably thank that angel of yours. If someday you do test positive and hopefully that never happens, at least you can get treated in the HIV stages. Either way, your husband and yourself, are going to be just fine.

Good luck to both of you and keep us all posted.

Take care,
Vixen

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
i am so confused!!Any ideas??? marmar2007 Cancer: Breast 5 12-26-2007 09:55 PM
missing grandad so much, and so confused chelle1980 Death & Dying 2 05-03-2007 03:02 PM
TTC and so frustrated and confused. HELP ishade Trying to Conceive (TTC) 0 09-20-2006 08:57 AM
I"M SO CONFUSED!!!!!!!!!!!!!!!! mtm9138 Lymphomas 4 08-04-2005 02:05 PM
Still confused: Leep & Dysplasia Sadiwest Cancer: Cervical & Ovarian 7 01-04-2005 11:45 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



Apollo123 (836), blokecalledkev (443), smiteler (409), joggen (152), SOTM (94), guyfromnorth (50), Kszan (20), NervousNelly1 (10), capehatteras (10), ty7721 (9)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (857), janewhite1 (823), Titchou (773), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (655), BlueSkies14 (610)



All times are GMT -7. The time now is 05:56 PM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!