a while back, I posted about my HIV scare and everything has turned out fine. Now this time I am posting for another reason..
Recently, my mom had a routine check-up for overall wellbeing and she had blood drawn and set for testing. She is also scheduled for an MRI because she complains about headaches.
The results came back and she was called to the doctors office. They said that she tested positive for what she thinks they said was an "auto-system disorder". But then she also mentioned that the doctor said, "there seems to be something HIV". When asked about HIV, my mother did not know what it was (she doesn't know the english version of HIV) so she said "oh it's something wrong with taking my blood?" and she said the doctor kind of tried to brush of the whole HIV thing by naming a list of autoimmune disorders like lupus (the doctor seemed surprised when my mother had said that she has not heard of this before), arthritis, etc. that it "could be". He also said that it could be many things and that she will need to wait and talk to a specialist about it.
She sensed that they knew what it was, but didn't want to say anything. So she called up the office and asked for the results and they said that the doctor had authorized them to not give them out until the specialist talks to her. Which could be another 2weeks. She is very afraid. Her translator said that she asked the doctor about the results and then said the same thing to her about having to wait. She said that her (translator) and the doctor already knew what it was but that at this moment it isn't a big issue and they couldn't tell her until she talked to a specialist.
My mother is very respectful lady, and she's cared for me and my 2 siblings for years, with the help of my aunt, and she confessed to me today that she has never been with anyone else in her entire life than my dad. My dad had cheated on my mother a few times with other women years ago and I'm thinking, maybe if he caught it from them, he passed it on to my mother. My dad rarely complains of any health issues though.. at all!
6 months before this, my mom had a routine checkup for cholesterol, etc. with blood work, and everything was normal. I'm not sure if they tested for HIV though.
So my questions are, wouldn't my mother have the right to know if she tested positive for HIV or not? That way she would know and be responsible about it.
Or are doctors actually allowed to withhold this information?
Please help me experts. I love my mother to death and I also would like to know what I can do to help her if she does indeed have HIV. Also, is there any progress on any kind of possible cures for HIV.
Please help :'(
Also I am wondering if maybe my mother misunderstood the doctor about him saying HIV.. I called the office today on behalf of my mother and pretended to be my dad as he has authorization to the results (too far?) and the lady on the phone said that she tested positive on her ANA, which to my understanding has something to do with an autoimmune disorder (lupus?). She also said when I asked her that she didn't have a test performed for HIV and that the doctor notes did not say anything about HIV either. I asked if it was possible if my mom misunderstood the doctor and she laughed and said yes. My mother's english is not too good.
So is it possible that if my mother has HIV, her ANA could be positive or even a false positive?
She has not had any doctor tell her before that she has HIV but then again I'm not sure if she has tested for it. Also, her RBC and WBC came back normal as well as liver enzymes.
Well, I've managed to talk to a doctor at my mother's clinic, and asked her many questions. First of all I realize that the person my mom was talking to when she possibly heard something about HIV was a lab technician, not the doctor.
Also I realized that since my mother has never been diagnosed with HIV, there is no way this lab tech could know what her status is and therefore could not make any comment about HIV, accurately. Also, there was no HIV test to back up his comment and there is nothing about HIV on her medical record.
1) What I'm thinking is that he could have thought that HIV was an example of an autoimmune disease as I know there are a few people that mix these up?
I called today and the doctor on call was able to access my mothers record, she was very nice. She stated that she tested positive on her ANA and the subtest that tests for Sjogrens. And that her CAT scans are to check for inflammation and also blood flow to her head that may be causing her headaches. The doctor also stated, when I expressed my mothers concern for HIV, that an HIV test was not done and also that there was nothing that stated anything about HIV in the doctors notes of the visit. She said that she has nothing to worry about in regards to HIV. She also stated that her kidney and liver functions were normal.
The doctor also stated that doctors are not allowed to withhold any information to the patient. They are to tell them everything. My mother was afraid because when she spoke to her translator, who was speaking with the lab tech, the translator said that there is no risk of death at the moment, which frightened my mother into thinking that what she has, has some sort of risk of death, which could be true if it was a more serious autoimmune disorder, but irrelevant if she meant HIV because there is nothing that points to HIV on her record or her recent tests. And also, if she got HIV from my dad, I'm sure my dad would be suffering from some symptoms as well, since he would have had it for a longer period. But he's not. At all.
With all of this information, I guess I could conclude that there was some sort of misunderstanding on my mothers part or possibly a misunderstanding on the lab techs part.
Sorry about this guys, I know it shouldn't be a place to vent, but I want to get an opinion on this from you guys. She has had no risk that she knows of.
I also think this maybe me still being afraid of my experience that I freak out when family members experience things like this.
Hey its not a problem to ask valid questions about hiv here and yours is most certainly a valid post and i think we would all have the same concerns regarding our parents. Its good that the issue is resolved.
I hope your mother gets better soon buds, fingers crossed its nothing to worry about.
As for yourself, well after any scare we all take a little time to get over it and you will. :-)
“Morality is only moral when it is voluntary.”
"Being defeated is only a temporary condition; giving up is what makes it permanent".
The Following User Says Thank You to Apollo123 For This Useful Post: btrod (10-19-2012)
Hey guys, thanks a lot for the information. I accompanied my mother to her latest doctors appointment today and everything came back normal on her blood work (lymph, monocytes, WBC's RBC's). Her ANA like I said, was positive for Sjogren's Syndrome, but they still need to evaluate her more and it shouldn't be too much of concern. Her CAT scans are still pending to check the source of her frequent headaches and to check on her stenosis in both of her arterial veins.
I asked the doctor for her about what she had 'heard' a few weeks ago about 'HIV' from the lab tech, and he said happily that he did not order a test for that at all because he felt that he didn't see any reason to and that nothing really points to HIV. The doctor doesn't know that my dad had left us about 12 years ago and had another daughter outside of this marriage. And then 10 years ago, my mother found out that he was having an affair with another woman who has a daughter. That was the most recent affair that we are aware of and he's really changed for the better.
Do you think that based on this information, my dad might have caught HIV and passed it on to my mother? Wouldn't he be showing signs of progressed HIV infection by now, as well as my mother? He rarely gets sick and my mothers doctor today said that she was pretty healthy beside the fact that she has a positive ANA and the stenosis.
She remains adamant that she does not have it (she's a sweet lady, I feel bad for insisting), and I always think the worse when it comes to HIV. I got my midterm grades today, my anxiety and HIV scare show on my grades. Not too good.
Also, I would like to ask if college health officials would ever lie to the student about having HIV in order to save money since I am on the college's insurance.. and it's a private college.. ? I ask because I received my 73 day negative test for HIV and Syphilis and they were Non-Reactive. I am also currently attempting to get a bit of help from our school's counselor.