Hello, I don't know as much as others do. But, what happened with me was my children did not understand when the dr wanted to give my husband IV's to hydrate him and blood transfusion also. I knew that would increase the fluid in and around his lungs and make him worse faster. Probaly would kill him quickly.
I said NO...to the treatments and the kids wanted to do it. My husband was seeming to be able to understand what was going on...but, I had spent all of the time with him and I knew he didn't know what was happening.
Well, the treatments was done. I told Hospice. I asked them for help..fearing it happening again. The nurse agreed to come and talk with my children and explain things to them. They understood and agreed with her and me, but it was one day too late!
My husband was good for a few days but then his lungs filled up and he was drowning! '
He was not expected to make it another week at all. It was horrible. I made his funeral arrangements and lots of people came and said their good byes he was so far gone!
Praise the Lord he pulled through..to everyone's surprise. Now he is back to that same stage. But this time.......we did not cause it to happen.
So, yes, Hospice will be pleased to talk to anyone willing to lisen.
I got my children's respect on decision makeing now.
I wish you the help you need __I am so sorry you have such struggles , when your heart is breaking.
, hugs and prayers, Donna