HPV, CINII-Long Post - Human Papillomavirus (HPV) Message Board

western_fayette · 04-07-2006, 08:28 PM

Hello all,
This is my first post here.

This is such a supportive and informative board. I had my first abnormal pap when I was 19, I'm now 25. When I was 19, I only had one abnormal pap and my gyn told me I had HPV. At that time I didn't know that there were low risk and high risk types, didn't worry too much about it and life went on. Since then, I have had normal paps. Then, this past Nov. my pap came back as ASCUS. My gyn said it could just be an infection and would do a re-pap in March. That's when I requested I get tested for what strand of HPV I have. He said I could test for low risk and high risk but not a specific strand. Anyway, the re-pap came back as abnormal again and that I have high risk HPV.

The gyn performed a colpo and the results came back as having minimally abnormal cells with the surface of the cervix "inconclusive" as to CINII. My gyn does not have the best bedside manner, and I waited over two weeks for my colp results because he was on vacation. So, he suggests that we treat it as being minimally abnormal by not doing anything now, but follow-up like it's CINII and to do a re-pap in 4 months. It just seems like, especially after reading some posts, that things could drastically change by then. What would you guys do? Would you go to a gyn-oncologist for 2nd opinion or I am I being paranoid? I have a HMO referral plan but I will go through that process if I must. I keep thinking, ok, so I wait 4 months and get a re-pap and it comes back abnormal and then what? Start the whole process over again?

And then on the other hand, I don't want to get a LEEP if there isn't a need to. I was told by a past gyn that I have PCOS (polycystic ovary syndrome) but this gyn said I don't. Does anyone have PCOS, HPV high risk plus had the LEEP and still conceived? Everything gets so confusing. Thank you for any and all advice!

By the way, is "minimally abnormal cells" CINI? Sorry for the long post!

Timber · 04-08-2006, 07:09 AM

I'm in the same position as you are. My gyno assures me that waiting is fine, because it usually takes many years for CIN I or II to progress to cancer. And most of the time, CIN I resolves all by itself within a year. It's very unusual for it to progress quickly in a short amount of time, especially if you've had a colpo. A PAP isn't nearly as accurate, so it could appear that the cells progressed quickly when it really just didn't pick up the dysplasia the first time.

You do not need to see a gyn-onc if you've only got mild to moderate dysplasia. It can be easily treated by a regular gyno. Mild dysplasia is very common and gynos treat it all the time.

If I were you, I wouldn't have the LEEP until you need it, if you want to have children in the future. Why take the risk if it's not necessary, you know?

western_fayette · 04-08-2006, 07:37 AM

Thank you Timber. I really appreciate your reply. That is exactly how I feel, why take the risk if its not necessary. So, what happens if the re-pap comes back as abnormal? Do I get another colpo? So, does minimally abnormal cells mean CINI do you think? THANK YOU again for your reply. It helps to talk to others who are going through the same thing.

Timber · 04-08-2006, 09:15 AM

CIN I is minimally abnormal yeah.

If it comes back as still mildly abnormal, then you continue to have re-PAPs for a year to see if it resolves (and it often does). If, however, it starts to get worse, then you do another colpo.

I had my re-PAP last week and they couldn't tell if things were getting worse or not so they wanted to be safe and I'm getting another colpo. SIGH. Colpos are no fun.

western_fayette · 04-08-2006, 09:28 AM

Thanks Timber, good luck at your colpo on Monday. You will be in my thoughts.