I'm one of the new people - here's my situation. I started having dull aching pains in my forearms a few months ago. Had a freaky virus (or at least that's what the doctors say) where every muscle in my body felt as if I had done a major workout. I could hardly walk, turn over in bed or get up. This was gone in 3-4 days, except for weakness in my arms - particularly in the front of my underarm. Got sent to a neurologist - weakness in my arms being the only symptom. He ordered nerve conduction studies, which came back normal. He ordered an MRI to test for MS - which I was not familiar with. I did researce on MS and found out that I had several of the symptoms, including some depression, fatigue, tendency to drop things, and some cognitive impairment. One thing I noted was that symptoms could flare with a viral infection. I remember when I had the "virus" that my arms felt as if they had big rubber bands around them -kind of like Braxton-Hicks contractions in my arms. This banding was listed as a symptom of MS. After my appt., my symptoms got worse. They migrated to the right side of my body, where my arm and leg burn, and feel as if the muscles are moving around (if that makes sense) It feels at times that they will collapse from weakness. I specifically have pain in my right groin - it feels as if it is pulled 80% of the time. My hips ache when I get up from a chair. I have stabbing pains in my arms, as well as shooting pains. The MRI showed no signs of MS. I returned to the neurologist for a follow up visit. He has ordered another MRI of my neck to check for MS plaque there, also to see if my spinal cord is pinched, and if there is a rare condition (which I don't remember the name of) of fluid build up. When I left his office, I started feeling a stabbing pain on the side of my neck, and a strange feeling in my left leg, right above my knee. I don't know if it's consider a spasm or what - it didn't hurt, but I could actually watch the muscle extend out a 1/2 inch and retreat. It was if I had a little baby in my leg that was moving around.
Sorry this is so long - can anyone help? Fibromyalgia has come up amongst friends - but I don't know. HELP!!
I know waiting for a diagnosis is hard believe me I waited quite a few years for one myself. My first MRI's and other neuro tests were neg. I was diagnosed with everything from Mitro-valve prolapse, Cronic Fatique, Epstien-Barr, Lupaus and finally Multiple Scelrosis. I now have severe pain in my neck due to Bulging disc and bone spurs. Many of the symptoms u described, I have had over the years. Don't give up hope, they will figure it out and find med to help you. It is just hard while u are waiting. Hang in there.